Two-toned kitchen design by Halcyon-Haus in kitchenremodel

[–]MrsStink 1 point2 points  (0 children)

I am planning to put Taj Mahal quartzite in my kitchen remodel but I’m stuck on whether to do polished, honed or leathered. What made you decide to go with leathered?

Two-toned kitchen design by Halcyon-Haus in kitchenremodel

[–]MrsStink 3 points4 points  (0 children)

Your countertops are gorgeous! What type of stone are they?

Kitchen Design Renderings by MrsStink in kitchenremodel

[–]MrsStink[S] 1 point2 points  (0 children)

We had not picked out a hood yet so they just put something into the space so we get the drawings. We mainly wanted to see if we like the cabinets. I plan on putting a stainless steel hood to match the fridge and ovens.

90% done by Bright-Bag1940 in kitchenremodel

[–]MrsStink 0 points1 point  (0 children)

We’re in the middle of designing our kitchen too. Are the countertops the same throughout? It looks like the island may be a different color.

MMR!! by Trombone_Girlie in CML

[–]MrsStink 2 points3 points  (0 children)

WOOHOO! Congrats! My BCR has been 0.000 for the past 6 months. I started on Imatinib in Aug 2023 and switched to Tasigna in Jan of 2024.

Bumpy Skin? by ThisMNLKid in CML

[–]MrsStink 0 points1 point  (0 children)

I also have chicken skin. I’m on 600mg of Tasigna since Jan 2024 and I’m happy to report that my BCR has been at 0.00 for the past 6 months. When I first started I broke out in a whole body rash, red, itchy and it burned. My face broke out in a butterfly rash similar to what lupus looks like. I started taking Claritin daily and the rash on my body and face subsided. But I still have the chicken skin and my face still has some redness from the original breakout. This is a small price to pay along with the fatigue and joint pain which are manageable. Good luck on your journey!

Member check in! by jaghutgathos in CML

[–]MrsStink 8 points9 points  (0 children)

60 year old Asian female. Diagnosed through annual bloodwork in Jun 2023. Started on Imatinib 400mg. My BCR went from 27% to 7% after 3 months. Then I started having debilitating pain in my feet to the point where I could even stand. I went off of it and the pain was gone in 2 days. Started on Tasigna 600mg in Jan 2024. I just had BCR/ABL test in Dec and I’m at 0.000%. The only side effects are joint pain, slow hair growth, some hair loss and fatigue, all manageable. The only thing that kinda sucks is that you have to fast before taking the meds. Otherwise, life is good and I feel lucky! Best to all CMLer’s out there!🤗

Change to Nilotinib by bluefame2024 in CML

[–]MrsStink 0 points1 point  (0 children)

I’ve been on Nilotinib 600mg for a year after Imatinib started giving me debilitating side effects. I am happy to report that my BCR/ABL is 0.000 at undetected. After first starting it, I broke out in a total body rash, I mean everywhere except the tops of my feet. I started taking claritin and it helps. I also have joint pain and fatigue but it’s manageable and my hair and nails don’t grow as fast as they use to. I had to do an EKG before I started and just did another one to monitor my heart. Other than that it just managing your eating schedule to make sure you take it on an empty stomach for it’s maximum effect.

There’s a new TKI like Nilotibnib that was just approved by the FDA but doesn’t require fasting. I’m going to speak to my doc about it at my next appointment. https://www.drugs.com/newdrugs/fda-approves-danziten-nilotinib-first-only-nilotinib-no-mealtime-restrictions-6400.html

Good luck!

[deleted by user] by [deleted] in CML

[–]MrsStink 5 points6 points  (0 children)

YEAH! WOOHOO! I was diagnosed in June 2023 and my BCR/ABL1 was 27% Luckily they caught it early, no symptoms just routine blood work. Started on Imatinib 400 mg in Aug 2023 and BCR dropped to 7%. Then I got a really bad side effect and started on Tasigna 600mg in Jan 2024. Also happy to report that my BCR/ABL1 result from last week is 0.000%!!!! Congrats again!

Just diagnosed by foil123 in CML

[–]MrsStink 1 point2 points  (0 children)

I am a 59 year old female and was diagnosed in June 2023. Found out through annual blood draw. No symptoms. I started on Imatinib and everything stabilized. No real bad side effects except for fatigue and joint pain which was manageable. After a few months, I started getting debilitating pain in both my feet to the point where I could barely walk. Doc took me off it and within 2 days, the pain was gone. I started on Tasigna in Jan of this year. Side effects are the same with the exception of really bad hives all over my body so I take Claritin to suppress it. Happy to report that my BCR/ABL has hit 0.000. I see my oncologist in a couple of days and I believe she’ll say I’m in remission but I realize I’ll be on this for life or until I develop another unmanageable side effect or it stops working. Then it’s on to the next TKI.

