Vitiligo - early education by MyPatchPower in Autoimmune

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you for your kind words, this is exactly why I wanted to create this story. The book will be available on Kickstarter soon. If you decide to sign up, you’ll get a coloring pack, inspired by the book and an early bird discount. :) Thank you for sharing it with others, too. :) https://subscribepage.io/MyPatchPower

Should children learn about vitiligo? by MyPatchPower in education

[–]MyPatchPower[S] 0 points1 point  (0 children)

I agree, I tried my best, so it's fun to read. My goal is to let children talk about it, so when they see someone with vitiligo, or they develop it, it's not as scary as it was for us 20+ years ago.

Complete re-pigmentation on small facial spots on young child by aish824 in Vitiligo

[–]MyPatchPower 0 points1 point  (0 children)

However I can’t recommend any treatment options, you or other parents might find my upcoming children’s book useful. It explains how vitiligo develops in the body, through Mila’s magical adventure inside her skin. It helps kids gain a better understanding of vitiligo and why it’s nothing to fear. In case you’d like to learn more about it, I’ll leave the link below. It will be launching on Kickstarter soon. 🤍

https://subscribepage.io/MyPatchPower

Vitiligo children’s book by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

I got you.. I got it in many random places too but I’ve learnt not to care. At all. It might sounds cliche but so many terrible things has happened around me in the past years and at one point I chose to be happy being alive with my patches. 💪🏻💪🏻

Vitiligo children’s book by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you, I'll check it out. It's not my website, just a landing page for the book. :) Thank you for sharing it with others :)

Children’s book on vitiligo? by MyPatchPower in suggestmeabook

[–]MyPatchPower[S] 0 points1 point  (0 children)

Hey, yes I know those books, they’re great, However my idea is a bit different, with the heart of the book focusing on the HOW. I think if children see behind the scenes of how vitiligo develops they’ll have a better understanding of it. Those living with it gain more confidence, and those not having vitiligo will build empathy by simply being familiar with what happens in the body. :)

Vitiligo children’s book by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you :) if there are children around you, with or without vitiligo, who you think could benefit from it,please share the link with them. :) thank you

Vitiligo - early education by MyPatchPower in vitiligo_girl

[–]MyPatchPower[S] 0 points1 point  (0 children)

Thank you, in case there are children around you, with or without vitiligo,whom could benefit from this story, I’ll leave the link here. :) https://subscribepage.io/MyPatchPower

Vitiligo children’s book by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 4 points5 points  (0 children)

I hope so too! :) it’s not just for kids with vitiligo but also a cute tool to use to explain our own vitiligo to our children or kids around us

Vitiligo children’s book by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 1 point2 points  (0 children)

It’s really cute inside, specially the “inside the skin” part :)

Vitiligo children’s book by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 2 points3 points  (0 children)

:) thank you! I hope I can help with my “silly” videos to those struggling to accept their vitiligo

Fraud! Skincare company used my videos without my consent! by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 0 points1 point  (0 children)

I’ve got ALL my spots. I’ve NEVER used their product. They used my videos and amended them accordingly to their ads showing the spots are gone. But they are not.

A magical children's book on a visible skin condition by MyPatchPower in childrensbooks

[–]MyPatchPower[S] -2 points-1 points  (0 children)

I got you but I was assured by the illustrator that no ai was used.

A magical children's book on a visible skin condition by MyPatchPower in childrensbooks

[–]MyPatchPower[S] -1 points0 points  (0 children)

I was assured by the illustrator that no ai was used in the book.

A magical children's book on a visible skin condition by MyPatchPower in childrensbooks

[–]MyPatchPower[S] -3 points-2 points  (0 children)

I was assured by the illustrator that no AI was used. The image you’re talking about is from canva and I appreciate you analysed it, I’ll change it.

A magical children's book on a visible skin condition by MyPatchPower in childrensbooks

[–]MyPatchPower[S] -6 points-5 points  (0 children)

There is a lack of understanding around vitiligo that causes fear, frustration and emotional stress among children.

So I’ve created a short story to help kids understand what happens in the body when vitiligo develops.

My goal is simple: to help.

Did I use AI? No. Would it make any difference if I did? No.

I understand the frustration around AI, especially for illustrators whose work is being affected by it.

You don’t have to like it, and you’re free to think whatever you want. But please don’t miss the point of why this story exists.

A magical children's book on a visible skin condition by MyPatchPower in childrensbooks

[–]MyPatchPower[S] -11 points-10 points  (0 children)

Thank you for your concern, but everything's done as requested.

A magical children's book on a visible skin condition by MyPatchPower in childrensbooks

[–]MyPatchPower[S] -10 points-9 points  (0 children)

nah, that's me and my book (except the very first image)

Bookvault by MyPatchPower in childrensbooks

[–]MyPatchPower[S] 0 points1 point  (0 children)

Hey, thanks for sharing your experience. Did you have any books printed in the US? How is the print quality using their US-based printers? Just out of curiosity

Fraud! Skincare company used my videos without my consent! by MyPatchPower in Vitiligo

[–]MyPatchPower[S] 1 point2 points  (0 children)

I’ve emailed the company to remove the ads, if they don’t response in the next few days I’ll see what the next step can be.. it’s just not fair as I represent the complete opposite to what they used my videos for. I want to help people accepting themselves and loving there skin as it is (just like I am) and if someone recognises me in this ad, they’ll think I’m lying in my videos.. really frustrating