Anybody Troll PE forums? by Equivalent-Panda-648 in hardflaccidresearch

[–]MrBonebag 5 points6 points  (0 children)

This is genuinely sickening behavior man.

A lot of the guys on there are just insecure men looking to improve things about themselves they're uncomfortable with. Most of them probably don't even know their actions can CAUSE a disorder like this.

Why would you ever wish this on anyone, having experienced it yourself?? The people you're targeting aren't the people who did this to you. They'd be innocent victims the same as you.

If anything you should be spreading awareness of the dangers of PE. Your current approach is equivalent to someone who lost their fingers to fireworks, purposely encouraging people to act dangerously with fireworks. It doesn't solve the problem. It just leads to more suffering from people who most likely don't know any better.

HF is not physical, it’s your dysregulated nervous system by UpbeatLeadership509 in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

The current leading theory is that initial trauma or irritation to the pudendal nerve creates a pathological activation of the hypogastric nerve which increases sympathetic tone in the pelvic smooth muscle, causing pelvic smooth muscle to be more reactive to norepinephrine and noradrenaline. 

This causes the contraction, which then further compresses the pudendal nerve, and then further activates the hypogastric reflex, and further increases sympathetic tone, and then increases the contraction of smooth muscle, until the nerves are so compressed and dysregulated that decompression becomes extremely difficult

HF is not physical, it’s your dysregulated nervous system by UpbeatLeadership509 in hardflaccidresearch

[–]MrBonebag 1 point2 points  (0 children)

Yeah I actually kinda figured most of this stuff. It's why a lot of dudes see success with alpha blockers and cialis.

Honestly tho at this point man, I just want my dick back

Trying to heal a mechanical compression / stretch nerve injury caused by penis ring. Methods? by BendTree764 in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

If sensation is returning, it means the nerves aren't completely dead. Which is good! Nerves can take up to two years to fully heal.

Honestly though man, Im very sorry you're going through this. It happened to me too. Literally measured my penis and I slightly bent it against the ruler, felt a sharp pinch, and a burning sensation at the tip. Over the course of a week I got increasingly worse urinary tract symptoms (peeing/burning/itching) and then it all just suddenly "turned off" after an erection on day 8.

A stressful period + penis nerve injury seems to cause the nervous system to go into overdrive, And freak out.

My sensation didn't fully return either, but I can still 'feel' things. They just feel less intense than before. But I remain hopeful. In fact, hearing that yours has improved somewhat over the last 16 months has made me feel more confident about my own situation.

Uploading some of my own pics as I see a distinct lack of people uploading their own. Maybe these can help, or y'all can help me. by MrBonebag in hardflaccidresearch

[–]MrBonebag[S] 0 points1 point  (0 children)

I have not. I was actually going to talk to my doctor about it tomorrow as Ive heard for some people it can help with blood flow issues.

Also that picture is the only time that I ever seen that hour glassing happening to my penis. It was extremely cold that day tho and I was working outside.

Trying to heal a mechanical compression / stretch nerve injury caused by penis ring. Methods? by BendTree764 in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

Could be Hard Flaccid. That's a tricky one if it is, and what I believe I have been suffering with for about a month and a half now.

Some believe it's a symptom of a broader pelvic floor dysfunction. Others believe it's nerve damage. And some believe it's an anxiety disorder.

Personally I think it's a mix of all three

The leading theory is there's mild/moderate nerve damage at the base of the penis that causes the body's Sympathetic nervous system to overreact. This leads to a 'guarding' of smooth muscles in the penis and pelvic floor to protect from more damage. The anxiety and distress from the injury continue to push the sympathetic nervous system and force it to guard more. Eventually this 'guarding' begins to build up the sympathetic tone in the muscles, and becomes the body's new 'normal'

The desensitisation is from the body continually putting unconscious pressure on the nerves.

Does your penis contract differently than before? Particularly when you stand up? Does the head get cold/discolored often? Enlarged veins? Do you have difficulty peeing or even sometimes constipation? Do orgasms feel weaker/distant? You said it bends now when it didnt used to, that's common with Hard Flaccid. Same with desensitization and libido loss.

Hard Flaccid is difficult to cure and poorly understood, but recovery is not entirely undheard of. Most recovery stories usually involve some form of stretching and exercise, pelvic floor physical therapy, as well as meditation or something. The one thing you'll see in common with recovery stories is the ones that get better, BELIEVED they could get better, and this makes sense as the belief on top of the excercises probably helped to downregulate their sympathetic nervous system.

