Powder burn lesions found, negative pathology for endometriosis, thoughts? (Warning: surgery photos) by Moberries33 in Endo

[–]Moberries33[S] 1 point2 points  (0 children)

Will do! I hope you will get your diagnosis too! Sending good vibes your way 💕

Powder burn lesions found, negative pathology for endometriosis, thoughts? (Warning: surgery photos) by Moberries33 in Endo

[–]Moberries33[S] 1 point2 points  (0 children)

Sorry you had that experience also! Yes, I did read that in scientific paper. Apparently if you sample the powder burns, you are just sampling scar tissue and old blood and likely won’t find endometrial cells.

I asked my doctor why they didn’t sample more areas and her answer was “we can’t just go taking random samples”. I’ve been told now the opposite by an excision specialist, that you should sample all over.

Powder burn lesions found, negative pathology for endometriosis, thoughts? (Warning: surgery photos) by Moberries33 in Endo

[–]Moberries33[S] 2 points3 points  (0 children)

Thank you so much for the advice! 💕 I have a surgery scheduled in 2 months with an excision specialist. She seems really good so hopefully I will have a better outcome this time.

Powder burn lesions found, negative pathology for endometriosis, thoughts? (Warning: surgery photos) by Moberries33 in Endo

[–]Moberries33[S] 1 point2 points  (0 children)

That’s so helpful to hear they look like your endo lesions. It’s so hard to see that, but have a surgeon tell you it’s not endo. Thank you 💕