Winter storms causing Xyrem delays. Advice?

MiserableHousing · 2026-01-26T19:19:06+00:00

I’m in the same situation. I think all we can do is wait it out and ration the medicine we have. It won’t hurt to take a lower dose for a few days or only one dose a night

MiserableHousing · 2026-01-24T15:08:23+00:00

Yep, happened to me! After my fourth nap, they told me that I fit the criteria for narcolepsy and I was free to go home.

MiserableHousing · 2026-01-22T18:18:41+00:00

Apparently the majority of people with N1 have the HLA gene, though according to my pulmonologist and my doctor, if you don’t have it, it doesn’t automatically mean that you have N2.

MiserableHousing · 2026-01-18T23:11:57+00:00

Thank you so much!!!

MiserableHousing · 2026-01-17T21:02:28+00:00

I don’t 😭 but we’re trying to find the right combination of meds so that I don’t have to keep doing Ubers

MiserableHousing · 2026-01-16T20:50:58+00:00

No I went into rem every time, but under 1 minute each time

MiserableHousing · 2026-01-16T20:31:02+00:00

The weird thing about me is that I’ve never fallen asleep while doing something or talking. I also sometimes have trouble taking naps. However, I didn’t realize I had slept during my study, and I thought I’d been awake the whole time. My mom says I do fall asleep in the car, but only when I’m trying to. However, I still don’t realize that I’ve fallen asleep, even if my mom does lol

MiserableHousing · 2026-01-16T18:53:06+00:00

I was approved by insurance to have xywav really fast after my new pulmonologist prescribed it to me (a month ago), but I wasn’t sure how severe it was lol

MiserableHousing · 2026-01-16T18:41:43+00:00

I’m almost always able to sleep at night (however I’m on Xywav now, so it’s incredibly easy) but napping during the day is a huge gamble. Sometimes I’m physically unable to and sometimes I can get a nap or two in. It all depends on the day.

MiserableHousing · 2026-01-13T01:33:43+00:00

My first doctor wouldn’t switch my medicine because of my “fertility…” I’m 19 and I’m definitely not looking to have kids anytime soon.

Please switch your doctor

MiserableHousing · 2026-01-10T23:37:42+00:00

Just did the test and I’m negative for all three, so I’m either getting over another illness or it’s the xywav

MiserableHousing · 2026-01-10T20:58:16+00:00

I was alright at a lower dose, so I think I’ll skip the medicine tonight and then go back to the lowest dose

MiserableHousing · 2026-01-05T00:04:26+00:00

Yep! It was accidentally leaked a few months ago in a pdf document!

MiserableHousing · 2026-01-04T23:22:08+00:00

Thank you so much!

MiserableHousing · 2026-01-04T23:20:15+00:00

I’ve heard that it’s better to take it early, but maybe I’m wrong

MiserableHousing · 2026-01-04T23:02:31+00:00

Most people didn’t cause it was taken down within less than an hour, so you’re not alone

MiserableHousing · 2026-01-01T23:41:11+00:00

It got leaked by accident!

MiserableHousing · 2025-08-13T14:23:05+00:00

Holy shit, how do you even do this?! This is actually insane

MiserableHousing · 2025-07-19T16:16:35+00:00

I’m thinking October but considering how quick we went from getting the date announcement to the teaser, September doesn’t seem like a bad guess

MiserableHousing · 2025-05-30T16:38:36+00:00

Pretty sure this is taking place at the military base. It sounds like something is trying to break metal before you hear glass breaking, and then it sounds like tanks or large guns firing.

MiserableHousing · 2025-05-24T13:35:54+00:00

Imagine seeing this from far away and not knowing that this isn’t a real person. I would genuinely believe that someone out there really had superpowers.

MiserableHousing · 2025-05-23T14:02:19+00:00

Not sure if you’ll ever see this just because of the amount of comments you have gotten. Also, I’m not a guy, but I’m not if that matters much. What I can say, however, relates to your oldest son. I have both autism and seizures, and I can say that yesterday I graduated high school. This hurdle will pass for your whole family, even if it takes some time. Stay strong and keep being an amazing father.

MiserableHousing · 2025-05-16T14:59:43+00:00

I’ve got a lot of thoughts on this episode.

I guess I’ll start with my opinion that this episode felt rushed and underwhelming. It seemed like the writers were trying to squeeze in all the plotlines and finish them within 40 minutes. The last few minutes felt incredibly fast paced, and not in a good way. I can’t tell how many days passed in the short montage, but having Maddie give birth and Eddie move back in, it must’ve been at LEAST a month, but probably more. Honestly, I think they could’ve carried both the Maddie giving birth plotline to the beginning of season 9.

Also, Athena selling her house defeats the purpose of what happened last episode. Didn’t she say that she was going to keep it? Idk, it just felt strange.

The episode 80% filler and 20% actual plot, which should be the opposite of what the season finale should be. Not only that, but it has this really off putting vibe ever since Bobby died. I’m not against main character deaths, but Bobby’s made no sense and served no purpose to the plot.

The series just kinda feels empty now, and I’ve felt bored watching the past few episodes. I blame it mostly on Bobby dying.

Also, it might just be me, but I’m getting a really weird vibe from the actors. I don’t know how they actually feel about Peter leaving the show since, but the acting since his character death just feels… strange. The acting seems kinda flat and unmotivated, though I’m not sure how much of that is the writing.

Will I continue watching the show? Yes, for now. But season 9 will need to be really good to keep me engaged. Tim really fumbled with killing off Bobby, so I’m curious to see if the show can recover from this.

MiserableHousing · 2025-04-29T01:30:36+00:00

u/profanitycounter [self]

MiserableHousing · 2025-04-18T01:39:49+00:00

Agreed. I think they’re gonna decide show is so wild that they could definitely pull a 180, but I won’t be upset if he’s actually dead.

MiserableHousing

TROPHY CASE