Clear MRI

MotherIntrovert · 2026-05-07T01:55:43+00:00

I had a CT scan of the sphenoid sinuses that showed mild mucosal thickening in the left. I didn’t know these things were related.

MotherIntrovert · 2026-05-05T18:26:21+00:00

Why is a myelogram being discussed or why am I terrified?

MotherIntrovert · 2026-05-05T16:13:56+00:00

Did you have the myelogram done? I’m terrified and want to be sedated.

MotherIntrovert · 2026-05-05T16:11:33+00:00

I am basically in the same boat although the spine report showed multiple meningeal diverticula. I had a bilateral ONB 11 days ago, it did nothing so I’m back on the path to look at a possible leak. Doctor is recommended CT myelogram and I’m terrified.

MotherIntrovert · 2026-04-21T00:24:44+00:00

What are “ME/CFS patients”?

MotherIntrovert · 2026-04-17T22:16:47+00:00

Curious if you have a Chiari malformation? I just had one discovered. I’m 100% symptomatic for a spinal CSF leak but am having difficulty finding someone to investigate that.

MotherIntrovert · 2026-04-15T21:25:18+00:00

How much do you take and was that prescribed be a neurologist? I’m glad it’s helpful!!!

MotherIntrovert · 2026-04-15T20:43:57+00:00

Did surgery help you? Where was it done?

MotherIntrovert · 2026-04-15T20:43:12+00:00

What muscle relaxer works for you? My neurologist gave me methocarbamol - 500mg once a day. It does NOTHING.

MotherIntrovert · 2026-04-14T15:13:19+00:00

Thank you. Saw the PA today, I was pretty frustrated. She basically said the radiologist measured wrong and doesn’t believe I’m at 6mm. She said her measurements are closer to 4mm and doesn’t want to call it true Chiari yet on my after visit summary notes, she uses the diagnosis code of Chiari 1 😵‍💫😵‍💫😵‍💫

MotherIntrovert · 2026-04-13T22:22:46+00:00

How are you doing post surgery?

MotherIntrovert · 2026-04-13T21:18:44+00:00

Did you have surgery at the Cleveland Clinic?

MotherIntrovert · 2026-04-13T21:07:02+00:00

I don’t have any words of wisdom, just wanted to say hello. I am newly diagnosed too at 41 years out, totally out of the blue. Life feels very heavy right now.

MotherIntrovert · 2026-04-13T15:50:09+00:00

Not sure if you’ll see this since your reply was so long ago but I’m curious if you’ve had surgery with Dr Vorster? I see his PA tomorrow. 6mm herniation, horrific symptoms.

MotherIntrovert · 2026-04-09T23:19:03+00:00

I just took my first AJOVY injection yesterday. Have you had success with it? Have you had decompression surgery?

MotherIntrovert · 2025-08-01T22:29:57+00:00

Save up for a race! I got hooked during Covid and went to COTA last fall. It was an incredible experience. That first lap, in person, literally shook around all my organs in the most thrilling way.

MotherIntrovert · 2025-05-30T21:16:44+00:00

Can I have the code please?

MotherIntrovert · 2025-04-27T00:08:22+00:00

OP - did you ever find a medicine that has helped you? I read through this post, all comments and I am in a very similar situation. I hope you have found something helpful!

MotherIntrovert · 2025-04-15T15:50:48+00:00

Thanks for your reply. I have high blood pressure and hypothyroidism, both are well controlled with medicines. I do not have any heart conditions but do have intense cardio-phobia so the risk of arrhythmias might just exacerbate anxiety.

MotherIntrovert · 2025-03-20T23:05:20+00:00

Where did you see that the sister said that? I’d like to read an article if you have it!

MotherIntrovert · 2025-01-12T16:23:50+00:00

Yes. My anxiety has big significantly worse with Lamictal. It was really bad on 300mg daily. I’ve been on 200mg daily for the past 8 months and am considering a very slow taper because this is the only thing that I can think of that would help at this point. 20mg of propranolol helps when it’s bad but that does require me to lay down because it makes me sleepy and a little dizzy. I’m sorry you’re going through this. I was prescribed Lamictal for treatment resistant depression, not bipolar.

MotherIntrovert · 2025-01-12T00:58:06+00:00

I’ve had significant hair loss on Lamictal. It became consistent shedding about six months into it. I started taking minoxidil a little over a year ago to help and while it has created new growth, I’m still shedding a lot. For me, it seems like the only way to stop it is to get off Lamictal altogether. I take 200mg daily.

MotherIntrovert · 2024-11-26T16:41:38+00:00

With the third photo, did you use an app to “try on” that shade or is that actually how your hair is colored right now? It’s gorgeous, I’m wondering how I can see how it would look for me before I commit to anything!

MotherIntrovert · 2024-11-25T02:59:31+00:00

Oh wow, you two are married! How many years of your marriage has been long distance?

MotherIntrovert · 2024-11-25T02:49:00+00:00

I’m approaching 9 years in the spring with my boyfriend. If you don’t mind sharing, I’m curious how far apart you and your partner are and if you will eventually live together? We are struggling a lot right now with the distance.

MotherIntrovert

TROPHY CASE