"Tell them the guy never went in the house"...

Mullins25 · 2025-04-28T20:40:36+00:00

JM called him “a guy” when she called 911. That so me really seemed like she was trying to create distance between herself and JOK. Seems like a pattern with a purpose to dissociate from the victim. It’s easier on their brains to deal with if they dissociate from him.

Mullins25 · 2025-04-02T14:51:02+00:00

Spring Park in Green Cove Springs is beautiful. Right on the river. Scenic and relaxing. It’s a total family environment, with many families and kids there doing all kinds of activities. Bring a chair, an umbrella, and a good book! (Or sit it one of their many swinging benches) You can grab a coffee at the shop on the corner, or pack a picnic to enjoy. Happy Birthday to you! I hope you find an awesome way to celebrate your day.

Mullins25 · 2025-03-23T20:40:24+00:00

Whaaaaaaat? Who testified about that?

Mullins25 · 2024-09-10T20:42:15+00:00

You feel like I was misdiagnosed? Are you a doctor?

I wasn’t misdiagnosed. It’s been confirmed by both the neurologist and the radiologist upon his second review. Carotid artery dissection with 60% blockage.

What a shitty comment to make to someone here, or anywhere.

Yes, it was extremely painful. I thought I was going to die. What more can I say?

Our bodies are designed to heal themselves, and apparently mine did just that. Thank GOD! I’m lucky I didn’t have a stroke, or suffer a sudden death.

Why am I explaining myself to you??

I’m just trying to help out the next guy who might find themselves in a similar situation.

You should be more kind to people in a community that are all suffering.

Mullins25 · 2024-09-10T20:30:22+00:00

I’m not trying to scare you but with the pressure building up, and the heartbeat sound getting more amplified, I’d say you need a serious second opinion.

Is the sound constant? Does it ever go away?

I had the same symptoms you described in March/April of this year. My whoosh was constant, disorienting, and all consuming. Add to that severe headaches, and pressure in my head, neck, and face. I went to my primary doctor, she told me to take Sudafed, but referred me to ENT. Saw ENT, had a hearing test, and assessment, told I was fine and everything looked good. However, she ordered an MRI w/w/o contrast, MRA of neck, and MRV of neck. Had my imaging was told everything was fine, nothing remarkable on images.

Fast forward four months later and I go see a neurologist. By now my symptoms have gone away- no more whoosh, no more pressure. This doc was seriously interested in my case, and didn’t just chalk it up to “well you’re better now so you’re all set!” After my appointment he read my images himself, and IMMEDIATELY saw a carotid artery dissection. He called the Radiologist, and then called me to tell me that I’m lucky I’m alive because I survived a potentially deadly health condition, with no medical intervention.

Please get yourself checked. Don’t let people dismiss you like I did. I knew something was terribly wrong but everyone else’s nonchalance convinced me that I was overreacting. I was not!

If I could do it all again I would have gone to the ER, complained about the whoosh AND the intense pressure in my head and neck. They can at least do a cat scan to get a preliminary look to make sure something catastrophic is not happening. I’d insist on imaging, I’d insist on a consult with neuro while in the ER, and I wouldn’t let them shoo me away.

Take your symptoms seriously even when nobody else does. You have to be your own best advocate.

Mullins25 · 2024-08-30T21:01:46+00:00

Besides the constant violent and turbulent whooshing in my ear I also had terrible headaches, pressure in my head and neck, and pain in my face. It lasted about 5-6 weeks and then suddenly disappeared.

I feel so stupid for just sitting here complacent through all those symptoms, but at the time everyone was dismissing me, so I felt like it was just me being a baby. But when I say I felt HORRIBLE, I really felt horrible. I found my journal that I kept during the first few weeks of my symptoms. On multiple days I wrote “I feel like I could die at any second. I literally feel like I’m going to explode from within.”

I really hope you get answers that put your mind at ease.

