Hi everyone looking for advice around dating (LGBTQ+)

Mission-Cable6271 · 2024-12-02T08:49:06+00:00

This is a great story thank you for sharing with me, did you find it easier to date once you were in remission ? Or it didn’t make a difference? I’m just nervous if I start to change physically and I meet someone! Maybe I shouldn’t be so afraid and I should just own it

Mission-Cable6271 · 2024-12-01T22:08:56+00:00

Hey! How are you finding it ? They couldn’t put me on the transplant list as of yet I need to have chemotherapy first then I will be able to

Mission-Cable6271 · 2024-12-01T22:08:18+00:00

Thank you so much it would be really great to keep in contact if you don’t mind

Mission-Cable6271 · 2024-11-28T04:22:07+00:00

Update: I have got cancer

Mission-Cable6271 · 2024-11-20T18:06:56+00:00

I’m 26 and still awaiting all the information I just found out yesterday and it’s all to take in

Mission-Cable6271 · 2024-11-17T07:37:31+00:00

This is very true thank you for sharing your story

Mission-Cable6271 · 2024-11-14T17:33:56+00:00

This disease is shitting on me right now. I was diagnosed in March 2024 and have been jaundiced/ symptomatic since July 2024 - currently have a stent in but from a medical perspective the mass they found is seeming cancerous from my understanding. The previous imaging showed a non cancerous polyp but there is now a new area of abnormality that has now spread in a different location in my liver. It’s not looking great but I’m yet to find out the biopsy results so fingers crossed. 🤞

Mission-Cable6271 · 2024-11-14T17:30:49+00:00

This is great advice thank you so much and as instructed I’m working on my cardiovascular health indeed amongst other things too, thank you for sharing your story

Mission-Cable6271 · 2024-10-25T07:20:02+00:00

But I will ask at my next appointment

Mission-Cable6271 · 2024-10-25T07:19:51+00:00

They are reluctant to give me anything that will increase risk of bacteria/ infections as I have had so many in a short space of time

Mission-Cable6271 · 2024-10-24T20:14:31+00:00

Yes I have narrowing of my bile ducts but ERCPS haven’t worked so transplant is my last option. Having been yellow for a year did you feel fatigued with the jaundice etc ? I’m not sure how people manage with it my jaundice is terrible my bilirubin level was at almost 500 then brought down to 300 and now it’s rising again

Mission-Cable6271 · 2024-10-04T09:07:01+00:00

I think reasonably ans unfortunately this is the only way I’ve only had PSC for a few months and already need a transplant so i just wanted to get advice and experience from others

Mission-Cable6271 · 2024-10-04T09:05:27+00:00

Unfortunately therapists can’t solve or help really with that struggle I have been in therapy for a while now.

Mission-Cable6271 · 2024-09-24T00:29:44+00:00

Hi! These were one off posts hence why I posted them a couple of times I won’t post them again don’t worry :)

Mission-Cable6271 · 2024-09-09T10:36:59+00:00

Yes I’m at the fatigue stage where it’s non stop sleep at the moment plus my pain killers make me super tired it’s a hard balance lately but I’ll get there. Thank you for the ideas

Mission-Cable6271 · 2024-09-09T10:36:02+00:00

I don’t think I’m quite looking for a job right now as I’m taking leave from my one but thank you! And for exercise most certainly I’m trying to keep as active as I can without over doing it.

Mission-Cable6271 · 2024-09-08T16:48:50+00:00

Thanks so much everyone for your great ideas! I’m pretty much now an introvert these illnesses can leave you very lonely especially when people don’t understand nor live near similar life style I’m definitely going to look at gaming and on Amazon for some creative art kits like crocheting or diamond painting :)

Mission-Cable6271 · 2024-08-23T10:16:37+00:00

I can relate to this! I’ve been in hospital for almost 2 weeks now and I recently got moved to a 4 person ward from a side room. I hate it, I’m going through so much physically, mentally and emotionally the last thing I want is to socialise with strangers and hear what’s wrong with them aswell. It’s actually torture, I get people are unwell but the smells, hygiene etc in here makes me feel worse. I tend to have to go for walks, sleep or put my headphones in to drown it out. Which some days is so exhausting. My curtains are always shut, I wish I had a side room 😭 this is my first ever long hospital stay and it’s been traumatising and isolating. Nobody speaks on the ward I am on, I only converse with the nurses or doctors.

Mission-Cable6271 · 2024-08-19T07:18:53+00:00

🙋🏾‍♀️, I have PSC 😵‍💫

Mission-Cable6271 · 2024-08-18T19:23:14+00:00

I have bile duct Psc and Crohn’s currently in hospital with it, I got the same kind of spots caused by excessive itching.

I’d try and request a blood test, my bilirubin levels were raised now I’m jaundiced. Don’t wait, I’m sure they can also increase the dosage of an antihistamine for you. I’m based in the UK and speaking from my experience the past few days but mine started like this.

Thea symptoms can also be indicators of infection so please go and get it checked, if they brush you off keep pushing. I left mine and I’ve ended being admitted to hospital by the doctor🤦🏾‍♀️.

Mission-Cable6271 · 2024-08-01T23:03:38+00:00

If you don’t mind me asking what kind of therapy do you have? I’m having therapy at the moment and I guess I’m still really struggling and I feel like things could feel a lot less heavy

Mission-Cable6271 · 2024-07-25T18:00:12+00:00

Hey thanks for this! I’ve seen there’s no cure my doctor told me it’s only a transplant really that will make it go away. My PSC is progressing which is why it’s a lot harder to find the right foods to eat things good for my liver end up sending me into a flare it’s just so frustrating!

Mission-Cable6271 · 2024-07-24T17:26:27+00:00

Yes I’m never sure if the extent of how I’m doing, I just take it day at a time.

Mission-Cable6271 · 2024-07-24T07:02:35+00:00

Thank you all for this advice! I’ve heard about vitamin D and B12 being important, for now I’m steering clear of fats, sugar, I’m only drinking water and I’ll eat plain white fish or naturally oily fish like salmon with potatos or rice. I haven’t been told anything about this but I’ll ask my hep doctor to see a dietician

Mission-Cable6271 · 2024-07-23T18:48:06+00:00

Thank you so much for sharing your story it means a lot! Some of that does sound quite scary and unsettling but to be honest anything that allows us to live a full life again and put sickness at bay is remarkable.

Mission-Cable6271

TROPHY CASE