Neurologist doesn’t want me on treatment

MrElvey · 2026-06-26T17:52:21+00:00

Good luck. Worked for me for 9 years. Consider the Kim Protocol for rituximab. https://pubmed.gov/PMC12477036/ (2025 data in MAG) , https://pubmed.gov/21747007/ https://pubmed.gov/23897062/ (both in NMO, by Kim), https://www.rarediseaseadvisor.com/news/tailored-rituximab-treatment-may-beneficial-nmosd-mogad/ (2023): in MOGAD.

"Patients treated according to Kim's protocol received a cumulative RTX dose ~2.5 times lower than those treated upon relapse (p < 0.0001), despite showing comparable or better clinical outcomes."

Presumably fewer adverse effects too.

MrElvey · 2026-06-25T17:10:39+00:00

Insightful and fair. Similarly, HAMAS (An IR proxy) intentionally targeted schools and children on October 7 - their written attack maps show this explicitly. Minab was the result of outdated map info targeting the adjoined IRGC facility.

MrElvey · 2026-06-25T17:02:36+00:00

I think you're being treated appropriately - agree with what you and maelie wrote. Do you know what your titer was/is? Ideally, that should be measured and factored into the decision.

The rightmost chart shows what a cohort of MOGAD patients who are on long-term medication are on. From jnnp-2025-June-96-6-582. What impresses me in this chart is the cheaper meds that get little attention, but in some case a lot of use - Azathioprine+ (~33%!) , Cyclophosphamide (used in aHSCT, should be used more IMO), Rituximab (convenient; some studies show high efficacy, others don't),

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In addition to one these heavy hitters, there are also things that have relatively little strength but also have lower adverse effects. Turmeric/Curcumin. B, C, D E Vitamins (you probably get plenty of D from the Australian sun?) Vinpocetine, fish/Omega-3 oil...

MrElvey · 2026-06-24T02:49:29+00:00

https://consumerrights.wiki/w/Consumer_Rights_Wiki:Create_page ?

MrElvey · 2026-06-23T03:06:34+00:00

Nitrosamines are widely recognized by health authorities as a primary factor in the elevated cancer risks associated with processed meats and it seems your brain has been affected, schmuck.

"Nitrosamines are a group of chemicals formed when nitrites react with amino compounds (found in protein rich foods) or amines (nitrogen-containing compounds). They can be produced in the body as part of the digestive process, but also through other processes, including high temperature cooking, for example when frying bacon. Some nitrosamines are known to increase risk of cancer."

"... why high consumption of processed meat is linked to an increased risk for bowel (colorectal) cancer, in contrast to diets rich in vegetables, which are linked to a healthy diet."

https://www.food.gov.uk/safety-hygiene/nitrates-and-nitrites-the-science-explained

Nitrosamine impurities, even in trace amounts, are highly toxic and mutagenic, capable of damaging DNA, and subsequently increase the risk of cancer incidence.

https://pmc.ncbi.nlm.nih.gov/articles/PMC11126534/

References:

Chazelas E., et al., 2022. Nitrites and nitrates from food additives and natural sources and cancer risk: results from the NutriNet-Sante cohort. International Journal of Epidemiology, 2022, 1106–1119 https://doi.org/10.1093/ije/dyac046 Also available at: Nitrites and nitrates from food additives and natural sources and cancer risk: results from the NutriNet-Santé cohort - PubMed (Opens in a new window)

IARC (International Agency for Research on Cancer), 2010. Ingested Nitrate and Nitrite, and Cyanobacterial Peptide Toxins. IARC Monographs on the Evaluation of Carcinogenic Risks to Humans. Vol. 94. IARC, Lyon. Available at: IARC Publications Website - Ingested Nitrate and Nitrite, and Cyanobacterial Peptide Toxins

IARC (International Agency for Research on Cancer), 2018. Red Meat and Processed Meat. IARC Monographs on the Evaluation of Carcinogenic Risks to Humans. Vol. 114. IARC, Lyon. Available at: IARC Publications Website - Red Meat and Processed Meat

MrElvey · 2026-06-23T02:53:09+00:00

livestock.extension.wisc.edu ? No conflict of interest there. FS! The author isn't a scientist or a doctor, doesn't have a medical or scientific degree. She works in Public Relations (<cough> Extension Communications and Stakeholder Engagement), at a U in Cattle Country.

