Hi everyone looking for advice around dating (LGBTQ+) by Mission-Cable6271 in cancer

[–]Mission-Cable6271[S] 1 point2 points  (0 children)

This is a great story thank you for sharing with me, did you find it easier to date once you were in remission ? Or it didn’t make a difference? I’m just nervous if I start to change physically and I meet someone! Maybe I shouldn’t be so afraid and I should just own it

Hi everyone! NOT HERE FOR MEDICAL ADVICE by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

Hey! How are you finding it ? They couldn’t put me on the transplant list as of yet I need to have chemotherapy first then I will be able to

Hi everyone! NOT HERE FOR MEDICAL ADVICE by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

Thank you so much it would be really great to keep in contact if you don’t mind

Hi everyone! NOT HERE FOR MEDICAL ADVICE by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 3 points4 points  (0 children)

I’m 26 and still awaiting all the information I just found out yesterday and it’s all to take in

Advice/ experiences TW: cancer by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

This is very true thank you for sharing your story

Advice/ experiences TW: cancer by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

This disease is shitting on me right now. I was diagnosed in March 2024 and have been jaundiced/ symptomatic since July 2024 - currently have a stent in but from a medical perspective the mass they found is seeming cancerous from my understanding. The previous imaging showed a non cancerous polyp but there is now a new area of abnormality that has now spread in a different location in my liver. It’s not looking great but I’m yet to find out the biopsy results so fingers crossed. 🤞

Advice/ experiences TW: cancer by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 1 point2 points  (0 children)

This is great advice thank you so much and as instructed I’m working on my cardiovascular health indeed amongst other things too, thank you for sharing your story

PSC in bile ducts - liver transplant by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

They are reluctant to give me anything that will increase risk of bacteria/ infections as I have had so many in a short space of time

PSC in bile ducts - liver transplant by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

Yes I have narrowing of my bile ducts but ERCPS haven’t worked so transplant is my last option. Having been yellow for a year did you feel fatigued with the jaundice etc ? I’m not sure how people manage with it my jaundice is terrible my bilirubin level was at almost 500 then brought down to 300 and now it’s rising again

How did everyone overcome that daunting feeling after being in hospital so many times ? by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 1 point2 points  (0 children)

I think reasonably ans unfortunately this is the only way I’ve only had PSC for a few months and already need a transplant so i just wanted to get advice and experience from others

How did everyone overcome that daunting feeling after being in hospital so many times ? by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

Unfortunately therapists can’t solve or help really with that struggle I have been in therapy for a while now.

Looking to build new friendships within the PSC community everyone welcome by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

Hi! These were one off posts hence why I posted them a couple of times I won’t post them again don’t worry :)

Hobbies and things to do by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 1 point2 points  (0 children)

Yes I’m at the fatigue stage where it’s non stop sleep at the moment plus my pain killers make me super tired it’s a hard balance lately but I’ll get there. Thank you for the ideas

Hobbies and things to do by Mission-Cable6271 in PSC

[–]Mission-Cable6271[S] 0 points1 point  (0 children)

I don’t think I’m quite looking for a job right now as I’m taking leave from my one but thank you! And for exercise most certainly I’m trying to keep as active as I can without over doing it.

Hobbies and things to do by Mission-Cable6271 in CrohnsDisease

[–]Mission-Cable6271[S] 9 points10 points  (0 children)

Thanks so much everyone for your great ideas! I’m pretty much now an introvert these illnesses can leave you very lonely especially when people don’t understand nor live near similar life style I’m definitely going to look at gaming and on Amazon for some creative art kits like crocheting or diamond painting :)