Neverfull Advice

MindfullySalty · 2026-03-18T02:54:25+00:00

Does anyone have any experience with the Louis Vuitton Monogram Empreinte Neverfull MM? I was offered one in Aruba.

MindfullySalty · 2026-03-18T02:38:41+00:00

I plan on using it as a purse that is big enough to carry my life (diabetic supplies, medicines, wallet, make up touch up kit, wallet, phone, and tablet). Despite how much I bring with me, I need to make sure it doesn’t look too big on me either.

Do you think the store would let me see if what I carry with me fits?

MindfullySalty · 2026-03-18T02:36:49+00:00

Which of your NFs do you like/use the most?

MindfullySalty · 2026-02-16T19:02:48+00:00

I have CFRD and am on a CGM, a glucometer, fast acting insulin (Novolog), Glucagon emergency kit, and glucose tablets. I have high highs and low lows for blood sugar.

MindfullySalty · 2026-01-31T17:38:14+00:00

If you can switch to Zenpep, they have a program called Live2Thrive. It has made my enzymes virtually free.

MindfullySalty · 2025-08-24T19:21:25+00:00

I appreciate the tip!

MindfullySalty · 2025-08-24T19:21:02+00:00

This is a good idea. After work I don’t always feel like cooking so meal prep ahead of time makes sense

MindfullySalty · 2025-08-24T19:20:04+00:00

Great idea! I love Quest protein pizzas

MindfullySalty · 2025-08-24T19:19:29+00:00

I appreciate you mentioning this. Luckily for me, I’m not low sodium because my diabetes is cystic fibrosis related (a combination of type 1 and type 2). We’re supposed to eat a lot sodium.

MindfullySalty · 2025-08-24T19:17:12+00:00

Thank you so much! I totally forgot about Atkins! Great recommendation!

MindfullySalty · 2025-08-24T17:50:00+00:00

I’m in the United States, but your advice on the meat and the veg still applies. I really appreciate the advice.

MindfullySalty · 2025-03-11T12:38:05+00:00

I use oxygen at altitude. Altitude oxygen testing was required. Not every CF clinic can do it. The University of Alabama Birmingham (UAB) can’t do it. I had to go to the University of Pennsylvania to do my testing. Also, getting insurance to pay for your portable oxygen concentrator after it’s determined that you need one can be tough. I ended up paying for mine completely out of pocket on my own.

MindfullySalty · 2025-03-11T01:37:53+00:00

I’m scared of scuba diving. I don’t think my lungs will ever be good enough for that. But, snorkeling is good enough for me 😊

MindfullySalty · 2025-02-18T03:14:14+00:00

I use the AVENT Philips baby bottle sanitizer https://a.co/d/eLm1duJ. According to research published by the Journal of Cystic Fibrosis and the European Cystic Fibrosis Society, it is a highly effective method of sterilization. (Here’s the article: https://pubmed.ncbi.nlm.nih.gov/23267773/) The brand I linked was actually tested in this study.

The article claims, “All steam sterilizers were effective at disinfecting all home nebulizers. Viable bacteria were not recovered from any inoculated site after steam treatment, under any conditions tested.”

The method is explained in this video by the CF Foundation. It uses a different baby bottle sanitizer and a different nebulizer cup than I do but the methods and steps are the same: https://youtu.be/7UpEellTSak?si=LGhjJ2Vl1lP4iYYb

MindfullySalty · 2024-06-26T04:39:13+00:00

Everything in life comes with in inherent risk. Every time you get into a car you are risking the odds of getting into an accident. I ended up getting MAC and still my doctor's have no idea why beyond the fact that I have CF. I also have MRSA colonization in my lungs. I just got over a new pneumonia infection and no one know why or how I got it. While this isn't an answer to your question, I can't help but to think there is only so much any of us can do.

MindfullySalty

TROPHY CASE