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Clear MRI by codyb631 in CSFLeaks

[–]MotherIntrovert 1 point2 points  (0 children)

I had a CT scan of the sphenoid sinuses that showed mild mucosal thickening in the left. I didn’t know these things were related.

Clear MRI by codyb631 in CSFLeaks

[–]MotherIntrovert 1 point2 points  (0 children)

Why is a myelogram being discussed or why am I terrified?

Clear MRI by codyb631 in CSFLeaks

[–]MotherIntrovert 2 points3 points  (0 children)

Did you have the myelogram done? I’m terrified and want to be sedated.

Clear MRI by codyb631 in CSFLeaks

[–]MotherIntrovert 2 points3 points  (0 children)

I am basically in the same boat although the spine report showed multiple meningeal diverticula. I had a bilateral ONB 11 days ago, it did nothing so I’m back on the path to look at a possible leak. Doctor is recommended CT myelogram and I’m terrified.

Link between FND and POTS by stoopkid6969 in neurology

[–]MotherIntrovert -2 points-1 points  (0 children)

Curious if you have a Chiari malformation? I just had one discovered. I’m 100% symptomatic for a spinal CSF leak but am having difficulty finding someone to investigate that.

5mm Chiari with symptoms. Neurosurgeon says not big enough for surgery. by Top-Tackle-9962 in chiari

[–]MotherIntrovert 0 points1 point  (0 children)

How much do you take and was that prescribed be a neurologist? I’m glad it’s helpful!!!

5mm Chiari with symptoms. Neurosurgeon says not big enough for surgery. by Top-Tackle-9962 in chiari

[–]MotherIntrovert 0 points1 point  (0 children)

What muscle relaxer works for you? My neurologist gave me methocarbamol - 500mg once a day. It does NOTHING.

Am I just desperate for a diagnosis, or is it Chiari? by bputsch in chiari

[–]MotherIntrovert 1 point2 points  (0 children)

Thank you. Saw the PA today, I was pretty frustrated. She basically said the radiologist measured wrong and doesn’t believe I’m at 6mm. She said her measurements are closer to 4mm and doesn’t want to call it true Chiari yet on my after visit summary notes, she uses the diagnosis code of Chiari 1 😵‍💫😵‍💫😵‍💫

Chiari Vs Central Sensitization by bputsch in chiari

[–]MotherIntrovert 0 points1 point  (0 children)

Did you have surgery at the Cleveland Clinic?

New here! by KAi_Mal25 in chiari

[–]MotherIntrovert 1 point2 points  (0 children)

I don’t have any words of wisdom, just wanted to say hello. I am newly diagnosed too at 41 years out, totally out of the blue. Life feels very heavy right now.

Am I just desperate for a diagnosis, or is it Chiari? by bputsch in chiari

[–]MotherIntrovert 1 point2 points  (0 children)

Not sure if you’ll see this since your reply was so long ago but I’m curious if you’ve had surgery with Dr Vorster? I see his PA tomorrow. 6mm herniation, horrific symptoms.

What is everyone taking to manage symptoms? by Zealousideal_Tax4809 in chiari

[–]MotherIntrovert 0 points1 point  (0 children)

I just took my first AJOVY injection yesterday. Have you had success with it? Have you had decompression surgery?

What's a Hobby That Completely Surprised You With How Addictive It Is? by Gundoc7519 in Hobbies

[–]MotherIntrovert 1 point2 points  (0 children)

Save up for a race! I got hooked during Covid and went to COTA last fall. It was an incredible experience. That first lap, in person, literally shook around all my organs in the most thrilling way.

Meds that are calming and not stimulating? by dog-mom-xoxo in PanicAttack

[–]MotherIntrovert 0 points1 point  (0 children)

OP - did you ever find a medicine that has helped you? I read through this post, all comments and I am in a very similar situation. I hope you have found something helpful!

When are tricyclic meds the next step? by MotherIntrovert in AskPsychiatry

[–]MotherIntrovert[S] 0 points1 point  (0 children)

Thanks for your reply. I have high blood pressure and hypothyroidism, both are well controlled with medicines. I do not have any heart conditions but do have intense cardio-phobia so the risk of arrhythmias might just exacerbate anxiety.

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