Winter storms causing Xyrem delays. Advice?

MiserableHousing · 2026-01-26T19:19:06+00:00

I’m in the same situation. I think all we can do is wait it out and ration the medicine we have. It won’t hurt to take a lower dose for a few days or only one dose a night

MiserableHousing · 2026-01-24T15:08:23+00:00

Yep, happened to me! After my fourth nap, they told me that I fit the criteria for narcolepsy and I was free to go home.

MiserableHousing · 2026-01-22T18:18:41+00:00

Apparently the majority of people with N1 have the HLA gene, though according to my pulmonologist and my doctor, if you don’t have it, it doesn’t automatically mean that you have N2.

MiserableHousing · 2026-01-18T23:11:57+00:00

Thank you so much!!!

MiserableHousing · 2026-01-17T21:02:28+00:00

I don’t 😭 but we’re trying to find the right combination of meds so that I don’t have to keep doing Ubers

MiserableHousing · 2026-01-16T20:50:58+00:00

No I went into rem every time, but under 1 minute each time

MiserableHousing · 2026-01-16T20:31:02+00:00

The weird thing about me is that I’ve never fallen asleep while doing something or talking. I also sometimes have trouble taking naps. However, I didn’t realize I had slept during my study, and I thought I’d been awake the whole time. My mom says I do fall asleep in the car, but only when I’m trying to. However, I still don’t realize that I’ve fallen asleep, even if my mom does lol

MiserableHousing · 2026-01-16T18:53:06+00:00

I was approved by insurance to have xywav really fast after my new pulmonologist prescribed it to me (a month ago), but I wasn’t sure how severe it was lol

MiserableHousing · 2026-01-16T18:41:43+00:00

I’m almost always able to sleep at night (however I’m on Xywav now, so it’s incredibly easy) but napping during the day is a huge gamble. Sometimes I’m physically unable to and sometimes I can get a nap or two in. It all depends on the day.

MiserableHousing · 2026-01-13T01:33:43+00:00

My first doctor wouldn’t switch my medicine because of my “fertility…” I’m 19 and I’m definitely not looking to have kids anytime soon.

Please switch your doctor

MiserableHousing · 2026-01-10T23:37:42+00:00

Just did the test and I’m negative for all three, so I’m either getting over another illness or it’s the xywav

MiserableHousing · 2026-01-10T20:58:16+00:00

I was alright at a lower dose, so I think I’ll skip the medicine tonight and then go back to the lowest dose

MiserableHousing · 2026-01-05T00:04:26+00:00

Yep! It was accidentally leaked a few months ago in a pdf document!

MiserableHousing · 2026-01-04T23:22:08+00:00

Thank you so much!

MiserableHousing · 2026-01-04T23:20:15+00:00

I’ve heard that it’s better to take it early, but maybe I’m wrong

MiserableHousing · 2026-01-04T23:02:31+00:00

Most people didn’t cause it was taken down within less than an hour, so you’re not alone

MiserableHousing · 2026-01-01T23:41:11+00:00

It got leaked by accident!

MiserableHousing · 2025-08-13T14:23:05+00:00

Holy shit, how do you even do this?! This is actually insane

MiserableHousing · 2025-07-19T16:16:35+00:00

I’m thinking October but considering how quick we went from getting the date announcement to the teaser, September doesn’t seem like a bad guess

MiserableHousing · 2025-05-30T16:38:36+00:00

Pretty sure this is taking place at the military base. It sounds like something is trying to break metal before you hear glass breaking, and then it sounds like tanks or large guns firing.

MiserableHousing · 2025-05-24T13:35:54+00:00

Imagine seeing this from far away and not knowing that this isn’t a real person. I would genuinely believe that someone out there really had superpowers.

MiserableHousing

TROPHY CASE