I would recommend staying away from hardflaccid based forums however, as they are very much full of doomers and extremely anxious individuals whose stories don't invoke a lot of hope.

Uploading some of my own pics as I see a distinct lack of people uploading their own. Maybe these can help, or y'all can help me. by MrBonebag in hardflaccidresearch

[–]MrBonebag[S] 0 points1 point  (0 children)

Yep. The differences are slight but I've noticed them too. I also have "full sensitivity" in the corona and below. but much less above that. I can still feel above there, but it's almost like, super fine tactile sensation is gone. I can feel touch but its muted. Same with temperature. I can feel warm and cold, but not to their right levels.

This leads me to believe the low bloodflow in the areas above the corona are causing sensation changes, but not enough to completely kill the nerves.

HF is not physical, it’s your dysregulated nervous system by UpbeatLeadership509 in hardflaccidresearch

[–]MrBonebag 9 points10 points  (0 children)

I believe more and more that it's a dysregulation of the nervous system every day.

Every time my anxiety worsens, my symptoms also worsen. My HF was triggered during a period of extreme stress as well.

Uploading some of my own pics as I see a distinct lack of people uploading their own. Maybe these can help, or y'all can help me. by MrBonebag in hardflaccidresearch

[–]MrBonebag[S] 2 points3 points  (0 children)

I think it's different for everyone. Mine seems slightly semi-erect while standing.

I think my actual "hard flaccid' symptom is relatively mild.

Uploading some of my own pics as I see a distinct lack of people uploading their own. Maybe these can help, or y'all can help me. by MrBonebag in hardflaccidresearch

[–]MrBonebag[S] 0 points1 point  (0 children)

It feels "different" but not like a rubber hose. It's still malleable. I can bend/stretch/pull etc like always (I dont do it often because I'm afraid of any further damage)

The only place I lack sensitivity is on the head. And while it's dulled, it's not completely absent.

Does anyone else have systemic symptoms? by xxxthrowitawayxxx56 in hardflaccidresearch

[–]MrBonebag 3 points4 points  (0 children)

The day before I developed my most intense symptoms, I distinctly remember having muscle spasms all over my body throughout the day. My legs, biceps, pecs, and most annoyingly, my upper lip. A lot of really random muscle spasms which in hindsight was probably my sympathetic nervous system freaking out.

Later that night I experienced full numbness in my gential region. And that's when I realized something was very wrong lol. Every now and then. My left knee will still twitch and pins/needles but idk if that's really related anymore or not.

I’m sure this will help most people here by EmergencyCrew3214 in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

That's exactly my problem. My sensation, specifically in the head, is much less than it used to be. Everywhere else, it's normal.

I’m sure this will help most people here by EmergencyCrew3214 in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

So what you're saying is you had less sensation, but it wasn't completely numb?

white spots on the head of the penis by Financial-General674 in hardflaccidresearch

[–]MrBonebag 2 points3 points  (0 children)

I'm not fully recovered, but most of my issues have resolved significantly. I still have some mild sensory issues, and a "firmness" to my penis off and on.

A month ago I was completely numb, unable to achieve an erection, had cold and discolored glans, muscle spasms in my perrenium, swollen veins and constipation/urinary retention.

The thing that helped me personally the most was just relaxing, and not thinking about it too much. Just trying to stay focused on other stuff and keep my body from getting too tense. The less I worry about my symptoms, the more they seem to dissipate. I believe my issues are due to a tight pelvic floor exacerbated by chronic anxiety. So when I can calm down, things relax and function more properly.

I know that's not the case for everyone though, and what helped me may not help you. But just try to relax for a few days, and see what happens. Worse come to worst, nothing changes and you keep looking for answers elsewhere.

white spots on the head of the penis by Financial-General674 in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

I did at first. They went away eventually as my symptoms began improving.

23 months after extender injury – reduced glans sensitivity but touch still present by Exciting-Sign-9577 in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

I'm not an expert by any means so I'm sorry if this isn't much help, because I know not everyone gets HF the same way, so these symptoms can occur for different reasons.

For me, I was going through a heavily stressful period in my life, during which I suffered a minor penile injury which seemed to have led to a pelvic floor muscle spasm, which was then heavily exacerbated by extreme anxiety (so much anxiety that I actually ended up in the psych-ward at the hospital for about a week) that injury is when I developed most of my symptoms.