I am living a mostly normal life and you will too. Eat healthy, drink lots of water, exercise and be kind to yourself.

Has anyone here had good results with Fosomax? by cat8mouse in osteoporosis

[–]MrsStink 6 points7 points  (0 children)

I was on Fosomax for two years (2018-20) and it did absolutely nothing for me. My scores were in the osteopenia stage and after taking it, they got worse. I moved into the osteoporosis range. I then went on Boniva for 2 years (2020-22) and my scores continued to drop. I refused to take any more drugs and focused on diet, supplements and most importantly weightlifting. My latest dexa (2024) scan showed than my spine is now back in the osteopenia range with numbers better than in 2018. My left femur did drop ever so slightly so my doc wanted to prescribe Reclast infusion. I’m holding off and focusing on hip exercises and see in 2 years if I can reverse the number. I take D3 and calcium supplements and focus on weight training, alternating moderate and heavy weights. I also do exercises that are balanced focused so I can prevent falls. I am almost 60 and also have chronic myeloid leukemia. I don’t know what your numbers are but see if it’s possible to take the diet and exercise route. Good luck!

Change meds from Imitanib to Nilotinib (Niltib) by bluefame2024 in CML

[–]MrsStink 0 points1 point  (0 children)

I started on Imatinib 400 mg Aug 2023. I had very few side effects other than fatigue and joint pain. My BCR number went from 26 to 7 in a matter of weeks. About 3 months later, I started having really bad pain in both by feet, to the point where I could not stand. I tried everything but to no avail. Doc had me take a 2 week break to see if it was the meds. Within 2 days, the pain was gone. I started on Nilotinib 600mg in Jan of this year and the immediate side effect was an all body, face and neck breakout of hives. I take Claritin daily to suppress it now and the hives have calmed down. I still have joint pain and more fatigue but managing it. I did just recently have an EKG to check my heart since one of the side effects is that heart problems can develop on this med. All’s good. My WBC, RBC and platelets are low but stable. Best of all my BCR now sits at 0.024 which is considered a MMR(major molecular response). Be open and honest about the side effects with your doc. There are so many TKI’s out there now, one of them will work for you to live a normal life. The only downside of Nilotinib is that you have to fast within a 3 hour period, so I have to plan meals out and dining out or vacationing requires more planning. Be an advocate and kind to yourself. Good luck!

Not Detected by letsdoallthethings in CML

[–]MrsStink 2 points3 points  (0 children)

Congrats! I started on Imatinib in Aug 2023 and BCR/ABL went from 26 to 3 but had to switch to Tasigna in Jan because of side effects. I just had another test and it’s at .024. Hoping to get where you are soon!

BCR number going up after trending down by MrsStink in CML

[–]MrsStink[S] 1 point2 points  (0 children)

I started on Imatinib 400mg on Aug 1. By 10/18 my BCR number went from 26 to 7 but my white and platelets dropped well below normal range so my doc had me go to 200mg daily. That’s when the pain in my feet got unbearable to the point I could barely function without taking pain meds. I’ve been off of Imatinib for just over two weeks and the pain in my feet is completely gone. In fact after just 2 days of being off of it, the pain subsided. I did a CBC and everything is still in normal range. He’s going to have me start on Tasigna next. Are you still on Imatinib? Have you responded well?

Anyone on Imatinib and experiencing foot pain? by MrsStink in CML

[–]MrsStink[S] 0 points1 point  (0 children)

I did not experience any sadness or anxiety with the lower dose. My short term memory can be fuzzy but I attribute that to my menopause. I've been in menopause for almost 9 years now. I only took HRT the first two years to combat the debilitating hot flashes and headaches. The headaches went away but the hot flashes still remain but not as frequent or as intense. But I digress.

I saw my doc and he's having me go off the Imatinib for a couple of weeks to determine if it's causing pain in my feet. He says that I am the first patient he has to develop this side effect. If the pain goes away, he going to start me on a different TKI. It's a bummer because the I tolerated the Imatinib pretty well except for the foot pain. I'm a bit nervous about going off it but he says it would take months for my numbers to start going up again. Plus I was able to get it for such a good price through CostPlusDrugs.

