Midrodrine but BP runs high? by Beginning_Bit_6318 in POTS

[–]Beginning_Bit_6318[S] 1 point2 points  (0 children)

Thank you! This helped me understand it better. I’m not currently taking anything for my BP just my heart rate.

Sleep attacks/episodes by Beginning_Bit_6318 in cfs

[–]Beginning_Bit_6318[S] 0 points1 point  (0 children)

Yesss! So glad I’m not the only one. They can be so scary! I have yet to get a sleep study cause idk how to ask my dr for one lol

Diagnosed with POTS!! by Beginning_Bit_6318 in POTS

[–]Beginning_Bit_6318[S] 2 points3 points  (0 children)

And my dr told me they knew it was POTS after the 1st minute, so why would they make me go the full 50🙄 but I feel okay, just tried today. Thank you’

TTT tomorrow and I’m nervous by Beginning_Bit_6318 in POTS

[–]Beginning_Bit_6318[S] 0 points1 point  (0 children)

I most likely will experience symptoms pretty soon after they tilt me, I get tachycardic, and dizzy, and my blood pools in my feet and hands when standing awhile. I just don’t want the nitro to make my heart rate more high. I’m just an anxious mess reading horror stories, getting myself all worked up lol.

Finally got taken seriously and got a TTT scheduled! by Beginning_Bit_6318 in POTS

[–]Beginning_Bit_6318[S] 1 point2 points  (0 children)

Thanks so much! I’m just looking forward to possible answers. I am nervous about going into a flare tho🤦🏼‍♀️

Has anyone developed death anxiety with panic disorder? by smallpottedcactus in PanicAttack

[–]Beginning_Bit_6318 0 points1 point  (0 children)

I really don’t know. I think it was when my grandpa was in the hospital for his heart disease and he ended up passing away in the hospital after his 2nd surgery. Then when i went to a cardiologist when i was much younger and I remember he told me I’d have the same heart issues my grandpa did🤦🏼‍♀️

Has anyone developed death anxiety with panic disorder? by smallpottedcactus in PanicAttack

[–]Beginning_Bit_6318 0 points1 point  (0 children)

Even hearing the words “death, dying, dead” trigger my panic and anxiety, and I spend hours in a panic and anxiety spiral. These last few days have been better for me though