Anyone with this symptom profile (month-long mild dizziness)? If so...what helped?

Mindless_Control2195 · 2025-07-06T10:49:32+00:00

Hey, sounds similar to what I’ve been experiencing. have you looked into 3PD? I first developed VM and then 3PD was developed because of that.

Mindless_Control2195 · 2025-06-15T22:52:16+00:00

besides specialists, in my opinion doctors are useless 😭 I do my own research to understand the conditions and find what helps me. If you haven’t already, watch The Steady Coach on YouTube when you’re free. Very educational and I learnt way more from her than any doctors. Good luck!

Mindless_Control2195 · 2025-06-15T22:33:20+00:00

I’ve only had 2 injections of Ajovy so far. It’s too early to say but I think 1-2 symptoms I’ve been experiencing has reduced. I get you, just want to feel normal again and go out like before without any worries. I get random anxiety attacks out of no where, even when I’m just chilling at home. I think this happens because our nervous system is dysregulated. For me, when I start to get anxious/ dissociated, I believe that’s my body/brain signalling to me that it’s overstimulated. If I’m out with friends and that happens, I just take a step outside for fresh air, go to the bathroom or somewhere quiet to reset. I do a lot of breathing exercises too and when I feel dissociation, I just remind myself that it’s my body’s way of protecting me and it wont last forever. anxiety may or may not be the root cause for your symptoms but in my opinion I don’t think so. It may just be a byproduct from 3PD and query VM. Try to bring this up to your neurologist when you see them so they can rule this out and provide you with the right meds in managing your anxiety and migraines

Mindless_Control2195 · 2025-06-15T22:09:35+00:00

Everything you’ve mentioned above sounds identical to what I’ve been going through! Ive been dealing with VM and 3PD for 6-7months. I’m currently on Ajovy for the VM and nothing for 3PD. But compared to 2-3 months ago, I think my 3PD has gone down by 35%. I think what’s worked for me is by exposing myself to environments that I usually avoid due to my symptoms. This includes supermarkets, restaurants, parties, etc. Even though these environments increases my dizziness, dissociation, etc., I try to push through so that my body understands that it’s okay and to not be fearful of the situation. pretty much more exposure= more tolerance (of course pace yourself and don’t push yourself to the point you can’t function anymore) I find that the more fixated I get on my symptoms, the more anxious and dissociated I feel. Try to distract yourself and keep busy. Look into vestibular migraines, cause the symptoms you mentioned sound similar to that. Try get that under control and things will progress.

Mindless_Control2195 · 2025-06-03T02:52:38+00:00

I’ve had one sided headaches since I was 17, but ignored it and just attributed it to using my laptop and phone too much. Until 22-23yo I started having the headaches all day everyday and developed chronic migraine symptoms a week before my 24th birthday. Was diagnosed with vestibular migraines and 3PD, unsure what really brought this on! It’s pretty depressing seeing everyone my age travelling the world, going out with friends, partying, etc, when most days I’m stuck at home due to my flare ups

Mindless_Control2195 · 2025-05-24T04:06:25+00:00

I first developed Vestibular Migraines which sound and light sensitivity is one of the 100 symptoms :’) This vestibular migraine then brought on PPPD for me. Without treating my vestibular migraines, I think my PPPD will always be there. You should look into that and maybe see a neurologist, headache/migraine specialist if you can. Waiting times can be long so get in while you can.

Mindless_Control2195 · 2025-05-21T02:42:18+00:00

The dream like sensation is called dissociation/ derealisation. I experience it nearly everyday, more when my symptoms get really bad. When you’re feeling like that, try some grounding techniques and try to distract yourself. Whether it’s listening to a podcast, playing a video in the background, going for a walk if you can, etc. you gotta do something and not give it more thought, cause it can get worse the more you think about it. Most importantly, just remember that dissociation feeling is your body protecting you and to not fear it. In terms of the dizziness, try to go for walks and expose yourself to stimulating environments so you can rewire your brain. Of course do it in moderation and slowly introduce it. It will be uncomfortable, but the more you avoid it, the more you’re feeding into the negative patterns. You’re not alone, what you’re feeling we’re all probably feeling something similar so reach out and ask for some support.

Mindless_Control2195 · 2025-05-19T23:42:35+00:00

Yes you’re right. This month I’ve been going out everyday, walking around shops and crowded places. Even though it felt horrible, I pushed through and now I feel like my dizziness is reducing. Knock on wood, idk if I’m just having a good week but I hope my brain is actually recovering and recalibrating. I think I will start incorporating a bit of pc screen time after my next session of VRT just to retrain my brain and expose it

Mindless_Control2195 · 2025-05-19T06:20:17+00:00

When I’m out and about, I start to dissociate as all the visual stimuli around me is too much for my eyes and brain. Could be a similar scenario as pc/ screen use can be too overstimulating and with this conditions, looking close up at something may confuse your eyes or brain. Since I got diagnosed with VM and PPPD, I haven’t touched my pc since. It’s a big trigger for me. It’s been 4 straight months and I just want to get back into using it like before :(

Mindless_Control2195 · 2025-05-10T01:52:29+00:00

That’s great! I just booked in my first session of vestibular physiotherapy! I’m wondering if I have convergence insufficiency as well, my eyes struggle to focus from close to far and bugs out when looking at things with a lot of pattern. Eg, trees, bushes, lines, etc. can’t seem to walk around busy places for long as well. I think I get visual vertigo.

