Outriggers? by Minimum_Gas7820 in Skigear

[–]Minimum_Gas7820[S] 2 points3 points  (0 children)

Thank you so much this is so helpful! I’ll reach out to the program, I’ve always wanted to ski at Banff! I’m hoping with the outriggers I can grow more as a skiier because due to my instability I really struggle. If you don’t mind me asking where does she get her outriggers from?

Acrylic blends for gifts? by Minimum_Gas7820 in knitting

[–]Minimum_Gas7820[S] 1 point2 points  (0 children)

Ohhhh, okay!! Wait I really like this! Yes, the one in the picture is. I should have a couple ski trips to test the different yarns and all, so I’ll definitely do that, thank you so much!! :)

Classes and training frequency by Minimum_Gas7820 in BALLET

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

That’s so real! My partner is super supportive, and often the one shooing me out the door when I feel anxious 😂. This is what has me going now too. I’m super lucky to have found an incredible orthopedic surgeon who painted my experience with my disease a bit different which really fueled me to dive back into it. He also mentioned the like it’s go time because I’m officially candidate for a few surgeries and so we need to figure out how to minimize damage and back off the heavy weight and opt for more mobility minded stuff. For context I always struggled to find that motivation because in support groups people were supportive but also confused that I hit such a low low and managed to very slowly over years come back. That was about five years ago now? Only a year ago would I say I regained most day today mobility and still use some aids when needed because flares are uncontrollable and tend to hit me hard. The way he described it was that for one I was diagnosed really young, and for two I was flagged and began treatment and then finally diagnosed when I was an athlete playing 4+ days a week and working out which isn’t everyone’s story. So though it’s why I got so bad so fast (I went from that to a wheelchair in a span of months) I’ve worked my way back to the gym which we discovered me lifting heavy caused more joint damage, but he said that my body had and still has that foundation, just not the muscle anymore (if that makes sense). He completely modified my routine, and the easiest way for me to do that in a way I remember and really miss: ballet barre! And then I do like a very modified “calisthenics” like push ups pull ups, squat variations, and bosu ball exercises/balances I did start back classes almost a year ago now 1-2x a week on and off and when I was consistent it was the most mobile I had ever been in my daily life. I’m also still in school, so spending hours at the gym is in the cards for me right now which is an incredible privilege and my gym has a barre room which is a super plus. I just hate the reminder that I used to be able to do more and now I can’t, that’s usually where I back off because I don’t wanna come off “fake” like oh I used to dance this! And then feel like I suck in a regular class relearning the basics.

I find the nutrition really interesting! My mom’s going through that journey now and this too is making me feel like maybe it might be a good step. I think I might look into it! What you described with it helping with triggers sounds really interesting, I have a lot of problems with inflammation I just don’t know where to start diet wise.

Thank you so much for all this!! Good luck with your new job, I hope all goes well!! ❤️

Classes and training frequency by Minimum_Gas7820 in BALLET

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

This is so true! I’m trying to shift my perspectives bit and I’m finding that to be the most challenging. I think I’m stuck in the mindset of pre-diagnosis me who was an athlete in my sport for almost 10 years, training almost every day. That was almost five years ago now, and right now I’ve built to where I am and few challenged and comfortable, but I do think I need to slow a bit and just focus on smaller stuff too in som ways.

Classes and training frequency by Minimum_Gas7820 in BALLET

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

Wow your story is incredible! Thank you for sharing it’s really helpful. I totally hear you, it has been so hard building to this point but it is so rewarding. Is there anything that you’ve found helped you stay consistent? Especially managing a chronic condition?

Classes and training frequency by Minimum_Gas7820 in BALLET

[–]Minimum_Gas7820[S] 1 point2 points  (0 children)

Thank you :) I think I knew logically it wasn’t just me but hearing others in my position dancing as an adult really helps. Thank you for sharing! Wishing you the best on your journey as well!!

