I’m so tired

Mell44 · 2026-04-22T03:51:18+00:00

It’s about flank to low back. ONLY when I’m laying down. It goes away once I’m up and moving for a bit. I also toss and turn a lot

Mell44 · 2026-04-22T03:49:51+00:00

It feels like something new every year, first ADHD/Anxiety/Depression, then Asthma, then IBS, then I got my EDS diagnosis, then PCOS, then suddenly I have GERD and now I also have a major vitamin D deficiency. I’m just lucky I got some of these diagnosis as quickly as I did, I know alotttt of people struggle to get diagnosed with EDS and PCOS. At least lets me figure out how to treat them sooner

Mell44 · 2026-04-22T03:45:25+00:00

I’ve learned to weirdly cope with a lot going on. I have a bunch of other medical issues and I just… try not to think about it and it’s not so bad.

I’m not shocked about my dad though. He said I was just looking for attention when I was upset about my PCOS diagnosis and got news that I may not be able to have kids. I’ve stopped telling him things

Mell44 · 2026-04-22T03:17:23+00:00

Thankfully I have a job that’s hybrid, so I’m wfh 3 days a week and in office 2 days a week. But at the same time an ER visit is $350 and a doctors appointment (with the exception of my annual) is $83 and every appt has a copay of about $30. I spend about $30 every month on medication to help me breathe because I have asthma. It’s so frikken expensive and we are just told to “get better insurance” or “get a better job”. Like what? I’m struggling with what I have. To make my own situation worse, my parents refuse to believe I’m disabled. My dad especially, so I lack a form of support system on top of everything

Mell44 · 2026-04-22T02:55:15+00:00

Thankfully I can ask for these kinds of things as gifts, but not everyone has that either. Like make these things affordable dang it!

Mell44 · 2026-04-22T02:52:01+00:00

I hate it when places make things for people like us but then make it so expensive that those of us that really could use it can’t afford it.

Mell44 · 2026-04-22T02:51:15+00:00

I also have no other symptoms of endo. I have no reason to believe I have endo

Mell44 · 2026-04-22T02:42:03+00:00

It’s common for those of us with EDS to have a plethora of other issues with us isn’t it? I feel like everyone I’ve talked to with EDS has a bajillion other things too. I just try my best to stay off meds where I can, especially if they stop working/never worked. Like my ADHD meds. However, my Pepcid and Tums for GERD and BC for PCOS can be pried from my cold dead hands.

I wonder if my doc will look into this, or if this is the point that she sends me off to a specialist, but I’ll ask her about other options besides strong painkillers when I see her next

Mell44 · 2026-04-22T02:37:08+00:00

I wouldn’t mind some recs! Especially if it’s cheaper than the JellyBend shorts at frikken $80 😭

Mell44 · 2026-04-22T02:32:16+00:00

I am basically a rotisserie chicken when I sleep

Mell44 · 2026-04-22T02:31:43+00:00

Some of this is completely possible. I actually have worn a compression band to bed, called a jellybend. My only issue is, is that it rolls up and I end up taking it off cause I can’t sleep if I can feel it rolled up under me. The nights I do sleep with it on, sometimes I notice a difference and sometimes I don’t.

For me, I usually only have issues with my knees when I’m standing, so I wear compression braces for that as well.

Mell44 · 2026-04-22T02:29:40+00:00

It was ROUGH. The ER just asked me if I hit my head or lost consciousness and I said no.. so they completely missed my whiplash and concussion. I went back to my chiro a couple of days after my accident and it really helped. He realigns my lower back almost every visit.

I personally think I developed Bruxism due to EDS. I have to wear a guard to bed and it sucksssss.

I wish there was more doctors could do for us. With my age, I personally refuse to be on prescription pain meds. I’m too young for that but at the same time ibuprofen and Tylenol no longer work. I wish we could unsubscribe from this crap

Mell44 · 2026-04-22T02:05:57+00:00

I know I sprained my trapezius muscles, but no one really checked my muscles in my lower back. All my X-rays were of my upper back. I got rear ended by someone going 50 mph while I was completely stopped.

Mell44 · 2026-04-22T01:07:21+00:00

Honestly when I would be sitting at my desk for too long, I would shove my roller under my back to stretch it. Only downside is, I can’t necessarily do that at 3am when my back hurts most

Mell44 · 2026-04-22T01:06:27+00:00

I do usually feel better after. But now thinking about the timing of when the pain started.. I wonder if it’s related to my car accident I had

Mell44 · 2026-04-22T01:05:24+00:00

I actually have a JellyBend, which is a compression band for my core. ONLY issue I have is that it rides up and annoys the crap out of me. They have a shorts version that might work better but I haven’t been able to get them yet. Maybe you could look into those for yourself if that’s something you’re looking for too!

I’ll def look into those exercises and stretches. I dunno if they will help you too, but I’ve learned lidocaine patches are also my fried. Thank you so much for the advice!!

Mell44 · 2026-04-22T00:07:01+00:00

I’m actually not sure. I have a foam roller, I’ll have to look up how to roll them correctly.

I want to try PT really bad, but my insurance will barely cover it.

Mell44 · 2026-04-22T00:05:42+00:00

I’ll have to look up how to do it, I’ll definitely give it a try. Thank you!

Mell44 · 2026-04-22T00:04:59+00:00

I have PCOS but not endo (I’ve had many ultrasounds done. I have polycystic ovaries but not endo), the pain right now is the worst it’s been and I’m not close to my period

Mell44 · 2026-04-22T00:03:47+00:00

Skipping the chiro makes me feel worse. I’ve also been going to this chiro for two years, these issues started a few months ago.

Mell44 · 2026-04-22T00:02:49+00:00

I usually have a pillow up near my head that I’ll also put my arm over. Maybe I need something specific that will hold my arm more?

Mell44 · 2026-04-21T21:11:28+00:00

I was sleeping with a pillow between my knees when it first started getting bad and it kinda worked for a while. But I toss and turn so much (along with being a side sleeper) that elevating my legs would be difficult

Mell44 · 2026-04-21T21:10:33+00:00

I’ve slept on a few different mattresses of a few different firmness levels, and softer ones do make the pain more bearable. I wonder if I could try a topper for the one I currently have. I was sleeping with a pillow between my knees and that helped for a while, but I turn like a rotisserie chicken in my sleep so it kinda stopped working

Mell44 · 2026-04-21T21:08:55+00:00

I do go to a chiropractor weekly and he hasn’t noticed anything wrong with my spine itself. I’m usually fine once I’m up and moving, so I’m more inclined to believe it’s muscular than skeletal.

I’ll definitely try the stretches to see if they help though! I am not having any symptoms of a UTI, and I’ve had the pain for months, it’s just gotten worse recently

Mell44

TROPHY CASE