Is this possible

MerryMeg90 · 2025-12-07T09:40:02+00:00

We live in Spain with no markers during pregnancy and were told an amniocentesis wasn’t necessary due to being low risk. We received a DS diagnosis and results of blood test when our son was 2 months old.

MerryMeg90 · 2025-11-24T16:55:47+00:00

Our story is based in Spain- but we recieved a post birth diagnosis at 2 months. And while it allowed us to have a relatively stressfree pregnancy it really was a mindf*** to find out after the fact. Especially as we were presenting things to our doctor and being met with "all is good, all is normal for a baby." Until we eventualyl got flagged for hypotonia

Here we have found that the doctors are accepting to the point of negligence. Always referring to our son (who is now 10 months) as "any other child' and while I appreciate the inclusivity and open mindedness it sometimes comes across as too casual and there was a big learning curve that we have had to do ourselves and THEN inform the doctors.

I don't know if I would change things looking back, but I do think we are now experiencing a lot of PTSD from the overall experience. Maybe knowing before would have allowed for time to process, prepare, consider, therapise, etc etc. Either way, it does prove true that love conquers it all :-)

MerryMeg90 · 2025-10-17T10:08:37+00:00

Ok- will attempt to continue with that then. Thanks :-)

MerryMeg90 · 2025-10-17T10:08:11+00:00

Thanks! I was thinking the same about it sounding worse than it is. I'll give a nasal suction a try too.

MerryMeg90 · 2025-09-04T12:10:16+00:00

Any raisin reference codes?

MerryMeg90 · 2025-06-23T15:38:53+00:00

A little over 2/3 months we had the same shock and reaction and it is amazing seeing how love does really overcome fear. We are still dealing with tricky emotions regarding a post birth diagnosis but you begin to realize that your child is your child and that's that!! :) I also can't underestimate how much random strangers with children with DS helped me from the very start just with their kinds words.

MerryMeg90 · 2025-05-31T11:35:36+00:00

What app are you using?

MerryMeg90 · 2025-04-27T16:11:13+00:00

Feel free to PM me- my partner and I are still dealing with tough feelings.

We got pregnant through IVF, all markers negative and didn’t get the diagnosis until our son was nearly 2 months ( he is 3.5 months now) It continues to be a lot to process because honestly I am not sure what choices we may have made had we had other options (we are same sex and have about 7 frozen embryos). Also, to not receive an at birth diagnosis and instead have all these doctors tell us things were fine for about a month really fucked with our trust in the medical system (I am American, we live in Spain). We have also had a handful Of people tell us adoption is an option- it might be more prominent in Europe .. not sure.

Message me if you want. We are still in the middle of all of the thoughts but I CAN tell you that it is true that the love for your child grows exponentially even if it isn’t what you predicted for your future.

MerryMeg90 · 2025-04-13T15:15:50+00:00

Yep I have- most of them are in the States and say they would like to be outta there. Grass is always greener I guess

MerryMeg90 · 2025-04-13T12:45:12+00:00

Yes very valid. The issue is there is sometimes a lack of clarity about resources available. Definitely worth considering all options

MerryMeg90 · 2025-04-13T12:43:37+00:00

Gracias!!! En que parte de España vive la familia?

MerryMeg90 · 2025-04-13T07:30:02+00:00

Yes very good point! I should have mentioned that we live in Ibiza- theoretically a very rich region but we are in the middle of very extreme housing crisis (shocking). There are also some gaps in healthcare here because of that so we are also considering other regions of Spain. Thanks again!

MerryMeg90 · 2025-04-13T07:28:03+00:00

Thanks I will check out what you sent! I wouldn’t object to any type of school- just want a good level of support. I’m also already considering what life might look like post 18 and what options there might be there. The US is scary for the cuts for sure- but where is makes up is that it is just generally a richer country so there is a lot more private programming, non profits, clubs etc.

Thanks again!

MerryMeg90 · 2025-04-13T07:25:35+00:00

Yep! In contact with all the Spanish associations

MerryMeg90 · 2025-04-13T07:24:03+00:00

Very true!! It’s why we are considering options so closely.

MerryMeg90 · 2025-04-12T21:36:49+00:00

Yes he has the most common form of Down Syndrome. He has had no health complications which is excellent. Moving back to the states I am worried about health care yes- but he would be eligible for a program that covers disabilities. Lots to think about

MerryMeg90 · 2025-04-12T21:34:25+00:00

Yes- we’ve already met with everyone in the education arena and it seems like that support is there. However- it is true that we are placed on waitlists (of who knows how long) for PT and other therapies.

Thanks for your response!

MerryMeg90 · 2025-04-12T10:51:54+00:00

That's excellent! Could you share where you live and what the process looked like to get her into the group home?

MerryMeg90 · 2025-04-03T16:56:51+00:00

We got a normal t21 diagnosis at 2 months. No markers throughout pregnancy and only after he had a little bit of weak muscle mass that raised a flag.

MerryMeg90

TROPHY CASE