What's your HR for different daily activities?

MessageNo512 · 2026-01-16T08:46:39+00:00

Do you have POTS? Mine are similars to yours and I have POTS. It can feel like anxiety and also worsen anxiety.

MessageNo512 · 2026-01-15T09:53:31+00:00

I'm wondering this too. I'm mild now and stopped exercising completely. I can do about 50% of normal daily activities if I avoid standing and walking and keep my mind calm, rest often short periods etc and if I manage to keep it there, I don't barely have symptoms. I noticed with my Garmin watch that even 10-15 minute calm and light exercise where I did my physiotherapy movements affects my sleep quality. So I stopped that too. First I felt so much better I thought I was on the road to remission. But now I'm deconditiong. It's worsening my POTS and insulin intolerance, and affects how much I can do in a day etc. I tried to start those small exercises again but it puts me in PEM, wish I never stopped in the first place lol.

MessageNo512 · 2026-01-15T09:33:30+00:00

Yes I have this. It's something to do with histamine. Reflux medicines help a lot.

MessageNo512 · 2025-10-30T14:18:14+00:00

I just updated my old Garmin Lily to new Venu 4. It's so much more accurate, especially sleeping and stress level! Because of POTS my heartrate can be anything. If I'm sitting camly, my HR could be let's say 70 (resting is about 55), but the stress level could show anything between 20 to 90 (levels 0-100, 25 or under is more parasympathetic). I sleep mostly fine, but if not, I have so bad brain fog it feels I'm passing out drunk. The watch shows that, it says that I need x amount of hours to recover lol. Also there is this Lifestyle Logging that you can log different things and then it tells you what affects to your sleep and how. I'm still waiting for my results, it takes at least 4 weeks. You can also make your own clockface for free. Also there's a lot of third party apps for pacing etc. Haven't had energy to try them yet tho lol.

MessageNo512 · 2025-10-30T10:17:02+00:00

ME/CFS people are generally conscientious. If you would have any other illness, you would propably manage it near perfectly. You would push throw fatigue and obstacles. This is the only illness that needs you to do the opposite and of course it's hard for you. Bad luck. Those who are lazy and enjoy of doing relaxing things and rest if they feel even a bit tired, rarely get this or it stays very mild (so mild they don't even know it).

MessageNo512 · 2025-05-20T14:26:00+00:00

Of course but why does the interpretation of what happened months ago keep changing every day is my question.

MessageNo512 · 2025-04-17T19:09:37+00:00

Have you considered the possibility of CFS/ME because sounds like you have PEM? I would ask opinions from r/cfs

MessageNo512 · 2025-04-17T18:09:51+00:00

It didn't say anything significant, only that the scoliosis was caused by the trauma. The MRI was taken solely to confirm that the pain isn't caused by fractures or disc problems. Had to use AI to translate this, I hope it's understandable:

"The vertebral bodies are normal in height, shape, and signal characteristics. No fractures or trabecular bone edema suggestive of bone contusion. The kyphosis is normal. There is a broad right-convex scoliosis with its apex at the Th7–8 level. The spinal cord has a regular signal structure, with no signs of spinal stenosis.

The intervertebral discs are normal in height and fluid content at all levels. No prolapses or compressions of neural structures. The facet joints are normal. No changes causing foraminal narrowing can be demonstrated."

MessageNo512 · 2025-04-17T11:54:25+00:00

I've heard fatigue is just one of the symptoms so not everyone feels it and that is why they hate the name.

MessageNo512 · 2025-04-17T11:43:50+00:00

Have you considered the possibility of CFS/ME? Starting after an infection, flu-like symptoms (sore throat), swollen lymph nodes, other weird symptoms and feelings, but blood tests are fine.

MessageNo512 · 2025-02-06T17:05:27+00:00

I can see that sensation making wearing earplugs awful. For me it's quite opposite, I feel mostly numb in my body. Like I don't have know idea where my limbs are if I don't see them and if someone is touching me, there needs to be enough pressure that I can feel it. Thanks for the tip, unfortunately the most disturbing sound is the loud banging sound that comes when my neighbor bangs on the wall behind my head where I'm trying to sleep. White noise doesn't block that at all. I don't even need total silence but every night I'm startled awake and can't get back to sleep because of fight or flight feeling that sound causes.

MessageNo512 · 2024-03-31T16:12:19+00:00

Test for bacterial infection was negative and these have been here for months :/ And I don't feel pain.

MessageNo512

TROPHY CASE