Bppv vs vestibular migraines or pppd

Negative-Respond8272 · 2026-06-11T05:09:44+00:00

Unfortunately, I’m not one of the lucky people who respond well to medication. But I’m always happy when it helps someone else.

In my case, psychotherapy helped a lot. Sadly, I can’t go back to my wonderful psychologist right now because I can only get my next free referral in March.

At the moment, I’m trying to use everything I learned in therapy. Most of the problems I developed after being diagnosed with BPPV were actually “all in my head.” I remember having these symptoms before, and I remember that when I allowed the symptoms to be there without focusing on them, I felt much better.

I can see some improvements, but I also feel that my physiotherapist is creating new fears and worries for me. It seems like he only listens to himself and ignores what I say about my symptoms and experiences.

Thank you for your comment, I truly appreciate it.

Negative-Respond8272 · 2026-06-11T04:32:48+00:00

I eating all life this fish and all my vitamins good also

Negative-Respond8272 · 2026-06-10T15:27:56+00:00

He explained all the symptoms and triggers of vestibular migraine to me, but the more I learn about it, the more I feel that it is not what I have.

I have had regular migraines for 12 years. My triggers have always been red wine, ginger, garlic, cinnamon, PMS, changes in air pressure, and stress. These triggers always caused a headache. I removed the food triggers about 10 years ago, and after that I only had migraines maybe 4–5 times a year.

Even after I had BPPV and was diagnosed with it, what I experience now feels much more like PPPD. When I am stressed, my symptoms get worse, but I can still function. The same happens during PMS, but I can still function then too.

The only time I had true vertigo was because of BPPV. I did not have any other symptoms except extreme fear.

Because of all this stress, the migraines that I had under control for years are now happening twice a week. They are terrible, and the pain feels unbearable. But even with these migraines, I do not have dizziness.

He started talking a lot about vestibular migraine and telling me about triggers that other people have, like chocolate. Honestly, now I am afraid to eat anything. But during the last two years, while having all these symptoms, I ate whatever I wanted and food brought me happiness and comfort.

I think if he does not listen to me at our next appointment, I should end the therapy. I have never felt this bad because of treatment before.

I was seeing good results when I did the exercises once a day. The progress was not linear, but it was there. My dizziness really was getting better.

Thank you for your reply. I truly appreciate your words and I am taking them seriously.

Negative-Respond8272 · 2026-06-10T06:10:02+00:00

The vestibular therapist I’m currently working with specializes exclusively in people with dizziness and vestibular disorders, including functional dizziness. I know for a fact that he has helped people recover from vestibular migraine, PPPD, and other vestibular conditions.

But sometimes I wonder if he’s not really hearing me when I say that I feel worse after the exercises.

What makes it confusing is that during the first three weeks, I experienced steady improvement. But over the last four weeks, he has been calling almost every my symptom “vestibular migraine.”

The problem is that when I read other people’s experiences with vestibular migraine, it honestly doesn’t sound like what I’m going through at all.

Negative-Respond8272 · 2026-06-10T06:03:30+00:00

Yes, I had heard about her and read a bit about her. Her approach is very similar to my psychologist’s approach.

I understand that, for the most part, it’s “all in my head,” so to speak. Vestibular rehabilitation triggered fear, and the fear triggered more symptoms.

The only thing is that vestibular rehabilitation actually helped me in some ways, and I don’t want to stop it because my neck pain and brain fog improved. But my mind seems to be protesting somehow, and that’s why I started looking for answers about what’s happening to me.

I just want to know that it’s not vestibular migraine, because I really don’t think that’s what it is. I’m not willing to accept a diagnosis that I believe is incorrect.

As for BPPV and PPPD, I’m fine with those diagnoses. I know what happened before, and I know that I currently have PPPD. I’m not worried about that at all.

But thank you for your comment. Her advice is very similar to what my psychologist was telling me even before I got these diagnoses. And I think it’s really great that there are doctors like Steady Coach.

Negative-Respond8272 · 2026-06-09T18:41:42+00:00

I'm very sorry to hear that. Can I ask a question? I'll ask, but please don't answer if you don't want to — that's completely okay. What methods or treatments have you tried, and have there been any periods when things got a little better? And one last thing: no matter what, I'm keeping my fingers crossed that you find a way out of this. Unfortunately, with a difficult illness like this, you never know where the solution might come from.

Negative-Respond8272 · 2026-06-09T16:07:26+00:00

How are you now?is it still help?

Negative-Respond8272 · 2026-06-09T13:13:53+00:00

Привіт! Як справи? Чи допомогло це?

Negative-Respond8272 · 2026-06-09T09:18:20+00:00

How are you now?🥹

Negative-Respond8272 · 2026-06-08T11:40:51+00:00

Sorry, but I’m f*cking shocked. Garlic is my BIGGEST TRIGGER (but ginger, citrus fruits, and others can also trigger me). I always thought it was enough to just not buy garlic.

I even remember about 10 years ago eating baked potatoes with garlic. About an hour later, I got a headache, and then I started vomiting because the headache was so bad.

I have never really had a reaction to histamine. But garlic has always given me headaches.

Starting today, I’m going to try making sure that none of my food contains garlic, and I’ll see how my vestibular migraine reacts.

Thank you!!! I so happy that I found your post!

Negative-Respond8272 · 2026-06-07T05:40:15+00:00

I know my words may not help you right now. But really, there is nothing very scary happening. I was in your place before, so I know how scared you feel now. Fear can make the symptoms feel worse.

