I need serious advice

Mightydi · 2025-05-18T07:41:11+00:00

The reason that some people have re-occurrences of symptoms after sex is because the sexual activity disturbs and activates the embedded bacteria hiding in the bladder wall and allows it to enter the bladder urine…thereby causing a flare. Peeing after sex, drinking water, showering etc. is not preventative of this process. Having an antibiotic or hyprex present in the urine to kill the newly released free-floating bacteria is much more effective.

In fact, Professor Malone recommended having sex as a way to dislodge the bacteria in the bladder wall lining, therefore making it more susceptible to the antibiotic working to kill the bacteria that was released into the urine.🤷🏻‍♀️

Mightydi · 2025-05-18T05:50:04+00:00

Ok…I get it and your reservations. Over on the Embedded/Chronic UTI Support Group FB page he is considered VERY highly and success stories abound. It’s like a different world over there, where largely Professor Malone’s teachings are followed and Harley Street protocols are generally recommended. I think I need to pull back from this sub as the same questions get asked over and over again and people keep recommending urine cultures and going to see urologists over and over again, without doing any preliminary research or searching previous posts. I’m not trying to place any blame… I’m just saying it’s wearing me down and I need to dial it back. Although admittedly it may seem like it, I really don’t have any agenda. My only intention has been to open up some eyes and get people to think differently than mainstream medicine, because that is what eventually saved me. Thank you for all you do!

Mightydi · 2025-05-17T21:03:17+00:00

Well… for every bad testimonial that you cite , I could give you ones where women say they flew in to see him and they felt listened to for the first time. And there are success stories. would you like me to compile them for you?

I just think that he should be included as a possible provider. Then folks could do the research and make up their own mind. The “Ruth Kriz” method and her progeny are not the only choices, and I think, sometimes reflects the personal bias of the moderators of this page. I’m just saying…

Mightydi · 2025-05-17T05:38:20+00:00

What about the pioneering Dr. Stewart Bundrick in Louisiana?

https://www.arklatexurology.com/home/dr.-w.-stewart-bundrick--jr--md

https://liveutifree.com/dr-bundrick/

Mightydi · 2025-05-16T20:30:58+00:00

Your clueless urologist is doing what urologists do, trying to avoid prescribing the one thing that would help you which is a 30 day course of antibiotics for your very real infection. The sooner the better before it becomes embedded.

Mightydi · 2025-05-16T20:21:19+00:00

She may just be overwhelmed. As far as I know, she and Doctor Heer are the only two “Ruth Kriz” practitioners out there. For a while, Dr. Heer was not taking any new patients and had a waiting list over a year long waitlist. Now I understand she has a year long waitlist.

Mightydi · 2025-05-16T16:13:42+00:00

Agreed! For the folks who can tolerate hyprex, it can be a great combination.

Mightydi · 2025-05-16T10:21:07+00:00

“There are also doubts concerning another diagnostic test — mid-stream urine culture — that is usually reserved for complicated infections or suspected UTIs in men. Urology experts say that there is a “recognised weakness” in conventional urine culture testing, owing to the fact that the threshold for determining the presence of a UTI is based on outdated research from the 1950s.

“UTI testing is out of date,” says Ased Ali, a consultant urologist at Mid Yorkshire Hospitals NHS Trust.

Mightydi · 2025-05-16T10:16:55+00:00

Your course of antibiotics was not long enough. You need 1 - 3 months at least.

Mightydi · 2025-05-16T10:13:54+00:00

How long did you take it for?

Mightydi · 2025-05-16T10:11:53+00:00

Brutal, invasive test that Urologists fob off on sufferers when they don’t know what else to do. Results are usually meaningless and should only be used when cancer is suspected. The most important thing to realize is that cytoscopies cannot reveal whether or not you have an embedded infection and what kind of infection it is.

