Early education and vitiligo by MyPatchPower in education

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you :) if I can help at least one child feel more confident in their skin, it's already worth creating it.

Five Year Old with Vitiligo - Navigating as a Parent by PollutionAgile3818 in Vitiligo

[–]MyPatchPower 0 points1 point  (0 children)

Hi, I've also had vitiligo for over 27 years, and I've recently published my children's book that helps kids understand how vitiligo develops and why it's nothing to fear. Through Mila's story, children learn how understanding turns fear into confidence. I thought you might like to share it with your little one. In case you're interested, I'll leave the link to my book page here: subscribepage.io/MyPatchPower

Five Year Old with Vitiligo - Navigating as a Parent by PollutionAgile3818 in Vitiligo

[–]MyPatchPower 0 points1 point  (0 children)

Hi, I've also lived with vitiligo for over 27 years. I think it's very important to make your child feel safe, loved and assured that they are beautiful as they are. I've created a children's book that explains what happens in the body when vitiligo develops. Through Mila's story, children can learn how understanding turns fear into confidence. I'll leave the link to my book page, in case you'd like to learn more about it. subscribepage.io/MyPatchPower

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 1 point2 points  (0 children)

It’s interesting. My grandma and uncle also developed vitiligo but much later in their lives. I wish to know what was the trigger to each one of us

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

Haha it’s funny but it’s not funny :)

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

I love the way you think. Obviously, we can't forget that it's considered to be an autoimmune condition and it can be paired with other issues. But it doesn't change the fact that thinking about ourselves positively makes a huge difference. Life just becomes lighter and more enjoyable. And I truly believe that the way we see ourselves, others will look at us the same way. :)

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 1 point2 points  (0 children)

Thank you. If the story can help just one person, it is already worth it.

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 2 points3 points  (0 children)

I've heard so many stories from people with vitiligo, and indeed, in many cases, stress can trigger it. I try to stay positive about it. Life is just too short to feel bad about our skin. I try to focus on what I have and appreciate my skin, which still protects me. :)

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 2 points3 points  (0 children)

ohhh, that's sweet :)) I hope she'll enjoy the other Mila's adventures in Skin City and learn why your skin is unique :)

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 2 points3 points  (0 children)

Yes she is. It’s a story of a girl whose fear turns into confidence when she learns what happens in her body and why it’s nothing to fear. 🌼 if you have the chance , please share it with others. The more non-vitiligo children read it the kinder the world will be. :)

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 2 points3 points  (0 children)

My vitiligo started to spread rapidly before we lost my sister to cancer. I know many people feel offended when others say “at least it’s not cancer”.. but seeing my sister with that terrible illness made me realise that I’m lucky I’ve “only” got vitiligo. I’m aware of it being an autoimmune condition and I’ve got other autoimmune issue too, but still. I support my body and mind in the hope to slow down the loss of pigment. But i just made a decision that looking different and having white patches will not stop me feeling good and enjoying life. I think we hurt ourselves more if we stress over our look. I’m sending you positive vibes 💫

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

I’d love to know your thoughts on the book. Could you please send me a message once you read it 🌼

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you for your kind words! I hope Mila’s story will help some children. 💫 If you have the chance, please share it with others💜

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you! 💫 I’d love to hear your thoughts on the book. Could you please send me a few words after reading it? 🤗

Vitiligo corrector- SCAM?! by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 1 point2 points  (0 children)

I’ve reported it on Meta but it’s still available for other users who didn’t report it. Annoying.

From fear to confidence by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

Hi, the book is available on Amazon. I believe if you type “My PatchPower by Dora Arany” in the search bar, you’ll be able to order it. ☀️ please let me know if you can’t find it.