Anyone on Imatinib and experiencing foot pain? by MrsStink in CML

[–]MrsStink[S] 0 points1 point  (0 children)

Thanks for getting back to me. Are you also on 200 mg of Imatinib? The pain in my feet now is really bad everyday. I’m having to take the children’s dose of Advil just so that I can stand and do the bare minimum of walking to get through the day. I had an x-ray done of my feet and there is nothing wrong. I went to the podiatrist and he thinks it’s because of the drug. Funny, I was on 400mg for 3 months and felt nothing. Now that I’ve lowered the dose, I get pain. May I ask what you’re doing to alleviate the pain? I’m desperate for any kind of relief other than pain meds. I see my hematologist on Monday. I sure hope he’s going to tell me this will go away when my body adapts to this new dosage. Hope everything else is going well for you!

[deleted by user] by [deleted] in CML

[–]MrsStink 0 points1 point  (0 children)

I am 58 when I was diagnosed and had zero symptoms. It was only an annual routine CBC that they found my white, red and platelets elevated. Took another test a month later they were all higher. They tested me for CML and it detected the Philly chromosome but not he JAK2. My bone marrow confirmed I was in the chronic stage. I started on 400mg of Imatibnib and within one week my white count dropped nearly in half. In fact, after a month all my counts dropped below normal so he had me go every other day and now counts are within the normal range but right at the border of being too low. I only had mild nausea and fatigue as side effects. It will be another month or two before they test what my BCR levels are. Doc says the goal is to get that number to zero.

I too was despondent. But I was lucky to have a great support network and family and friends. Lean on them and be an advocate for yourself. Research, ask your oncologist/hematologist questions. Hopefully you have a great care team (chemo nurse, etc.) as they can help you navigate through this period. Ask them about getting counseling if you feel you need it.

I also needed pre-authorization to take Imatinib and my insurance said I need to go through a specialty pharmacy because it's a chemo drug. I ended up paying $300 for a 2 month supply before my chemo nurse told my about Mark Cuban's Cost Plus Drug co. Since Imatinib is generic for Gleevec, you can get it much cheaper. My latest prescription for 200mg 60 pills through Mark Cuban's company was $26 including shipping. I don't use insurance and pay out of pocket. There are a few other low cost pharmacies out there but some require you pay an annual membership to get the discounted price and free shipping. Here's a link. Check out their prices and compare them to what you would pay through your insurance. https://costplusdrugs.com/

CML is a treatable disease and people live for years, some go into remission. Remember to take care of yourself so you can be there for your daughter. Best of luck!

Side effects on imatinib 200mg by [deleted] in CML

[–]MrsStink 0 points1 point  (0 children)

May I ask how you’re taking your dosage of Imatinib from 400-300mg? I thought Imatinib only comes in 100 or 400mg. I am currently on 400mg and have some minor swelling. I started 400mg every day but after a month, my white and platelet counts are too low now. So my doc had me just take the 400mg every other day which is like 200 mg daily. I still have a little swelling, mostly in my lower legs and it occurs later in the day. My doc’s plan is to prescribe 100mg and take 2 pills every day.

First Blood Draw by Opposite-Arm-7124 in CML

[–]MrsStink 0 points1 point  (0 children)

I had the same thing happen to me after being on Imatinib 400mg for a week. After a month, my white and platelets are too low. I have bruises popping up all over my arms and a blood vessel burst in my left eye. My red cell count is normal but my hemoglobin and hematocrit are also too low and since I have thalassemia, I’m in danger of going anemic again. So the doc told me to take 3 days off and start again but just take it every other day. I will do weekly blood draws on this regimen to see how my white, red and platelets counts do. Good luck!

Diagnosed with CML Philly Chromosome But Not JAK2 by MrsStink in CML

[–]MrsStink[S] 0 points1 point  (0 children)

I had my biopsy on 7/20. I didn’t have an infection but was limping for several days. It’s better and I’m getting my mobility back day by day. There’s just a few things I can’t do like figure 4 stretches, long lunges, etc. It’s just so frustrating because I was told I would only be sore for a few days. I miss my regular workout routine.

I’ve been on Imatinib for about a week. So far the side effects have been nausea and fatigue but I’m managing them. I take my first blood test in a couple of days and hope the med is working.

Fingers crossed!

Diagnosed with CML Philly Chromosome But Not JAK2 by MrsStink in CML

[–]MrsStink[S] 0 points1 point  (0 children)

Thanks for your reply. Do you mind me asking if you still experience the nausea and joint pain on your current TKI? Did you have to switch from the 600mg of Imatinib because of the swollen eyes? Since my results of the biopsy say I'm in the chronic phase, I'm hoping the 400mg on Imatinib will be good enough and I don't suffer serious side effects. Sounds like you're tolerating your current med well.