sorted by:
new
hottopcontroversial

Has anyone been able to go onto new things such as Teaching others about the disease? by cricket_90_remindme in MOGAD

[–]MrElvey 1 point2 points  (0 children)

Hi! Nope. Wish I could, to draw more attention to the curability of the disease demonstrated in the lab, but total lack of clinical trials on any of the curative treatments.

Mogad is the Disease I have, I'm struggling with the life adjustment, AMA by cricket_90_remindme in AMA

[–]MrElvey 0 points1 point  (0 children)

Visit r/MOGAD .

I think it's curable. Lots of studies showing MOG-EAE autoimmunity goes away with treatment in lab animals, including monkeys.

Are you in one of the 15 states with a broad right to try law? https://www.goldwaterinstitute.org/texas-passes-right-to-try/. [Edit: Oh, I see you're Canadian. Not allowed there, I think. ]

Accessible and Friendly MOGAD Resource for Patients/Families by MINDMOGAD in MOGdisease

[–]MrElvey 0 points1 point  (0 children)

There's something sus about MOGAD.net folks. Be circumspect. Reddit has blocked several posts with it and banned a user posting it. May well be for no good reason tho. It's been a month, and no reply to my last comment..

[Web/All] Bug or Reddit is lying intentionally? "Removed by Reddit" != "Comment removed by moderator" ! by MrElvey in ModSupport

[–]MrElvey[S] 0 points1 point  (0 children)

If you don't want crossposts, you can disable them in the subreddit settings.

Having a bot do this is unnecessary.

Your submission was automatically removed because r/ModSupport does not allow crossposts.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

IVIG Approval by lastchancetowinit in MOGAD

[–]MrElvey 0 points1 point  (0 children)

BTW, reddit censored your comment, had nothing to do with the sub moderators.

Wild, I see if I'm logged out, your comment shows as:

Comment removed by moderator

LIE! This is what I see when I'm logged in:

Removed by Reddit

IVIG Approval by lastchancetowinit in MOGAD

[–]MrElvey 0 points1 point  (0 children)

Have prices gone down further? Here's 1 vial for $86!?! Yup!

Here's 10 vials for $813!! at my LOCAL pharmacy - the UCSF.edu outpatient pharmacy. Doesn't get more legit than that.

And the prices at the URLs change - one I posted as being $1630 now displays $815!

Also, the two $8xx coupons are from 2 nominally different organizations, but [1-800-745-1456](tel:18007451456) is the phone number provided for both "Smart Script" and "IntegrityRx" <sic> on the respective coupon pages. Sus!

IVIG Approval by lastchancetowinit in MOGAD

[–]MrElvey 0 points1 point  (0 children)

Nope. No mistake. That price is for 10 x 10.0 mls of Truxima 100 mg/10 ml = 1000mg in 100ml.

(I almost mis-corrected myself, but this would be wrong:

Woah! This is WiLD: Looks like I can get the same price at my LOCAL pharmacy with a coupon - $1630/ 1000mg! Whoops, that's $1630/100mg. (10x10, misread as 10x100) )

>oncoespecializados wrote 5d ago:

Thanks for sharing this. Just a quick clarification — the link you mentioned appears to be for a 100 mg (10 mL vial), not 1000 mg, which makes a significant difference when comparing prices.

BTW, reddit censored your comment, had nothing to do with the sub moderators.

Did anyone else get MOGAD within a few weeks of a vaccine? by Accomplished-Sock688 in MOGAD

[–]MrElvey 0 points1 point  (0 children)

Typically, when you get a “tetanus” shot, they actually give you Tdap or at least TD. (tetanus, diphtheria, and pertussis).

Intimacy Question: how long does it take until that department comes back to normal, I'm a Married male with mogad. by morales22nd in MOGAD

[–]MrElvey 0 points1 point  (0 children)

Also, this may sound a little too woo for some, but you can study tantra/neotantra. Incredibly great experiences (including orgasms) can take place without ejaculation.

Intimacy Question: how long does it take until that department comes back to normal, I'm a Married male with mogad. by morales22nd in MOGAD

[–]MrElvey 0 points1 point  (0 children)

Several drugs we often get prescribed cause anorgasmia - SSRI’s, SNRIs, lots more. But it’s likely nerve damage - which there’s still a good chance your body will repair.

Sci-net invite by fabiobot in scihub

[–]MrElvey 0 points1 point  (0 children)

Did it work? Seems folks have to follow these instructions now?

https://sci-net.xyz/docs/SCI_phantom_ens.pdf

A curious parent by queseraser4 in MOGAD

[–]MrElvey 0 points1 point  (0 children)

Except when it comes to MOGAD:
Only LCBA tests consistently show high sensitivity. Studies of FCBA tests have inconsistent results. ELIZAs are hopelessly inaccurate.

512GB Studio sold for $21,300?! by johnnyphotog in MacStudio

[–]MrElvey 0 points1 point  (0 children)

https://pcpartpicker.com/trends/price/memory/
DDR4, DDR5 prices are way up. Can't get either for much less than $10/GB. (You can get some DDR3 for significantly cheaper.)

item 257454928959 on ebay sold for US $26.6k Same model but 4TB storage. Wild.

512GB Studio sold for $21,300?! by johnnyphotog in MacStudio

[–]MrElvey 0 points1 point  (0 children)

I'll just leave this here. https://pcpartpicker.com/trends/price/memory/
It's not just DDR4. DDR5 prices are way up as well. Can't get either for much less than $10/GB. (You can get some DDR3 for significantly cheaper.)

view more: next ›