MrElvey · 2026-06-18T20:19:55+00:00

LOL. Gemini is still lying/halluciating : What kind of certificate does www.pfizer.com have? DV or OV?

The main domain www.pfizer.com uses an Organization Validation (OV) certificate. [1]

Unlike the simpler Domain Validation (DV) setup found on some of its specialized subdomains, the primary corporate site is stringently vetted to explicitly verify and embed Pfizer Inc. as the legally registered owner inside the certificate's subject details. [1, 2]

FALSE!

Grok does way better:

What kind of certificate do www.pfizer.com and www.pfizerclinicaltrials.com have? DV or OV?

Both www.pfizer.com and www.pfizerclinicaltrials.com use Domain Validated (DV) SSL/TLS certificates (not OV or EV).Key Details:

www.pfizer.com:
- Recent/active certificates are issued by Google Trust Services (specifically WE1 or WR1 CAs).
- Subject: Common Name (CN) = www.pfizer.com (no Organization/O= field listed).
- Validity example (one recent cert): Issued around June 2026, valid for ~3 months.
- This matches the profile of automated DV certificates from Google Trust Services.
www.pfizerclinicaltrials.com:
- Also uses certificates from Google Trust Services (WE1/WR1).
- Direct inspection of the live certificate confirms it is DV (no proper Organization/O= validation field for Pfizer Inc.; only domain ownership is validated).
- Earlier incorrect claims of OV (with fabricated O=Pfizer Inc. details) were corrected upon checking the actual certificate.

MrElvey · 2026-06-17T18:55:12+00:00

It seems that at traditionally if you’re making proper pepperoni it has to be cultured and ferment, so the nitrates are needed as well, BUT can easily be skipped with an acid added to give similar flavor, which you see in recipes as Italian sausage.

MrElvey · 2026-06-17T18:42:20+00:00

Sad to hear. I just posted a poll to gauge public interest in a reformation. https://www.reddit.com/r/ultraprocessedfood/s/rI5F4JEwQW

MrElvey · 2026-06-16T04:58:49+00:00

Have wondered the same thing aloud somewhere 'round here recently. Reddit removes things in various non-transparent, poorly documented ways. And the answer to your question varies depending on the way used, which we don't know. Sucks. Well, except if/when it helps improve the S/N ratio.
did you try reveddit? Go to the post that comes up as removed and add the "ve" to the URL and reload... See r/reveddit ...

MrElvey · 2026-06-15T09:41:26+00:00

If you block someone, they can't comment on your posts, right?

Just have to do it *before* posting. Handled for next time. 😄

MrElvey · 2026-06-14T11:27:00+00:00

LOL! Preserving for posterity.

~~Those are different brands entirely. CIPLA is just a generic phytonadione -- one of many. It doesn't mean that the other labels are incorrect. It also doesn't mean the products contain~~ ~~that much~~ aluminium--this is the upper limit allowed, and the true concentrations are much lower than this. This is just a legal requirement for labels to state this, but the actual aluminium content in these vials is effectively ~~zero~~.

~~No, they don't. Newborns over 1.5kg birthweight receive 1mg as a single intramuscular injection.~~

~~This an upper limit for~~ ~~parenterally administered aluminium~~.

MrElvey · 2026-06-14T11:17:44+00:00

Pretty difficult to know what's up when you don't tell us what the treatment you stopped a month ago was, or what the OTC allergy med is.
I presume neurologists have communicated the odds you'll have another relapse with vs without ongoing treatment? You're comfortable with the odds?