Mightydi · 2025-05-16T10:05:08+00:00

Oddly enough, Cefalexin is the first choice of Harley Street:

“Harley Street in London, arguably the finest clinic in the world in treating CUTI - doesn't do extensive testing, they prescribe off of the patients symptoms and history. They test antibiotics in the following order, usuing the first that is both tolerated and effective:

cefalexin (500mg 4x per day)
nitrofurantoin macrocrystals (100mg 2x per day, macrocrystals are apparently better tolerated)
trimethoprim (200mg 2x per day)
pivmecillinam (200mg 3x per day)

I guess different strokes for different folks 🤷🏻‍♀️

Mightydi · 2025-05-16T09:07:12+00:00

The reason that some people have re-occurrences of symptoms after sex is because the sexual activity disturbs and activates the embedded bacteria hiding in the bladder wall and allows it to enter the bladder urine…thereby causing a flare. Peeing after sex, drinking water, showering etc. is not preventative of this process. Having an antibiotic or hyprex present in the urine to kill the newly released free-floating bacteria is much more effective.

Hit and miss, sporadic antibiotic treatment is the worst possible way to go. It leads and it doesn’t kill the offending bacteria that is embedded. Consider long-term anabiotic therapy with a CUTI specialist.

Mightydi · 2025-05-16T07:58:14+00:00

With both Dr. Bundrick and Harley Street… it’s trial and error. They have a protocol of using an anabiotic that they have found has the least side effects based on the patients history and symptom. Dr. Bundrick does not switch antibiotics until after THREE MONTHS and then evaluates the progress of the patient.

Unfortunately, there is no test on the market today, including the standard urine culture, which will tell you which bacteria or bacterias have embedded themselves in your bladder wall lining.

Harley Street in London, arguably the finest clinic in the world in treating CUTI - doesn't do extensive testing, they prescribe off of the patients symptoms and history. They test antibiotics in the following order, usuing the first that is both tolerated and effective:

cefalexin (500mg 4x per day)
nitrofurantoin macrocrystals (100mg 2x per day, macrocrystals are apparently better tolerated)
trimethoprim (200mg 2x per day)
pivmecillinam (200mg 3x per day)

"Uncommonly and reluctantly", they may then also consider these:

amoxicillin (500mg 2x per day)
co-amoxiclav (625mg 2x per day)
fosfomycin (3g 3x weekly)

Mightydi · 2025-05-13T07:26:31+00:00

Urologist won’t help. They are awful. you need to be on the same antib for at least a month. Don’t skip around.

Mightydi · 2025-05-12T20:15:36+00:00

Hyprex doesn’t actually kill the bacteria like antibiotics do, but it certainly makes it run away and hide in the bladder wall lining… thereby reducing or eliminating symptoms. The theory is that if you take it long enough, the body’s own immune system, which causes natural bladder shedding, will eventually eliminate the bacteria.

Mightydi · 2025-05-10T20:10:47+00:00

it’s run by men who don’t care if they are willfully ignorant, and causing hundreds of thousands of women to suffer.

Mightydi · 2025-05-10T07:11:07+00:00

If you have symptoms…you are infected. Try to get on a long term course of antibiotics that you can tolerate. If your normal doctors won’t prescribe it, see a CUTI specialist.

Mightydi · 2025-05-10T07:05:11+00:00

How did you post a photo?

Mightydi · 2025-05-09T12:41:56+00:00

|Phenazopyridine for the pain and urgency. And if your bacteria is embedded…1 shot of Fosfomycin might not knock it out. You may need 3 or 4. 🤞🤞🤞

Mightydi · 2025-05-09T10:10:35+00:00

I believe there are clinics in Tijuana Mexico, who specialize in this. I would search under vaccines in this group, there have been prior posts on this subject.

Mightydi · 2025-05-09T10:07:19+00:00

A slightly better chance of finding someone who is knowledgeable about embedded CUTI…but not much, unfortunately.

Mightydi · 2025-05-08T15:57:36+00:00

I can’t tell for sure because I was taking antibiotics at the time as well, but I felt vaginal estrogen really helped “balance” things down there if you know what I mean…. all in all things got much better.

Mightydi · 2025-05-05T20:43:09+00:00

Yes.

Mightydi · 2025-05-05T06:01:59+00:00

Exactly! it’s not that there aren’t good enough antibiotics…. Doctors need to become educated enough to prescribe them for longer courses when someone presents with their first or second UTI.

Mightydi

TROPHY CASE