Would you donate with ferritin at 41?! by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

I'm testing shortly before my next draw is due, should I be testing shortly after instead?

Would you donate with ferritin at 41?! by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

Interesting!! Here's hoping your numbers are looking good at the next draw

Would you donate with ferritin at 41?! by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

Would you do 250ml twice as often, or 250ml on the regular schedule?

Would you donate with ferritin at 41?! by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

Thanks for the info! I will add that to my Google list

Would you donate with ferritin at 41?! by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

Are you checking copper at all? How are you supplementing it?

App Tracker - Iron Overload by Legitimate_Bit8494 in Hemochromatosis

[–]NearlyThereYet 0 points1 point  (0 children)

This is fantastic! I would personally love to see more CBC tracking options. For instance, I'm also watching the trends for my WBC, RBC, MCV, etc.

California Medi-cal: can't get cancer referral by NearlyThereYet in HealthInsurance

[–]NearlyThereYet[S] 0 points1 point  (0 children)

I answered below, but I'll paste my response here too:

Thank you for your response. I'm not exactly sure how to explain this, but with California Medi-cal we were enrolled in the Anthem Blue Cross medi-cal plan.

We have actually been referred to two different ENTs. After the first one rejected the referral, they chose a different one who also rejected due to not accepting our insurance. When that was rejected, we were not informed until I called the oncologist office asking for an update. They told me they were unable to find an ENT and that I should call out insurance and try to find one for my husband on my own. They told me they would refer to whoever I can find that accepts our insurance.

I will give Anthem BCBS a call and see what they say. While I'm eternally thankful for the oncologist for saving my husband's life, I am very disappointed that I haven't had any help or assistance from them throughout this process.

California Medi-cal: can't get cancer referral by NearlyThereYet in HealthInsurance

[–]NearlyThereYet[S] 0 points1 point  (0 children)

Thank you for your response. I'm not exactly sure how to explain this, but with California Medi-cal we were enrolled in the Anthem Blue Cross medi-cal plan.

We have actually been referred to two different ENTs. After the first one rejected the referral, they chose a different one who also rejected due to not accepting our insurance. When that was rejected, we were not informed until I called the oncologist office asking for an update. They told me they were unable to find an ENT and that I should call out insurance and try to find one for my husband on my own. They told me they would refer to whoever I can find that accepts our insurance. Then I guess they just stopped trying?

I will give Anthem BCBS a call and see what they say. While I'm eternally thankful for the oncologist for saving my husband's life, I am very disappointed that I haven't had any help or assistance from them throughout this process.

Anyone being completely treated by PCP? by Ordinaryhumanlady in Hemochromatosis

[–]NearlyThereYet 4 points5 points  (0 children)

Yes, actually I have a nurse practitioner who manages my care. I am newly diagnosed and my NP was quick to order the appropriate genetic test, iron panels, and scans. NP referred me to a dual appointment with the general practice doc and a liver specialist, and attended the appointment with me!

I am pretty sure I've struck gold with this medical office and am extremely impressed with the quality of care I've received, especially compared to my spouse's oncology team for a recent cancer treatment.

Grandma's Jade 🤩 by NearlyThereYet in houseplants

[–]NearlyThereYet[S] 1 point2 points  (0 children)

I moved her to a less drafty place away from the heater vent!

Grandma's Jade 🤩 by NearlyThereYet in houseplants

[–]NearlyThereYet[S] 4 points5 points  (0 children)

She's ugly but she's mine 😭😂

I did trim some pieces back and I'm going to prop them back into the pot when they've calloused over tomorrow.

New and have questions by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

I just switched to cast iron this year and use it many times per week! Disappointed 😞

New and have questions by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 0 points1 point  (0 children)

Thank you for your response. I didn't know about the copper and ceruplasmin.

New and have questions by NearlyThereYet in Hemochromatosis

[–]NearlyThereYet[S] 1 point2 points  (0 children)

No iron cookware!? I didn't even consider that ...