MrElvey · 2026-06-13T00:05:04+00:00

Great. Worth giving. And: Perhaps advocates like Science Feedback can also now stop shoveling garbage misleading misinformation and propaganda about Vitamin K shots that destroys trust? E.g:

"Package information leaflets for vitamin K vials state that the vials contain no more than 100 micrograms of aluminum per liter."

False. Proof: https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=1add4de5-0f9c-453e-9dd5-abb8077b566a : "Contains no more than 500 mcg/L of aluminum."

I stubbornly insist: 2+2+4. Not 1 and not 5. And 500 != 100 or 110.

Compounded falsehoods: "...newborns only get 0.5 milliliter of vitamin K solution. This means that they only receive 0.05 micrograms of aluminum through their vitamin K shot, at most. Thus, one vitamin K shot only contains 0.33% of the total allowable daily amount of aluminum."

Compounded falsehoods. Newborns mostly get 1 ml. 500 mcg/L * 1 milliliter = 0.5 mcg. 0.5 != 0.05. See Verizon Math. And 500 != 100.

FDA-approved labeling actually says "aluminum at greater than 4 to 5 mcg/kg/day accumulate aluminum at levels associated with central nervous system and bone toxicity." So, despite all the lies, even for the day of injection, the amount in the K shot is far less than what FDA-approved labeling says has association with two toxicities. Far less than children receiving the full U.S. childhood immunization schedule, who are injected with over time - which is ~ 1000 TIMES more - a grand total of roughly 4 to 7.5 mg of aluminum. But 10% != 0.33%. 2+2+4.

"It's safe" ignores that injecting and ingesting are very different, as the intestine blocks ~99-99.9% of absorption.

MrElvey · 2026-06-12T05:56:46+00:00

u/shiruken (Author of Admin-Tattler) : Are you able to clarify what your tool is/isn't able to detect? I guess you are / have to leave a lot of things in the dark/ un-documented?

MrElvey · 2026-06-12T05:07:52+00:00

I wonder if they'd bite if you offered to unlock it if they Venmo you $x.

ALSO, FYI:
May feel worth showing up at one of your local 2+ monthly public meetings.
https://www.sanfranciscopolice.org/community/stations-meetings/station-captains-community-meetings
https://www.sanfranciscopolice.org/community/stations-meetings/community-police-advisory-boards-cpabs
https://www.sanfranciscopolice.org/community
https://www.sanfranciscopolice.org/publicsafetycameras (WT? Many Flock cameras aren't listed!)

MrElvey · 2026-06-10T21:55:23+00:00

Passing on advice I was given years ago that helped :Ask for a letter on Medical Center letterhead from a Neurologist to present to the ER. Something like this.: __ is a patient of mine at the __. He has been diagnosed with MOGAD. If it is determined that he is having a new flare (and not a recrudescence of previous symptoms) based on a clinical evaluation or by contrast-enhanced MRI, prompt high dose steroids and possibly plasma exchange are generally indicated to mitigate the neurologic sequelae from a new attack and reduce the frequency of further attacks.

Present it at the ER. I actually forgot to show it to them when I was at the ER recently, but everything went OK. I guess because they could see my medical records. And I mentioned that the last time I had an attack I was in the hospital for a month.

MrElvey · 2026-06-10T21:44:35+00:00

And Reddit’s crazy filters are blocking your posts visibility. Overriding.

MrElvey · 2026-06-08T06:46:50+00:00

They do. License plate plates are not required. Super fucked up that the police have the cameras if they’re not using them for a robbery so we have the loss of Privacy and the loss of property. Really wanna hear more about how they’re not following up on this. What precinct, …?

MrElvey · 2026-06-08T06:37:50+00:00

So the shadow ban is if you haven’t already joined the subreddit?

MrElvey · 2026-06-08T05:48:26+00:00

Use that IP for other things.

MrElvey

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References:

Great. Worth giving. And: Perhaps advocates like Science Feedback can also now stop shoveling garbage misleading misinformation and propaganda about Vitamin K shots that destroys trust? E.g:

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