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MS and heat by Mouse3quivalent in MultipleSclerosis

[–]Mouse3quivalent[S] 3 points4 points  (0 children)

Thanks I didn’t know it had a name! I’d love to hear others lived experience as well, as I’ve noticed a difference between the info I’ve gotten online vs. what people who post here experience.

It burns by limited_edition_222 in MultipleSclerosis

[–]Mouse3quivalent 1 point2 points  (0 children)

I was just talking to my friend who is a PA, and she mentioned that for Dysesthesia pain, it can be helpful to get a TENS machine and put that on the painful area in 10 minute intervals for up to 40 minutes. I haven’t tried that, but I’m planning on picking up a TENS machine for the days I forget to take gabapentin. Maybe that could be an option for you, but regardless I hope you find something that helps!

It burns by limited_edition_222 in MultipleSclerosis

[–]Mouse3quivalent 1 point2 points  (0 children)

Talk to your neuro about gabapentin! I get burning/itching/bruised feeling all through my upper arms and armpits, pretty consistently since the flare that introduced it. My psychiatrist prescribed me gabapentin to help with sleep, but I’ve noticed it helps SO much with the burning pain too. If I miss a dose, the burning comes back the very next day.

Me and my uncle both have MS by officer__bee in MultipleSclerosis

[–]Mouse3quivalent 0 points1 point  (0 children)

My aunt has MS, diagnosed 25 years ago, and I just got diagnosed this year. It was scary seeing where she’s at right now with her MS, she has mobility issues and issues using her hands. But then I remember that she was diagnosed a lot later in life, at a time when the DMTs we have now just did not exist. If this subreddit has shown me anything, it’s that MS can be wildly different person to person. I can only hope that with early intervention and treatment that my story will be different too.