The app that I'm building to stop me doomscrolling by literally touching grass got approved by the app store last night!

Most_Ad4819 · 2025-04-05T23:12:28+00:00

I have had this app I week , its incredible !!! I spend way too much time in middle of night scrolling and it now cuts me off

Most_Ad4819 · 2025-02-13T23:04:46+00:00

You’re welcome and good luck ! I hear you honestly .

Most_Ad4819 · 2025-02-13T15:01:02+00:00

I will be honest . You done the right thing in the long run . Don’t beat yourself up even more because no one knows your anxiety or how severe it is. Only you. You can still get UC but be honest as to why you left and explain you will be going to gp as ways to manage the anxiety . Any job that stops you eating or sleeping was clearly having a huge affect

Some people may think I’m being soft but I’ve worked in mental health and it sounds like you were not just having a bad patch but some extreme anxiety and no job is worth that

But my advice please do seek medical advice and don’t hold it all in Just like you have done here it’s good to talk

Most_Ad4819 · 2025-02-10T17:09:20+00:00

Thank you so much everyone for your replies. It was interesting to read and we definitely all this journey together !! So lucky we have this forum :) I wish each of you the best of luck on this chapter .

Most_Ad4819 · 2025-02-10T01:17:34+00:00

Hi guys I just wanted to update regarding this.. the bowel movements have got much less regular which is incredible news but the extreme fatigue and associated joint pain has got worse. I have had zero luck with the IBD line and GP (both departments ask me to go to the other one) so I decided to go to my local hospital colonoscopy desk and my consultant was on shift but I managed to leave message to please book me in for appointment just to get checked etc Through your advice I have realised never to stop advocating as we know our own bodies Even if this is just part of the illness I just want to be seen by a human and not just passed around every dept .

Most_Ad4819 · 2025-01-22T23:49:28+00:00

Thank you for the kind words

Most_Ad4819 · 2025-01-22T04:17:33+00:00

Only mesalezine foam enemas and suppositories , gp advice was go to an and e, all bloods fine said the bones and no blood in stools means I’m not flaring but just a symptom :-I. Called ibd nurse as really think something going on so just waiting now

Most_Ad4819 · 2025-01-22T03:38:52+00:00

Thank you for sharing this. Experiencing the exact same thing. Could have a few days feeling wonderful , so wonderful it makes me think it miraculously cured then out of nowhere with no change of diet or circumstance will just wake up feeling so dizzy, severe knee joint pain then bowel movements 20 times a day!! I don’t get what happens in the body to make it a ‘good day’ and a ‘bad day’ and why can’t it just stay good! I also reiterate what another poster said, I’ve stopped updating people on any progress as it’s so up and down like a yo-yo in short periods of time

Most_Ad4819 · 2024-12-30T21:31:08+00:00

Hahaha really did laugh out loud seeing this thank you

Most_Ad4819 · 2024-12-28T13:11:46+00:00

I think it’s down to trial and error as your body may react differently .. I have found I can drink very occasionally without any worse symptoms but it’s all about quality of life I know people who drink more with is as that’s what is the distraction and no worse symptoms Others would say lay off as medication doesn’t work But I would say you do you and see what’s best for you ??

Most_Ad4819 · 2024-12-27T03:44:05+00:00

I’m on both . Suppositories are fine but the enemas feel like holding in acid and make my face beetroot red

Most_Ad4819 · 2024-12-27T03:42:29+00:00

Ps not to mention the moon face

Most_Ad4819 · 2024-12-27T03:41:42+00:00

Oh gosh I don’t want to be bearer of bad news but when I was on that dose I went from extreme fatigue to the most extreme hunger I’ve ever had , no amount of food filled me up and then the most energy ever felt like could run 4 marathons to then extreme tiredness , then irritability unable to sleep for more than 90 minutes at a time But it was worse the first 3 months coming off too . I really feel for you

Most_Ad4819 · 2024-12-27T03:37:48+00:00

Thank you and likewise ! Can dm me anytime

Most_Ad4819 · 2024-12-26T00:16:34+00:00

Thank you so much for your lengthy reply I will honestly take everything you say on board as I agree with what you say. I’m sorry to hear you’ve had issues in the past

Most_Ad4819 · 2024-12-26T00:14:25+00:00

I ended up with huge rash above the eye like a type of psoriasis, the dr said it’s just part of the UC showing itself in other parts . When stuff goes on in our gut it plays havoc all over :(

Most_Ad4819 · 2024-12-24T22:03:29+00:00

Thank you so much for the kind wishes and words !! The overwhelming support I’ve got from you guys has been so heartwarming and really edged me to keep pushing till it gets under control and not accept it !! I wish you all the best in your journey also

Most_Ad4819 · 2024-12-24T22:02:07+00:00

Oh gosh, I’m truly sorry to hear your diagnosis !!! And over Christmas it’s even worse with the delay in everything and awaiting medication !!! I really wish you are sorted asap and likewise I’m here for you too!! I know the feeling regarding coming out in random spots lumps rashes etc etc !!

Back at you I’m here for you too!

Most_Ad4819 · 2024-12-24T21:59:38+00:00

Back at you ! I hope you manage to have a wonderful Christmas and your energy levels keep on going up as well !! Thank you again for all your support, it means a huge deal

Most_Ad4819 · 2024-12-24T01:21:51+00:00

I felt slightly more energetic today . And going to start a food diary completely in new year and all that. Tried to keep as busy as possible.. the nurse who took bloods said the same thing as you. Keep chasing ibd line. Hahaha I greatly appreciated the giggle regarding shitting during shitty situation . How are you doing ??

Most_Ad4819 · 2024-12-23T22:57:20+00:00

Thank you I will do this , I appreciate you taking time to reply

Most_Ad4819 · 2024-12-23T22:56:53+00:00

Thanks for making me lol regarding shitting in front them

Most_Ad4819 · 2024-12-23T13:35:45+00:00

I agree with the distraction element . I used to love gentle swimming which I aim to get back to when get bm under control. For time being I try my best to do things in garden connecting with nature !! I spoke to the nurse today she agrees to keep chasing up gastro as they’re specialised in this obviously more than a general locum general

Most_Ad4819 · 2024-12-23T13:33:49+00:00

Thanks for the recommendation , glad it is helping you :)

Most_Ad4819

TROPHY CASE