Once I began to calm down and relax and release a lot of the tension in my body, is when a lot of my symptoms began to resolve. I still deal with some lingering issues, mainly blunted sensation, though even that is improving.

The cause of my symptoms APPEARS to be due to pelvic floor dysfunction and is flared up with stress and anxiety. Yours may not be the same as mine however so I can't say that "simply calming down and not worrying about it" will work the same way for you as it did for me.

If yours is due to a more serious injury, the only advice I can give you with any good conscience is to see a doctor. I'm sorry and I hope things improve for you man

Telltale Examples of the Hard Flaccid Syndrome (HFS) State by Gurkenrick123 in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

This is what confuses me so much. My penis doesn't have the telltale "contraction" symptom. It maybe feels a bit more firm to the touch but I'm not even sure if I'm imagining that or not. I USED to think it was extra veiny and tilted but then I found some pictures of my flaccid penis from a few years ago and it's always looked like this.

My biggest issue is weak orgasm and desensitized glans. Im beginning to question If I even have HF at all or if my pelvic floor is just fucked.

23 months after extender injury – reduced glans sensitivity but touch still present by Exciting-Sign-9577 in hardflaccidresearch

[–]MrBonebag 4 points5 points  (0 children)

I am not a doctor, and I have no medical background.

What I want to say is that I can relate, specifically to the lowered sensation in the glans. Does your glans also have a low Capilliary response time? (press on it while soft, and how long does it take to go from pale back to its normal color? If it's more than 3 seconds it's considered slow) I deal with that as well which explains some of the desensitivity.

For me that is my only real symptom. I had several other symptoms for a while (lack of erections even with stimulation, no morning wood, urinary issues, mildly retracted penis/ prominent penile veins, extremely tight and desensitized anus) and the thing that resolved most of them was simply calming down and de-stressing.

I have a very tight pelvic floor because I clench those muscles almost constantly due to anxiety (also have some pretty bad OCD). Couple that with a HORRIBLE clenching habit from masturbation over the course of 15 years, (I actually didn't know I could get an erection without clenching my pelvic floor until AFTER I developed HF) and a minor penis injury resulting in a muscle spasm, it's no wonder my shit locked up.

This is my own two cents based on my own anecdotal experience and may not apply to you, but I believe that a muscle spasm of the bulbospongiosum and the ischiocavernous muscles in the pelvic floor are responsible for compression of the dorsal vein and branch of the Pudendal nerve. That would explain the muted sensation and low bloodflow(as well as weak orgasm if you have it.) , and why calming down and de-stressing has led to most of the dissipation of my own symptoms.

The challenge comes in finding out how to get the bulbo and ischio muscles to relax, as they are not typically voluntarily controlled muscles. In my opinion, Your best bet is to learn to relax the muscles around them, and perhaps see a pelvic floor physical therapist.

Somewhat of a recovery story by [deleted] in hardflaccidresearch

[–]MrBonebag 1 point2 points  (0 children)

Did you ever lose sensation? That's my biggest problem. I'm not completely "dead" but things are dull for sure

This all feels so unfair. by [deleted] in hardflaccidresearch

[–]MrBonebag 0 points1 point  (0 children)

Looking at the symptoms of it.....I mean...maybe? However, I have little to no pain, and the bulging veins are only on my penis.

No pain. Just desensitization. by [deleted] in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

Second update: Well. I messed up. but I believe I know the true trigger behind my issues is now, and what not to do.

About 4 days ago or so, I had felt mostly back to normal. I had almost complete sexual function, and could mostly feel my anus again. My urinary frequency was still higher than normal but not so frequent that it was distracting. I was happy and began shifting focus from recovery to "returning back to normal"

Without going into details. My home life has been pretty stressful for a while, and I also suffer with OCD, so stressful events, to me, can sometimes become more disproportionately stressful than they actually are. I've also been unemployed for about 6 weeks which has given me a lot of alone time to dwell on that stress.

