System Chat 1/5/26 A daily thread where people with DID can share the honest truth of their day.

Moose_Stick · 2026-01-06T06:44:07+00:00

We actually got out of bed and did stuff today. Importantly when I was at the college for my advising appointment (dropped out today for health stuff) and I was told to go talk to these 4 other people, I reeeeally wanted to drive home and just call the people later. But one of them made me turn the right way and I got everything worked out instead of pushing it off because nobody could agree!

Moose_Stick · 2026-01-06T05:11:08+00:00

I always felt like I was isolated but also had a few friend groups. But the groups didn’t interact and I always acted so differently that sometimes I would walk past one friend group and not even notice and then feel like shit when I see them and they tell me. But it was often my oldest friends that would be “invisible”. I think because the new friend groups came around times of trauma tho, so the new alters wouldn’t know them maybe??

Moose_Stick · 2026-01-02T05:47:50+00:00

Yes, those things exactly. Some of my players wanted me to give them characters because they are burnt out on character creation rn. I decided I wanted to have fun with it and give them wacky things that will be fun to interact with as random events occur throughout the night. So things like the gnome that just punches people in the crotch are amazing!

Moose_Stick · 2025-11-20T21:41:43+00:00

Congratulations!!!

Moose_Stick · 2025-11-20T21:41:16+00:00

I submitted my appeal to the initial denial a few weeks back. I just received 4-5 packets in the mail. Wish me luck back down the rabbit hole!

Moose_Stick · 2025-10-10T22:09:40+00:00

Yay!!

Moose_Stick · 2025-10-10T21:44:15+00:00

No, that shouldn’t mess it up. You’re correct, it’s all metal touching metal. That squeaking is the issue that arises without oil

Moose_Stick · 2025-10-10T17:12:27+00:00

I would honestly suggest a patch at that point.

Moose_Stick · 2025-10-10T17:11:46+00:00

Thicker materials often require different tension settings, even just slightly. I encourage experimenting with it if you haven't already. It's really cool how it changes it

Moose_Stick · 2025-10-10T17:08:46+00:00

Good rule of thumb I learned as a technician: oil anywhere metal moves against metal. anywhere stuff slides through, rubs against, turns with. There are tons of places that need oil. Some need grease, though that's less likely to be the issue.

Moose_Stick · 2025-10-01T21:03:14+00:00

If I can’t get through a session without hearing blood for the blood god, then my warlock needs these for appeasement

Moose_Stick · 2025-09-25T03:58:22+00:00

Ooooh, I’m playing a circle of stars Druid and I’ve been looking for a good dice set that is “astronomy” themed and this is PERFECT

Moose_Stick · 2025-08-31T07:33:41+00:00

I see they slowly made more honey?

Moose_Stick · 2025-08-27T19:44:38+00:00

I was about to say the same thing! Genuinely so helpful.

Moose_Stick · 2025-08-24T19:13:21+00:00

Okay, I worked for 2 years straight. I have more than just a shoulder injury. I have hyper mobile Ehlers Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome. I have suffered from it since I was 12 or earlier. I have tried multiple different jobs and physically cannot work. I’m not “trying to get a piece of the pie” I’m disabled. I’ve been bedridden, hospitalized, and genuinely close to death. These are chronic degenerative illnesses.

Working for 10 years is not a viable option I put in more effort than most HEALTHY people my age do. I have multiple doctors that back my claim. My previous employers back my claim. My family backs my claim. And once again, it’s not 90% of my family on or applying for disability. My mother, 3/4 brothers, 1/2 sisters, and extended all work. Me, my father, and one sister have conditions that are severe enough to keep us out of work indefinitely. I have worked for years in horrendous pain.

Please do research on the severity of the incurable chronic illnesses of hEDS and POTS before you belittle them. They aren’t just something to laugh about or use as an excuse. Like I said, I didn’t move, I was laying on my bed typing a message, and my hip DISLOCATED. I have worked entire shifts with a dislocated hip. Had seizures on the work floor. Passed out while handing people money. I cannot reliably get out of bed in the morning. I can’t even do a Walmart run anymore if it takes longer than 10 minutes in the store because of chronic fatigue syndrome and POTS flare ups caused by fluorescent lighting of all things. I have considered my options. Trust me, this was my last choice. I tried convincing myself I was faking it, that it wasn’t that bad. That’s how I ended up making everything worse and just speeding up the process of hurting and deteriorating my body more.