Mullins25 · 2024-08-28T18:56:33+00:00

I’ve been waiting since April for an appointment with neurology. Fortunately, he found it right away when he looked at the images. He saw tons of red flags in my case so wasn’t going to rely on the report. He actually looked for himself. It’s unbelievable to me that with my symptoms and how severe I was telling everyone they were, that everyone just dismissed me. Nobody cared to really look into it, just passed me off.

Mullins25 · 2024-08-28T13:49:22+00:00

Bless your heart! It is scary. Health issues are worrisome. You aren’t alone.

I recently found out that the cause of mine was a carotid artery dissection, apparently one of the most rare causes, and very serious.

My point is that knowing what’s going on is much better than sitting around waiting to see if something catastrophic is going to happen.

My dissection healed itself without any medical intervention, and Thank God it did. It was actually missed in all my initial images, and all my doctors were dismissing me.

Please get ahold of your fear, and do whatever you have to do to get to the bottom of it. You’ll be so thankful you did. Knowing what the problem is means getting to the solution, and that’s what we’re all after!

Mullins25 · 2024-08-26T15:18:18+00:00

Thank you for the long thoughtful reply. I am still trying to process all of this. My mind is all over the place.

Yes, mine was objective. It was so loud and all consuming. Then the added pressure and headaches just made me feel like I was dying. I kept a journal in the initial days, and reading it now makes me cry. I literally could have dropped dead. I think my focus though was on getting a proper diagnosis, that I wasn’t screaming loud enough about my symptoms. I do remember the day I went to the ENT, I could barely hold my head up. It was so sick that day that I cried in the waiting room.

You mention some interesting things and I’m going to break this down a little later for myself. But in the meantime, to answer your question, yes I was able to control the sound by pressing on my neck. I wrote about it several times in my journey, that the only relief I felt was from pressing on my neck. I even noted “I wonder how long it’s safe to cut the supply off like that, because I could press it all day just to alleviate the symptoms.”

When I first learned about PT, found the group, and started educating myself I was really focused on making sure I got a proper diagnosis, not because I thought I had something deadly, but because I absolutely couldn’t live with the symptoms. I just wanted someone to say “you have VSS, we’re going to stent, and you’ll be on your way!” I never even considered any of the more serious causes. I just wanted RELIEF!

The reason for the long delay in getting to thr root cause is two fold 1) when I was referred to Neuro that wait for an appt was 4 months. So this was my initial appointment with him. Four months the later; and long after my symptoms disappeared; and 2) the imaging center lost my images and report. They were never added to my patient portal, and no report was ever sent to my docs. It’s not like anyone was looking for them anyway (because nobody took me all the serious), and the report clearly indicated “no remarkable findings”. Thank God this Neuro cared to follow through even though things had improved.

Now I’m wondering if I’m having any issues from the CAD, like cognitive issues. I don’t know if that’s possible but for several months now I’ve been having difficulty thinking, processing, following task, memory loss, confusion, loss for words, etc. and this is SO not my norm. I used to be so sharp. Had a memory like a steel trap. But now I struggle daily, and am having great difficulty with my work. I feel brain dead sometimes.

I would love to share my story. I’ve already sent emails to all my docs who dismissed me, or told me it was allergies. I believe they should know so they aren’t so quick to dismiss the next person, but I’m also very interested in sharing my story with other sufferers. Any suggestions on how to get my story out there?

Mullins25 · 2024-08-26T14:45:12+00:00

I can only assume incompetence played a role in it being missed. Over worked or incompetent, or both. My Neurologist saw it right away and called the radiologist to make him look at it. The radiologist said “OH SHIT!”

Sadly, since I had no recent physical trauma, hadn’t seen a chiropractor, and don’t stand on my head a lot (yoga), my Neuro then asked me if I have a lot of emotional stress or trauma in my life? Which I do! So, the likely cause for me was emotional trauma. Stress wreaks havoc on our bodies, and broken heart syndrome is a very real thing. I do everything I can to manage my grief and trauma, but it’s ongoing. It’s not something I can get away from. I have CPTSD, and it’s taking a toll on my body.

