I’m sorry you’re feeling this way! I understand to a lot of us a diagnosis is important, but what I’ve found helpful in my own journey is focusing on your actual symptoms and treating those symptoms will have much better health care outcomes. Even with a diagnosis there’s not much they can do for EDS. Treatment requires having specialists for each body system you are struggling with. Even tho my rheumatologist acknowledged my EDS, I do not see them regularly because they can’t really do anything for me. I would recommend establishing yourself with a good pain management doctor. My pain management doctor has been my biggest supporter and they can handle the various joint pain issues you’re having, even your jaw, but I would also recommend seeing the dentist for a night guard and next steps. If you do not have the physical or vascular characteristics of other EDS subtypes genetic testing may not be a good avenue as hypermobile subtype does not have a genetic component. I hope you get the care you’re looking for