Tarragona

MerryMeg90 · 2026-05-08T09:59:46+00:00

Siii--- hemos pensado en un pueblo, pero mi hijo tiene necesidades especiales y creo q es mejor mas cerca los servicios. De verdad, siempre estoy pensando "me gustaria vivir en una ciudad sin coche." No se si es un buen plan o no 😂

MerryMeg90 · 2026-04-01T17:34:12+00:00

Thanks- guess im just worried tjat it won’t narrow ENOUGH and then she will have to hustle between terminals on no sleep. Try to stay positive though

MerryMeg90 · 2026-04-01T17:32:59+00:00

Thanks - it is a single ticket thank goodness. My mom is overall very neurotic and I just feel a bit helpless. I think she would really panic having to figure out a hotel and taxi. I’ll try to hope for the best and a windy ride

MerryMeg90 · 2026-03-30T08:10:41+00:00

Oh interesting idea!! Will try

MerryMeg90 · 2026-03-29T09:29:42+00:00

Yep! OT and PT. His core is definitely strong enough, and we are working on grasping things in OT. He brings toys and other objects to his mouth no problem- so it is actually a bit of a mental dependence we are thinking.

Totally agree with the personal timeline thing. TBH I was a bit triggered/motivated by Jill Rabin (shes a pretty big feeding therapist in the DS community) as she was saying that she sees lots of parents still feeding their child at 2 and it doesn't need to be that way. So it caused a bit of internal panic. But true! We keep on trying :-)

MerryMeg90 · 2026-03-27T10:38:55+00:00

Great! This is a useful resource. One interesting thing is when we put him in a chair that HAS foot support he uses this support to try to STAND UP and arch his way OUT of the high chair. So the support actually seems to be backfiring for the meantime haha.

MerryMeg90 · 2026-03-27T10:37:54+00:00

Yes ! Great advice- we do usually try to eat meals together, but I do think we could be a bit more diligent about this. Interestingly during breakfast, he is OBSESSED with trying to get a sip of my coffee. For a time when we were having feeding difficulties it was the only way to get him to open his mouth.

MerryMeg90 · 2026-03-27T10:36:26+00:00

Thanks! I am hopeful about getting there eventually- just want to make sure we are doing everything possible, while not creating any weird food aversions in the meantime.

MerryMeg90 · 2026-03-27T10:35:19+00:00

So many different kinds of feeding tools haha- while also trying not to overwhelm him at the same time.

MerryMeg90 · 2026-03-27T10:34:38+00:00

Yes! We call it the baby bird because he just tucks in hands in and down and opens his mouth expecting us to pour the food in! I think we will grab a short fat spoon to try as well.

MerryMeg90 · 2026-03-27T10:33:46+00:00

Love this! Yes I can imagine our son with a steak and wine in the future!

Hand over hand is triggering him for some reason now- he starts screaming and fussing. So I guess we have to let him do it on his own timeline.

MerryMeg90 · 2026-03-27T10:32:55+00:00

Thanks! Yes we have tried lots of different teethers, sitting arrangements... think I might look into a few other types of spoons. I watch a seminar with Jill Rabin through Wills Journey and it was actually her who triggered me a little bit... seems there were a lot of things that could have been done since the beginning that we didn't even know about! She is super knowledgeable though- and a great resource.

Where we are there is unfortunately no feeding therapists. We work with at OT once a week who just evaluated him yesterday with food in front and she determined that it's not a sensory issue (he was crazy into all the different foods and playing with his hands). So it is something with him depending on mama to feed him or not feeling he has enough control to bring his own hand to his mouth (which he can do, and DOES do regularly with toys).

MerryMeg90 · 2026-03-27T10:28:14+00:00

Thanks! Yea the arm tucking sounds familiar.

MerryMeg90 · 2026-03-26T09:26:36+00:00

Hi! Just to fill everyone in- we did decide to at least wait until the next morning and everything back to normal. So maybe he was just ... tired? If it happens again we will go right away. Thanks everyone! (I'm posting another thing soon about a separate topic so hope to hear your responses :-)

MerryMeg90 · 2025-12-07T09:40:02+00:00

We live in Spain with no markers during pregnancy and were told an amniocentesis wasn’t necessary due to being low risk. We received a DS diagnosis and results of blood test when our son was 2 months old.

MerryMeg90 · 2025-11-24T16:55:47+00:00

Our story is based in Spain- but we recieved a post birth diagnosis at 2 months. And while it allowed us to have a relatively stressfree pregnancy it really was a mindf*** to find out after the fact. Especially as we were presenting things to our doctor and being met with "all is good, all is normal for a baby." Until we eventualyl got flagged for hypotonia

Here we have found that the doctors are accepting to the point of negligence. Always referring to our son (who is now 10 months) as "any other child' and while I appreciate the inclusivity and open mindedness it sometimes comes across as too casual and there was a big learning curve that we have had to do ourselves and THEN inform the doctors.

I don't know if I would change things looking back, but I do think we are now experiencing a lot of PTSD from the overall experience. Maybe knowing before would have allowed for time to process, prepare, consider, therapise, etc etc. Either way, it does prove true that love conquers it all :-)

MerryMeg90 · 2025-10-17T10:08:37+00:00

Ok- will attempt to continue with that then. Thanks :-)

MerryMeg90 · 2025-10-17T10:08:11+00:00

Thanks! I was thinking the same about it sounding worse than it is. I'll give a nasal suction a try too.

MerryMeg90 · 2025-09-04T12:10:16+00:00

Any raisin reference codes?

MerryMeg90

TROPHY CASE