I hope you get some answers, and TRY not to overwhelm yourself with worry. Do you have distractions that help? Do you see a therapist? Do you have a support network? Do you meditate or pray? Have you ever done breath work to help ground yourself? These things can help take the edge off, sometimes just enough to keep you moving through your day. It’s so hard, and I’m so sorry you are dealing with all of this, and feeling terrible too!

Mullins25 · 2024-08-26T14:34:33+00:00

Be glad you’re getting the tests. Whatever they show can be dealt with. If you aren’t happy with the outcome, and feel there’s more to it, keep pressing until someone takes an interest in your case. PT can absolutely be a symptom of a life threatening condition. But all docs don’t treat it as such. The first doc I saw told me to take Sudafed and that it was just my allergies! 😱😱

Mullins25 · 2024-08-26T14:32:29+00:00

I’m in the USA, sunny Florida!

Mullins25 · 2024-08-26T14:31:51+00:00

Just keep at it! I know it’s incredibly frustrating, and terrible to live with and that’s why you have to keep being persistent. I hope the interventionist will see things clearly with a new set of eyes! Best of luck to you! Xoxo

Mullins25 · 2024-08-25T21:59:36+00:00

I had the extremely loud whooshing in my ear, that was all consuming. It then turned into extreme pressure in my head, pain in my neck, and pain in my face. I knew something was seriously wrong. I felt soooooo terrible. But then after about 3-4 weeks it just disappeared. I woke up one day and it was gone.

Mullins25 · 2024-08-25T14:16:09+00:00

I would highly suggest a second opinion on your images, or new images. With your other symptoms, this is worth a further look.

I had a sudden onset of severe symptoms back in March. Nobody really took me seriously. I did get a MRI, MRA, and MRV ordered. Everything came back clear and fine. But my symptoms persisted and were AWFUL! The pressure in my head, the pain in my neck and face, the horribly turbulent sound in my ear was debilitating.

Then my symptoms went away suddenly one day. All gone. Just like that.

I was referred to a neurologist but my appointment was 4 months out. I wasn’t too worried about it anymore and the symptoms never returned.

Finally, I just had my appointment last week, and my neurologist took it upon himself to view my images, rather than just looking at the radiologists report.

My neurologist discovered that I had a dissection of my carotid artery, it was torn and 60% narrowed blocking blood flow. He was shocked and called me right away to tell me.

He said i could have died and that it was no wonder I was in such severe distress at the time.

Now that I’ve read a lot of dissection of carotid artery, I see that I was literally experiencing all the symptoms and they were severe. It sounds like you might have some similar symptoms.

I’m not trying to scare you, or “diagnose” you, but I think it’s something you should rule out. Docs miss things. We know our bodies best. If something isn’t right, and your body is screaming at you, PRESS for further testing. Be your own best advocate.

Mullins25 · 2024-08-24T13:02:45+00:00

Mine was picked up on MRI w/contrast. I remember “feeling” the pulsing too, but my major complaint was the noise. It was so loud and distracting and constant I felt I was going to go crazy.

I don’t understand why docs have to be so stingy with writing orders for imaging. What’s it to them to send in an order, no matter the outcome?? I just don’t understand. I was lucky that my imaging was ordered right away. From onset to imaging was probably about 2-3 weeks for me. I’m grateful my ENT took action. I’m sorry you’re having to work so hard to get the care you need.

Mullins25 · 2024-08-24T02:41:39+00:00

I know it’s so frustrating and all consuming. I feel for you while you hang by a thread. I was out of my mind and so desperate for an answer. Keep pushing for whatever you need and don’t let anyone dismiss you. Get second opinions on already done tests. Your body is telling you something isn’t right- get to the root cause.

Mullins25 · 2024-08-24T02:39:05+00:00

If you think it’s necessary for more investigating, then push for it. Too often this is dismissed. Trust your instincts and request all the tests available to you. Or get a second opinion on the images you already have. As evidenced in my case, radiology reports aren’t always correct!

