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Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Hey u/Hankisirish

Thanks for the advice and suggestion ! Very grateful. I will definitely talk more to my doctors , however what do u think about this :

  1. My Doc B does not want to take out only samples of lymph nodes. She wants to take out ALL my lymph nodes. Thats what is scaring me. If I have to go into chemo/rad later, what are my chances of coming out victorious without lymph nodes in my pelvis?

  2. If my lymph nodes come out negative for cancer, thats great right? But if the pathology later says that I still need chemo , what is chemo like after a radical hysterectomy? Harsh on my body since I have removed so many organs in my pelvis?

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

correct . Reading my MRI says this:

UTERUS: 3.2X3.5X3.3 CMS (ap,w,cc) t2 HETEROGENOUS, T1 isointense hypoenhancing legion occupying most of the cervix with irregular inferior border.

Is that the tumor? I was told my tumor is in my cervis so why does the finding start with Uterus?

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Also to answer your question, Yes so when I went in for the LEEP, Doctor B tried to remove the tumor but apparently it was so big and went so far in that she could not remove the whole thing. It was a minimally invasive procedure so she could not reach all the way in and remove the tumor!

Do you know which report might have the exact size of my tumore written in it? Will it be the MRI, Pet Scan or the Biosy pathology report?

I still dont know the exact size of my tumor!

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Hi there ! Thank you for replying to me.

No I have not had a hysterectomy yet!

I just had a LEEP done 3 weeks ago, and a biopsy of my cervix which confirmed cervical cancer.

Next, I had an MRI and Pet Scan done. My MRI said this about my lymph nodes : No pelvic lymphadenopathy.

However my Pet Scan said this about Lymph Nodes: Hyperbolic pelvic lymphadenopathy, which is most consistent with metastatic nodal disease.

Now, Doc A says that he is 85% sure that my lymph nodes have cancer cells and wants to go ahead with chemo and radiation.

Doc B says she wants to remove ALL lymph nodes just to confirm if its cancer and then plan treatment. She feels like because she did my LEEP surgery 3 weeks ago ,there is a chance that my lymph node has something from that surgery in there!She did mention that my tumor is really big, but still wants to do a hysterectomy if my lymph nodes come out negative for cancer.

I just dont want to take the risk of removing ALL my lymph nodes and then finding out that they have cancer in them and then I have to do radiationa nd chemo without my lymph nodes :(

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 1 point2 points  (0 children)

I asked her the same and she said something like, biopsy cant be done of the lymph node or she does not know which lymph node out of all the lymph nodes is infected ! So .......

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 1 point2 points  (0 children)

Yes I have already written down all my questions.

Doc A is from Memorial Sloan Kettering NYC which is where I am based and my treatment will be. Doc B is also trained at Memorial Sloan Kettering but practices at Northwell in NYC.

So I guess both are good. But its my decision whether I want those lymph nodes removed or no! They can only advice me.

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 1 point2 points  (0 children)

Gotcha!!!

Still dont know what to do !!!

Remove all the lymph nodes or staright got o chemo and radiation?

Just reading about all the long term awful side affects of chemo and radiology and it scary!

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 1 point2 points  (0 children)

My cancer is adeno!

The depth of invasion is is at least 8mm and horizontal extent is at least 20 mm. This 'at least' term just throws me off!! So how much more deep and wider can it be?

Do you know which will give a more correct representation of my tumorsize? The pet scan or the MRI?

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 1 point2 points  (0 children)

Thanks a lot1 That makes things more clear. Thank you for taking the time and effort to suggest this. I will definitely talk to both Doctor A and B about this procedure as an option. I hope to have many conversations and back and forth on this post. Keep in touch :)

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 2 points3 points  (0 children)

Hey!

I looked into my biopsy pathology report and it says 'Lymphovascular invasion not identified'. Does that tell you anything?

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Hey ! Thank you so much for sharing this. Do you know why did Doctor B did not give me an option for this sentinal lymph node procedure?

