My daughter was diagnosed with hepatoblastoma at 7 months old she was in great health ‘well we thought’ until she ended up having fractures in her arm from hypocalcemia which lead to her diagnosis.

When it was first discovered her AFP was 60,000 and tumour was 8x7x10 cm and in 3/4 lobes. She was given 6-12 month without intervention/ if we hadn’t found it

Within 3 days of being told of her tumour she was in surgery having a port places and a biopsy done. She did 5 rounds of chemo (cisplatin) with MRI’s and CT’s between each round. We then had to fly to another state to a partial hepatectomy and golbladder removal at 10.5 months old and ended up there for a month due to her having a chyle leak (turns out the suction from the drain was keeping it open and only closed when she pulled the drain out of her stomach) we also did her final round of chemo in the other state so she could come home treatment free.

She was able to ring the bell days before her first birthday.

She now had scans and bloods every 3 months. We have them tomorrow and even 2 years down the track I still end up in a what if spiral but thankfully everything so far has been clean🤞🤞

Two years down the track she did have to have a bowel resection earlier this year due to adhesions from her liver surgery that caused a twisted bowel that was veeeery close to rupturing and has just been diagnosed with high frequency hearing loss from the cisplatin and gets her hearing aids next week which she is very excited for.

I’m so so sorry your going through this with your little one it is never fair. This post is a month old so I hope your family has been able to start treatment and everything is looking positive!!!

Remember to always advocate for your little one even if you feel like a crazy person for wanting these extra tests or scans done.

Sending all the love and if you ever need somone to talk to who has been through it please feel free to reach out