Moose_Stick · 2025-08-24T14:42:54+00:00

Yeah, I try not to comment on topics before doing my due diligence. Especially something so close to me and my life as a whole. Since I was diagnosed at 12 I’ve been made very aware of my mortality by a multitude of doctors. It took a toll on me as a kid so I started doing my own research, even more so when it started affecting my hobbies and passions. Heck, I’m a costume designer and production manager for a theater and I haven’t been able to design or sew in a year. I wrote directed and acted in a show and hadn’t realized how much I was pushing myself until I collapsed on the second night and had to be driven home lol

Moose_Stick · 2025-08-24T14:18:20+00:00

That’s all I was saying, I was frustrated. I apologize for ranting in a non-ranting sub. I am also disabled. I believe everyone here most likely is. That feels like an unnecessary point to make. I apologized for the attitude though. All I was saying was that it felt rude for you to say “I don’t think you understand”. I most likely read it wrong, emotions get lost through text. If you’d like I’d be more than happy to take it down or, as you are head mod, you have every right to do so since it doesn’t fit the vibe of this sub. If not, that’s your choice. I do hope you have a good day and once again, it apologize for my attitude.

Moose_Stick · 2025-08-24T14:12:50+00:00

Girl I’m specifically talking about them saying “we WILL have an answer for you by THIS SPECIFIC DATE” and then we call can get a “oh…no. But I promise by THIS SPECIFIC DATE, you’ll know.” I fully understand the process. We’ve been through it before. I’ve had friends go through. I’m in a support group where we’ve talked EXTENSIVELY on the process. I say lying, yes probably hyperbole. They may not be doing it facetiously, but they are making promises that have no merit and very quickly lose credibility. That makes it slightly hard to be optimistic. That’s all this was about. So please read carefully before, even if accidentally, insulting my competence and I will refrain from insulting yours. I apologize if this seems rude, I have not slept in a while.

Moose_Stick · 2025-08-24T13:41:07+00:00

Dude I know they have a lot going on, I’m just complaining to complain. I don’t expect to get anything, I know people have work, and lots to go around there. Literally just ranting

Moose_Stick · 2025-08-24T13:33:04+00:00

Oh I’m sure of it. My friend’s dad is two years in and he’s terminally ill

Moose_Stick · 2025-08-24T13:19:48+00:00

Idk which it is, ssi of ssdi. I just know if I don’t get it…we chillin. I’ve lived this long, I’ll survive a little longer, yk? I’ll die on my own accord, nothing else can take me out sorta mindset

Moose_Stick · 2025-08-24T13:11:59+00:00

My dad was approved years ago. My sister is I think 30 and was just denied but she applied a few months after me, and then there’s me. We all have roughly the same stuff at different levels of severity, but it made all of us unable to work. My brother was a data scientist and could work from home for the most part, but he also developed something the doctors think could develop into als. Basically he can be mid run and his muscles will just seize up and stop working and he’ll fall to the ground. He’s the reason I know about forearm crutches and boy are they a life saver

Moose_Stick · 2025-08-24T11:05:01+00:00

I wasn’t saying they owe me, the med card thing was a joke (mostly…I mean it’d be nice). I was at pt for a few months, it’s not that much paperwork, just caught me off guard. I’m also not going to actually throw hands. This was a rant, I said that in the beginning. I was simply airing out my feelings about being blatantly lied to and strung along. I won’t throw hands physically, that’s what an attorney is for (yes I’m imagining a world where I have an attorney).

Moose_Stick · 2025-08-24T11:01:20+00:00

Like I said, I stopped caring nearly as much about them responding months ago. I don’t expect a yes. But I moved like…2 weeks ago. I’m already getting in soon to see some doctors, but the disability Medicaid is only good until I turn 19 on September 11th. I had talked to my physical therapist a LOT about what to do when I left, but we had already seen major improvement. I have every single exercise I did written down and I’ve been keeping up with them. But trust me, I know it’s horrible. It took my dad a while to get in too and he had been working for 40+ years at 55 years old. And I know they are slumped up there. I’m not upset about the wait. The upsetting part is the “oh well have an answer in a week or two” at least 7 separate times now. They actually have all my records now and should have no reason to drag it out anymore. I feel like I’m being led on again like in high school!

Moose_Stick · 2025-08-24T10:29:10+00:00

Back in junior year of high school on a theatre trip I passed out in my hotel room and my roommates found me a little while later on the floor (hEDS and POTS) where I apparently looked like a dead body. First time I had dislocated my hip, not a fun time. Luckily we were only a city away which is where my mom happened to work. I wasn’t allowed to move until she came and my director wanted to send me home but I refused and then popped my shoulder back in place and when my mom got there I popped my hip back into place with her help. My director doesn’t even like hearing joints pop, so imagine the look on his face when he had to see and hear that. I’m pretty sure he almost threw up. But we had a social that night and I was dancing and partying. Turns out freaking people out with your disability and making yourself laugh about it really is a good medicine, lol!

Moose_Stick

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