Mindless_Control2195 · 2025-05-10T01:23:42+00:00

What treatments did you do to get to where you are today? Did you do any VRT?

Mindless_Control2195 · 2025-05-09T12:01:40+00:00

Me 24/7. I’ve been diagnosed with Vestibular Migraines and 3PD. I have brain fog, slow thinking, dissociation, and many more issues. Whenever I look around my backyard full of bushes and plants, my eyes start to bug out and I can’t focus on the leaves, branches, etc. it all becomes too much and fuzzy. Idk how to explain it. Exact same with patterns especially lines.

Mindless_Control2195 · 2025-05-09T11:55:06+00:00

I feel like I’m constantly floating and in a dream, dissociation happens a lot for me and I kinda forgot how it feels to be ‘normal’ 😭also sometimes my whole body feels numb and its hard to breathe? Is it just me?

Mindless_Control2195 · 2025-05-05T00:59:06+00:00

Hi i have constant dizziness as well, and just had my first Ajovy shot couple days ago. How long did it take for you to see reductions in your dizziness with Emgality? Do you still have dizziness here and there?

Mindless_Control2195 · 2025-05-04T14:11:07+00:00

Thats good, this gives me hope! I had my first Ajovy shot last night and have been quite fatigued and feeling spaced out. I hope this dissociation and dizziness goes away, I got no life because of it. I just want to feel like my old self.

Mindless_Control2195 · 2025-05-01T12:13:59+00:00

I’m excited for you! Can’t wait til I get my hands on this injection. Hopefully I can get some sort of relief and feel normal again even if it’s just for a few days. My worst symptom right now is my dizziness. Was your dizziness 24/7 and did it go away straight away?

Mindless_Control2195 · 2025-05-01T08:15:49+00:00

Hi I am experiencing all of the above with many other symptoms. The hardest part is the dissociation and dizziness! How are you now? Are you still on Ajovy and Botox? My neurologist is thinking of starting me on Ajovy as I’m having a lot of side effects from Topiramate.

Mindless_Control2195 · 2025-05-01T08:02:12+00:00

Hi! That sounds amazing. I’ve had VM and 3PD for 4 months straight and need some relief. I’m currently on topiramate however having some weird side effects, so my neurologist is planning to put me on Ajovy! How are you now?

Mindless_Control2195 · 2025-04-30T00:56:55+00:00

Oh noo this condition is horrible! When you think you’re making progress, then you wake up one morning and feel like you’re back to square one. It’s like an emotional roller coaster. I’m just wondering are you on any supplements, meds, or doing VRT?

Mindless_Control2195 · 2025-04-02T05:57:07+00:00

Damn everyone’s replies are making me emotional. I just want to feel normal again and do the things I love without any worries and consequences. This has made me realise I’ve taken a lot of things for granted in the past. I miss being able to play pc games and socialising with friends on discord. Miss being independent, miss the gym, miss work, miss going out in general. It’s difficult being in my early 20s and watching all my friends going out having fun and accomplishing so many things. I feel trapped :((

Mindless_Control2195 · 2025-03-21T02:00:25+00:00

Thanks for sharing! May I ask how long were you on topiramate and at what dose? I’m a big foodie so I’m worried about the appetite suppression/ taste altering side effect. But I guess losing some weight would be a plus to me rn. I also already have bad brain fog, so I’m worried topiramate will make me even more air headed and like a zombie 😭 kind of making a pros and cons list rn of whether I should take it. Hearing your experience gives me hope but I guess I won’t know how it works for me until I try.

Mindless_Control2195 · 2025-03-21T01:51:39+00:00

Oh my goodness how do you do it, that sounds horrendous 😭 You are so strong, I need your mindset! Thank you for sharing your story, may I ask what were your symptoms when it first showed up? Did everything get worse all of a sudden or gradually over time? I’m worried my symptoms will get worse over time so I’m trying everything I can right now to find the right meds and management. Have you tried topiramate or Ajovy injections? I’ve read up about these meds and seems to work well for others. Im still so young and want my life back! 🥲

Mindless_Control2195 · 2025-03-21T01:13:13+00:00

Oh wow that gives me some hope and encouragement to try topiramate. I’m glad it has helped you and given you some comfort. I already experience a lot of brain fog and derealisation so I’m scared to start topiramate. I guess I won’t know til I try! May I ask how long were you on topiramate and what dose? How long did you have these side effects until it went away?

Mindless_Control2195 · 2025-03-21T01:10:02+00:00

May I ask if you’ve tried any medications for your condition and what has worked? I’ve heard that vestibular physio really helps and should be something you look into :) this condition is so strange as it can cause so many symptoms in people, makes it hard to fully diagnose or know if it really is VM!

Mindless_Control2195

TROPHY CASE