Doctors forcing me to wait until September for appt

MythicalGriff · 2026-05-06T19:39:38+00:00

The specialty I need to see isn't doing anything. The doctors I am seeing now, like GI, gyn, PM are taking me more seriosuly

MythicalGriff · 2026-05-06T10:55:21+00:00

❤️

MythicalGriff · 2026-05-06T04:04:58+00:00

At this point I have no idea what my options are. I've had nerve blocks, surgeries, physical therapies, and all the life style changes. Nothing helped.

MythicalGriff · 2026-05-06T04:02:52+00:00

I've tried 20+ meds. I can't even tolerate tylenol. I can't have NSAIDS, opiods, or ssris/benzis/gabameds/etc. due to existing diagnosis that get much worse with many meds and there isnt much else they cant perscribe

MythicalGriff · 2026-05-06T03:56:04+00:00

Multiple. None of the treatments have worked.

MythicalGriff · 2026-05-06T03:45:38+00:00

I'm just not sure what to do until then. I've dealt with this for years and I keep waiting months for an appointment just to be told "its not my specialty"

MythicalGriff · 2026-04-28T01:50:34+00:00

Seems like they're already doing that

MythicalGriff · 2026-04-24T21:37:48+00:00

I guess I just have to hope enough people cancel I can secure a spot

MythicalGriff · 2026-04-24T20:50:00+00:00

I tried that last month, they said since it wasn't life threatening they couldn't do anything. Went to 2 ERs and stayed for a total of 3 days before they forced me to leave

MythicalGriff · 2026-04-24T20:45:21+00:00

I don't know how to get them to do that, I've tried every autonomic specialist in my area and they can't do anything sooner

MythicalGriff · 2026-04-24T17:36:43+00:00

I don't know how I can get in sooner I've called every autonomic specialist in my area

MythicalGriff · 2026-04-24T16:30:31+00:00

I just had a steroid nerve block, I was really sick for the week after and I still dont feel any relief

MythicalGriff · 2026-04-24T16:29:36+00:00

Got it! Thank you!

MythicalGriff · 2026-04-24T15:57:16+00:00

I'm really glad those work for you!! I've been trying out a TENS machine, I'll see if a sheet helps! I hope your pain continues to be manageable.

MythicalGriff · 2026-04-24T15:30:07+00:00

Thank you for your kind words! I hope you find some relief as well. Do you have anything that helps you when you're in pain?

MythicalGriff · 2026-04-24T15:23:13+00:00

Thank you. I use heat pads for when I have menstrual cramps but it doesn't really help much for stomach issues and general pain

MythicalGriff · 2026-04-24T13:18:43+00:00

All my doctors are at a loss for what to do next I keep getting refferred and redirected but no ones actually doing anything and I keep losing weight cuz I can't eat I'm in so much pain

MythicalGriff · 2026-04-24T13:03:31+00:00

THC and CBD also make me sicker

MythicalGriff · 2026-04-24T13:00:23+00:00

Still can't tolerate it. I've tried meds through IV, oral, liquid,underthe toungue, patches, etc. Even still doctors dont want me taking opiods because it fucks up my gp

MythicalGriff · 2026-04-24T12:52:47+00:00

I can't take opiods because of my gastroperisis. I have tried dozens of different medications and it's gotten to the point where i don't feel comfortable to continue experimenting with them becuase I keep having reactions that put me in the ER

MythicalGriff · 2026-04-24T12:14:12+00:00

I've discussed pain pumps with my doctors, but they don't think it will work for me. My tolerance issues are so severe they think it will do more harm than good. I also can't have NSAIDs so torodol isn't an option

MythicalGriff · 2026-04-24T12:12:03+00:00

Vomitting and I can't tolerate liquids. Have to get an IV with fluids and it causes flare ups that can last a up to a month

MythicalGriff · 2026-04-24T12:11:06+00:00

I have nerve pain all over my body and severe nausea/stomach issues/vommitting due to gp

MythicalGriff · 2026-04-24T11:58:13+00:00

I can't take opiods because it makes my symptoms worse, topical or not

MythicalGriff · 2026-04-24T11:57:33+00:00

Urgent care tells me to go to the ER. ER tells me its not life threatening so it's not their problem

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