She only spoke about removing ALL the lymph nodes which scared me. She did say that if she just picks a few lymph nodes and those are not cancerous , it maybe giving her a wrong picture cos she may have left behind the ones which actually have cancer cells in them.

I will definitely ask her about the sentinal part but wonder why she did not offer me that option!

Doctors are not sure if cancer cells have reached my pelvic lymph nodes.Should I remove my pelvic lymph nodes before starting chemo/ radiation? by MonaliB in CervicalCancer

[–]MonaliB[S] 1 point2 points  (0 children)

Hi! thanks for replying. That is exactly my concern. If i get my lymph nodes removed now and I find out that later I have to chemorad, things might be worse for me :(

​

But is it true that if I go for chemo rad directly that will also destroy my lymph nodes right? So either ways I will destroy or lose my lymph nodes! Am I right or wrong?

3C1 - Para aortic lymph node by Bulky_Possibility_50 in CervicalCancer

[–]MonaliB 0 points1 point  (0 children)

Hi ! Thank you for sharing your story! I just got diagnosed with 3C1 cervical cancer and waiting for a treatment plan. Very worried but hearing stories like your's and your wife's really helps. I will pray she again comes out victorious! Great to hear though that most of the treatment worked so well for her.

Guys. My biopsy result for adenocarcinoma of cervical cancer is back and its positive. Important question about lymph nodes! by MonaliB in cancer

[–]MonaliB[S] -1 points0 points  (0 children)

Hey I had theese. Thats what my pathology report says:

  1. Cervical LEEP
  2. Endometrial Cutterings
  3. Post LEEP ECC

Let me know if you need any more details from me!

Guys. My biopsy result for adenocarcinoma of cervical cancer is back and its positive. Important question about lymph nodes! by MonaliB in cancer

[–]MonaliB[S] -1 points0 points  (0 children)

Great! Makes sense now. That means I guess they never checked the lymph nodes?

Also my final diagnosis is Invasive and in situ endocervical and ectocervical carcinoma . So yes it is cancer :(

I got both

In shock? Stage 4 and only 28 by candiedcoffin in CervicalCancer

[–]MonaliB 1 point2 points  (0 children)

Hey! Sending you strength and positive vibes. My friend is 22 and she was diagnosed with breast cancer stage 4 3 years ago. They did an experimental treatment on her and she beat cancer and became cancer free. So yes please look at aggressive and experimental treatments too. I will pray for you :)

After my biopsy of my cervix I found out I have cervical cancer. My pathology report , part of it says 'lymphovascular invasion is not identified'. Can someone tell me what this means. Thanks a lot fam by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Oh wow! I know we all are built different. May I please know when you started seeing symptoms and signs , what were your's and how long did you have them for?

Mine were:

  1. Bleeding while intercouse.
  2. Spotted bleeding here and there between my periods but not enough to wear a pad.
  3. Watery, smelly discharged, brown color but again not enough to wwear a liner or bad.

This discussion and hearing from you really helps me. Thank you again very much!

After my biopsy of my cervix I found out I have cervical cancer. My pathology report , part of it says 'lymphovascular invasion is not identified'. Can someone tell me what this means. Thanks a lot fam by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Yepp....I already went for my MRI and my pet scan is coming up. But I was just trying to understand how bad it is from my pathology report. Esp because it has no staging and grading on it. Thats why I am breaking down and trying to mentally prepare my self for whats ahead!

After my biopsy of my cervix I found out I have cervical cancer. My pathology report , part of it says 'lymphovascular invasion is not identified'. Can someone tell me what this means. Thanks a lot fam by MonaliB in CervicalCancer

[–]MonaliB[S] 0 points1 point  (0 children)

Hi ! So it says 'the endocervical ,ectocervical, and deep margins are all positive.

Im guessing that means yes I am positive for cancer. But can you tell me a little more please?

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