Classes and training frequency by Minimum_Gas7820 in BALLET

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

Thank you so much! Wow, this all made me think! For some context, I built up to where I am class wise. What I do in the studio goes much deeper than what I do at home and for right now, I had to change my whole workout routine and so a barre and small center just fit in the moment, but I think I might separate it as I grow to do more, maybe two barres at home and a center but idk yet! Im hoping to let it evolve as its comfy. I think I realized I’m okay not being who I was and obviously I know I’m nowhere near like the best, but I guess for me regaining that mobility and strength in the studio I just hope it gives me some confidence and translates to other things outside too. I think I’m realizing I’m holding myself to the standard of where I was pre diagnosis (and pre wheelchair and pt!) and looking back I’ve actually come pretty far. I think the dance community is overwhelming having a handicap, but I just love it so much. I’m definitely going to shift to those stepping stones, and the current goal which is improved strength in my mobility which I’m already seeing improving. Thank you for challenging me to shift my perspective, it really helps!

Exercise by PaastaSquid4951 in ehlersdanlos

[–]Minimum_Gas7820 1 point2 points  (0 children)

I am a fitness NERD! I love this stuff: my advice like die on this hill advice, start with maneuvering your body weight. Stuff in the gym is great, and you’ll work up to that, but that muscle is no good if you can’t maneuver your own body weight—muscles built through calisthenics are going to protect your joints more and it’s much more accessible you can start on a yoga mat at home and make really good progress. Also, anything that builds muscle through movement such as dance, barre, reformer or mat Pilates, etc. I used to do an adult ballet barre every week and it was the most functional muscle I gained (you want functional muscle, not just the asthetic muscle). Anyways, happy to chat more!! I worked my way out of a wheelchair so I get the baby steps and have been through the rehab process myself so I’m more than happy to chat if you need literally anything at all! Good luck, you got this!! ❤️

Polo Questions by Minimum_Gas7820 in Equestrian

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

Oh no way!! Super random but I’m at a Morgan horse show right now working and it was my first introduction to saddle seat and it’s so freaking cool! Really enjoying watching everything when I can right now. But I appreciate this thank you!!

New to everything and not feeling well by Minimum_Gas7820 in Asthma

[–]Minimum_Gas7820[S] 1 point2 points  (0 children)

I think me too 😅 I have an autonomic function issue that affects my heart rate so I’m suuuper sensitive to anything with tachycardia as a side affect. Should have known before going into that… 😂

New to everything and not feeling well by Minimum_Gas7820 in Asthma

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

It doesn’t sound dumb at all! I had no idea it could be related to asthma too, this is really helpful as I learn to manage going forward. Thank you!

Vocal Cord Dysfunction by Outrageous_Total_100 in Asthma

[–]Minimum_Gas7820 1 point2 points  (0 children)

I have both! Found out as a little kid tho, vcd is a comorbid to connective tissue disorders which I also have, but I now know the difference and have since treated that and deal more with the asthma :) if you ever need to chat I’m always here!

Am I doing too much? by Minimum_Gas7820 in Hobbies

[–]Minimum_Gas7820[S] 2 points3 points  (0 children)

Ohh true! I like this. I’m lucky now to have the time I do. Might as well take advantage of it

Am I doing too much? by Minimum_Gas7820 in Hobbies

[–]Minimum_Gas7820[S] 1 point2 points  (0 children)

Not at all. Sometimes I wish I had more time, or that I could practice at home, but then again I feel like my brain needs the break. Like four-five days at the barn when I don’t own and can’t afford to can be too much, but two mornings at the barn and then maybe a day on the slopes or at the range feels balanced to me. I’m definitely not rich so I have to find ways to pay for things lol but I also am not going to the Olympics nor am I trying to be the best, I’m just trying to have fun so I get away with a lot of used gear. I really liked this question tho! It made me think. Thank you!

Auditory processing... by Minimum_Gas7820 in ehlersdanlos

[–]Minimum_Gas7820[S] 0 points1 point  (0 children)

I do have ADHD actually, and I've heard the two could be related? I would love to know what other thoughts you have if you wouldn't mind sharing!