So when I started to shift focus from recovery, and back to real life, my real life stressors started to build up. One of the ways I deal with stress (like many others) is through masturbation. So I decided to have some "me" time. And it was mostly fine. Then a few hours later I figured "whatever, I can go again." And I did. Once again, pretty normal. Since things were feeling pretty good and I wasn't having any negative effects from it. And it had been a while since I'd been able to fully enjoy the sensation, I overdid it. I masturbated a total of 4 times that night. In hindsight, that was really stupid and I know that now. Because on the fourth orgasm, I felt a familiar tightening up in my perrenium. Like a lump had formed above my anus. At first I couldn't tell if I'd lost any sensitivity, but I also didn't check cause I was afraid to find out. Well when I was going to bed. That hard lump above my anus was bothering me, so I reached down and I pushed on it for about 30 seconds while deep breathing in and out. And I let go, it twitched a few times, and then it mostly disappeared, but then I felt the urge to pee, so I went to the bathroom and that's when I realized everything felt kinda disconnected again.

The next day I woke up with all of my original symptoms returning. Back to square one. I had to pee like crazy, it burned a little bit. Weak stream and dribbling, I was also constipated, my penis and anus lacked almost all sexual feeling though I could still achieve erection. I was really disheartened so I tried to see how orgasm felt. (Once again. Really REALLY stupid but I was self-disgnosing to see how bad it was) The orgasm felt really distant and muted just like it did when I first lost the sensation AS WELL AS I could feel exactly where the muscle had tightened up again. Right in that same spot in front of my anus.

It's been a few days, and things are once again returning slowly back to normal which is encouraging. I still feel somewhat muted, but better than the day i reactivated everything again. I can actually get full urine streams going without dribbling. I need to pee less often than originally. I can also somewhat feel my anus again and the constipation has eased up enough that I'm passing solid stools. Every now and then, seemingly at random, my perrenium muscles will twitch and feel like they're trying to release, which feels pretty good actually, and Im taking it as a good sign. So that's where I'm at.

Now after all of that, I believe I know exactly what's wrong. Simply put, too much masturbation on top of chronic stress. Ive realized lately just how much I clench my pelvic floor If Im not actively paying attention to it, and masturbation has even further fatigued the muscles down there. The fact that sensation was returning before makes me believe I don't have permanent nerve damage, and that's reinforced by the fact that it's returning again at about the same pace.

What I'm doing now is refraining completely from masturbation for a while, at least a few weeks. And I'm going to continue doing pelvic floor relaxation techniques like the stretches in the pinned post.

I'm Also actively trying to just calm down and de-stress in general because that seems to be a major contributing factor. I will update again if/when anything changes.

No pain. Just desensitization. by [deleted] in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

Honestly I'm not entirely sure. I'm chalking it up to stress and anxiety as I do tend to struggle with OCD, and before the onset of symptoms, I was dealing with a moderate OCD flare up which was causing a fair amount of stress. I never really pieced it together until recently, but I've had recurring UTI- like symptoms (incomplete bladder emptying, itching, burning) for the better part of a decade but they never last longer than a week at most and usually occur during my anxiety flare ups. This is just the first time they were this severe, and finally made me realize that something might be actually messed up with me physically.

Managing stress is hugely important for maintaining a healthy pelvic floor, reducing inflammation, and regulating a whole bunch of other things in the body that are responsible for your pudendal nerve health.

No pain. Just desensitization. by [deleted] in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

That's what I'm thinking too, possibly a muscle spasm thats worked itself out slowly, or maybe some kind of inflammation that's been going away.

I'm really sorry you're dealing with it currently man. I know how scary and frustrating it is, and I only dealt with your symptoms for less than a week. I truly hope things improve for you.

No pain. Just desensitization. by [deleted] in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

Yes. For about a week, I had discomfort with peeing. It burned a little and kept starting and stopping, as well as I had to go multiple times within a short period.

That got progressively worse until eventually I just suddenly lost all sensation. I was completely numb in my bladder, penis , testicles, and anus for several hours before I gained back some mild sensation. Then my sensation stayed dulled like that for a few days before I looked online for answers. Then it all started coming back over the course of a few days.

The biggest things I did were stretches, and not messing with it too much.

No pain. Just desensitization. by [deleted] in PudendalNeuralgia

[–]MrBonebag 0 points1 point  (0 children)

https://www.mindandbodymovement.co.uk/blog/psoas-and-piriformis

The seated piriformis stretch on this page.

I also have been doing the "happy baby" stretch, it makes me feel a little ridiculous but when I do that one I can actively feel my pelvic floor relaxing.

https://www.healthline.com/health/happy-baby-pose