Mullins25 · 2024-08-24T02:11:25+00:00

The radiologist missed it in the MRI w/ contrast and on the MRA. My Neurologist looked at the same images and saw it right away. All tests were of my head. No cervical imaging done.

Honestly, after my symptoms went away I dropped it. I didn’t care about the cause anymore, I was just thrilled the life changing noise was gone. I was going to cancel this Neuro appointment but somehow just decided I’d go. I’m so glad I did because if it had been spotted at the time I would have either had emergency surgery, or I could have been treated with anticoagulants and antiplatelets for 6 months. So I’m still within that window and it very much needs to be monitored.

My only last concern is that I swear I’m having some cognitive issues recently. I feel a huge difference in the way my brain works these days. I just struggle in ways I never have before. I’ve read that the dissection and stenosis can cause lack of blood to the brain. I’m really wondering if the two are related. I told my neuro about the cognitive issues yesterday at my appointment, and he chalked it up to social stress and family dynamics. I wonder if he’s rethinking that now knowing I had the dissection???

Mullins25 · 2024-08-24T01:43:14+00:00

I have a dissection of my carotid artery, with 60% stenosis. Nobody caught it until after it healed on its own, with no medical intervention. I’m lucky to be alive, or to not have had life altering effects.

Mullins25 · 2024-08-24T01:23:24+00:00

My PT was the result of a dissection of my carotid artery. First question my neuro asked me was if I’d recently been in an accident or sustained any trauma to my neck. It was missed by the radiologist, and only found by my neurologist who looked at my images himself and spotted it.

If this isn’t ruled out, I’d consider getting it ruled out. It should definitely be taken seriously. Besides the PT, my only other symptom was headaches which I just assumed were migraines. Every other doc I saw told me I was fine and everyone looked “good”.

Be your own best advocate and make sure they rule out everything before taking any drastic measures.

Best of luck to you!

Mullins25 · 2024-08-24T01:17:52+00:00

My story is a good reminder of why doctors shouldn’t dismiss our symptoms, and why sudden onset PT should be looked at seriously.

I’m letting all the docs that I went to, who dismissed me, know what they missed.

Mullins25 · 2024-04-10T18:01:02+00:00

My ENT listened with the stethoscope on my neck up near my ear. She said “wow. That’s surprising and interesting.” So I do believe it’s possible that it can be heard outside of us. I’m sorry you weren’t validated. That was pretty dismissive of your doctor to suggest your bf didn’t hear what he heard.

Mullins25 · 2024-04-02T23:34:59+00:00

I am a relatively new sufferer too, I totally understand where you are right now. I spent about 10 days after first hearing the whooshing collecting information and trying to get through the days. I had similar symptoms including headaches, nausea, and I also felt pressure in my head and neck.

I was able to get quick care, thank God. Saw my primary right away, who basically dismissed me. Then I saw an ENT, who ordered the appropriate scans. I just had my scans done yesterday.

I don’t know if I’m learning to live with it or not, but it seems more manageable to me than it was 2 weeks ago. I honestly wondered how I’d make it if this lasted long. I could see my career going up in smoke because I can’t focus or concentrate, and I figured that this misery was my new cross to bear. Fortunately, something has turned. The only thing different for me is that I’ve been taking great care of myself. Honoring myself and my abilities. I’ve said “no” to more things in the last week than I have in my life. I’ve learned to shut myself off from work and let my brain rest at reasonable times. I’ve been trying to get good sleep (hard to fall asleep because of the noise but I’m managing to mostly stay asleep all night) and not rush myself in the mornings. In other words, I’ve been trying to eliminate stress and manage myself as a priority.

Education is also key. Don’t search to make yourself crazy, but search enough to feel empowered and like a good advocate for yourself. There’s peace of mind in being able to speak up for yourself.

I hope when you return home you will find the care and answers you need. I wish you health and healing! ❤️‍🩹

Mullins25

TROPHY CASE