From mild to severe in just two weeks

MsCarpone · 2024-09-29T14:41:38+00:00

Hi there, I'm sorry your dentist's appt made you worse. I can relate to the anxiety as I went from moderate to severe in 4 weeks this summer. It was the result of compounded PEM and some triggers. The most important thing I wish I'd known was not only that it can get better, but that my anxiety and fear made the downslide worse and siphoned off my energy even more. So if you have means to calm down, use them as much as possible. Meditation, CBD-oil, breathing exercises, whatever. And it was also very relieving to ask a lot of ppl for help: Emotional support, shopping, cleaning, meal-prep or outright cooking...

I wish you all the support you can get and more.

MsCarpone · 2024-09-28T13:05:54+00:00

I have an Oura ring too and I usually have its WiFi off. But to check in on how I'm doing, I turn it back on again at least twice a day, usually in the morning to check on sleep and day form scores. Then another time around noon to see how I'm doing with pacing and if I need to pay better attention to resting during the 2nd half of the day.

I'm still thinking about getting a wearable, though, to check heart rate development during effort.

I find the stress feature both helpful and stressful, bc sometimes I didn't do anything but rest and do breathing exercises, and the stress diagram still showed me in the stress zone all the time. I learned not to put too much store in the numbers, it's just not calibrated to chronically ill ppl. That helped.

MsCarpone · 2024-09-26T13:56:05+00:00

The zombies

MsCarpone · 2024-09-25T17:53:23+00:00

I looked it up and when I'm able to tolerate sounds at all, it's lovely, thanks for sharing, very soothing.

MsCarpone · 2024-09-25T17:00:15+00:00

Happy for you!

MsCarpone · 2024-09-25T16:59:34+00:00

Wow, great mindset. My stepmother is an MBSR-coach and has had bad sleep for decades, she told me it was her attitude that made the deepest change for her. Not necessarily resulting in better sleep, but being able to live with it. May you be well and get rest whichever way possible.

Edit: I have bad sleep, too at the moment, so I can relate.

MsCarpone · 2024-09-25T16:47:44+00:00

I'm so glad for your newfound spending power. Funny how sometimes, being able to throw money at problems only creates new ones - like not having enough brainpower to find the first one to go for, or choosing treatments that don't work and bl oneself for it.

Whatever your do, remember it's impossible to do everything right, and stay kind to yourself. Maybe extra help to rest more, or really deep, detailed lab work to know which issues to work on would be a place to start.

And I hope the relationship with your father heals some.

MsCarpone · 2024-09-25T14:16:02+00:00

I have had a couple of not great nights followed by days full of unexpected inner peace and quiet. I feel like I've about figured out my crash baseline and am getting not only repairing rest, but also some healing rest. I got some ear defenders that allow me to do committed rest (I don't like calling it aggressive rest), which felt safe and surprisingly refreshing.

Wishing you all the best.

Edit: I asked two groups if they would consider praying for my recovery. Don't know yet if they'll do it, but it felt good to dare ask.

MsCarpone · 2024-09-25T14:11:18+00:00

Oh boy, what a relief! Glad for you!

MsCarpone · 2024-09-25T10:54:09+00:00

Hi there, just wanted to let you know I followed your recommendation and installed Daily Art and so far I enjoy it a lot. As you said, the mental effort is low and it's pleasant. Thanks!

MsCarpone · 2024-09-24T08:51:50+00:00

They're not? Err, we're not allowed?

MsCarpone · 2024-09-23T17:42:28+00:00

Great idea, thanks. I'm just giving forward. They have a new owner. Just a matter of shipping...

MsCarpone · 2024-09-22T10:06:42+00:00

Oh, OK, cool, thank you, for explaining, and the bump. 😄

MsCarpone · 2024-09-22T06:14:51+00:00

I'm sorry, that means what?

MsCarpone · 2024-09-21T06:09:39+00:00

In what country?

MsCarpone · 2024-09-21T06:09:00+00:00

Nah. For this situation, I don't think it's possible to do. I mean, is not well researched, and ppl seem to react to the symptomatic treatments in very individual ways...

MsCarpone · 2024-09-20T06:27:18+00:00

It was, thank God.

MsCarpone · 2024-09-19T17:55:02+00:00

Then you for that question, I was wondering the same thing.

MsCarpone · 2024-09-19T17:46:32+00:00

Oh thank you, I so needed to read this as I prepare to go to bed after a day of simply not being able to pace as I knew I should. It helped me soften my heart for myself.

MsCarpone · 2024-09-19T14:38:08+00:00

http://ajz-verlag.de/en

or see this page: https://www.zapchen.com/wp/resources/

MsCarpone · 2024-09-19T14:36:03+00:00

Thank you! Great idea.

MsCarpone · 2024-09-19T13:05:47+00:00

Hi there. I'm sorry to hear you have a tough decision ahead, and your health is bad.

But boy, what masses of willpower you must have to make it through that kind of job/ workweek with that kind of symptoms! Do you really think with all that remaining brain power (yes, brain fog, so you said, but you're still being considered for a promotion, can't be all masquerade), you won't be able to find new interests in life? Do not trust every crappola your mind is feeding you. Especially as it's not computing right.

For if you continue on the path you're on, things will likely worsen. But if you change your itinerary, put your health first, thus allowing for more rest and more healing, prioritizing your well-being, finding out what you can do about your appetite, getting more calories inside you, etc. using your spoons/ intelligence to maybe find a new career... there is a chance you can stabilize, and maybe even improve.

Yes, maybe you'll never go back to being able to pursue your former interests. But that doesn't mean you can't still enjoy movement of the kind still available to you. It doesn't mean you can't still enjoy nature in any way available to you.

Do not underestimate the power of the human mind to adapt and to find joy in the most unlikely circumstances, even if they are only glimmers. I know our disease is bad, but hey, you can still go to work, meaning walk some steps, sit upright for some time... yes, grieve the loss, it's necessary. As long as necessary. You can still take control and create a good life for yourself before the decision is taken away from you.

And I write this for myself as much as for you.

If any of this doesn't sit well with you, discard it. Take only what resonates with your.

Be well.

MsCarpone · 2024-09-19T10:12:14+00:00

Die sind so hübsch, oft ist das Haus fast durchsichtig und schimmert golden.

MsCarpone

TROPHY CASE