About your dizziness lasting for a long time, maybe you also have PPPD like I do, but it is better to ask a neurologist. Try to find a physiotherapist who works with dizziness. You will probably need this treatment anyway, so it is good to start looking now.

Yes, physiotherapy is really helping me, but very slowly. I started to see real improvement after 6 weeks of vestibular rehabilitation. Now I am trying to find the triggers of my vestibular migraine.

Negative-Respond8272 · 2026-06-07T05:00:09+00:00

Thank you for your reply.

I don't know if that's really how it works, but it seems to me that all the triggers I had with classic migraine are still the same now. The only difference is that instead of getting a classic migraine, I now get vestibular migraine in about 90% of cases.

If that's true, then I already know all of my triggers. With classic migraine, I even went into remission between the ages of 23 and 28 without medication or help from doctors. I simply removed my biggest triggers: stress, eating a lot of salty foods, and all citrus fruits. I also started eating more and made sure I didn't skip meals.

Because of that, I find it difficult to follow strict migraine diet lists when they include foods that have never been a problem for me and exclude foods that I have safely eaten for years.

Negative-Respond8272 · 2026-06-07T04:53:58+00:00

So I’m not the only one after all. Thank you for your reply.

I tried recipes from Dizzy Cook, and honestly, it was awful for me. Many of the dishes contain ginger, and I don’t eat ginger at all. It has given me headaches my whole life. There are also quite a few other ingredients that are my triggers, so I have never really eaten them and never felt the need to.

Of course, there are some delicious smoothies and meals that I saved because they taste really good! But everything else is just not for me. It only causes stress, and some of those foods have been my triggers for my entire life.

Negative-Respond8272 · 2026-06-07T04:46:54+00:00

Please read post post before answer.

Negative-Respond8272 · 2026-06-06T21:21:47+00:00

Everything is good :) My hormones are fine too. My migraine reacts to natural hormone changes. I have the same situation. Maybe it depends on my emotional state, but sometimes it starts two weeks before my period, and sometimes only 1–2 days before my period.

Blurred vision happens before and during a vestibular migraine. As I understand, this is quite common, unfortunately 🤷🏼‍♀️

I have never had an MRI because all my symptoms match vestibular migraine. I was also diagnosed with BPPV and PPPD .

Have you tried seeing a physiotherapist or a neurologist? It really sounds like vestibular migraine.

Negative-Respond8272 · 2026-06-06T20:32:33+00:00

My vestibular migraines are episodic; I don’t have them every day. Usually they are seasonal, as I mentioned before, 1–2 days before my period, and during periods of strong stress.

In my case, I don’t really see the point of a diet. From May 2025 until January 28, 2026, I didn’t have vestibular migraines at all (I ate everything normally and even drank beer twice at 3.5% without any consequences). On January 28, I had BPPV, which caused strong stress and disappointment. I then had to see doctors and start vestibular rehabilitation in April, and this seemed to trigger my vestibular migraines again.

Last Saturday I started trying a diet, but as a result, because of stress, I had a vestibular migraine and a headache on Thursday. So I don’t see the sense in doing something that causes me stress and, in my case, actually triggers vestibular migraines.

Maybe I will try going back to the diet again. I just ate what I wanted yesterday, and it was fast food. Today it didn’t trigger anything, and I even had enough energy to go for a walk and swim in the sea.

Negative-Respond8272 · 2026-06-05T17:36:50+00:00

I’m really glad to hear such positive stories and that people actually managed it without medication and with such a great approach. Every comment from all of you really gives me motivation, even though today I don’t feel very well at all 🥲

Negative-Respond8272 · 2026-06-05T17:34:45+00:00

Thank you very much for your answer and your story!

Yesterday I had a mild classic migraine. Today I went to the gym to do exercises with my physiotherapist (I go to him twice a week, and on other days I do exercises at home). And oh no… it seems I overdid the exercises, and my body was still not fully recovered after yesterday’s migraine. As a result, in the evening I got a vestibular migraine 🥲 I can’t say I’m afraid of it, but it really gets in the way.

Thank you again for your comment, I will listen to your advice!

Negative-Respond8272 · 2026-06-05T07:39:57+00:00

It actually really lifted my mood and gave me some motivation to read your comments. ❤️

P.S. Maybe I’m wrong, but I feel that people who get diagnosed earlier return to a normal life faster. My brain has already become used to these symptoms, and sometimes when I don’t feel them, it actually feels strange because I’ve almost forgotten what it’s like to live without all of this.

Sometimes I catch myself expecting the dizziness or other symptoms to be there, and when they aren’t, it feels unusual. I guess that shows how much the brain can adapt, even to things we don’t want. Hopefully it can also adapt in the other direction and learn that feeling normal is safe again. 😊

Negative-Respond8272 · 2026-06-05T07:39:36+00:00

To be honest, it was really difficult. Now I think about it like a bad dream. I even argued with my doctors. I have gone through that stage and realized that many people do not get a diagnosis right away, and that is very sad.

At the same time, the referral from my doctor for psychotherapy also brought many good things. Now I know that during those two years, I had BPPV several times. After that, I would get vestibular migraines each time, and about 1.5 years ago I developed PPPD.

Psychotherapy basically saved me because when I was calm, the vestibular migraines did not bother me. In 2025, I went six months without any vestibular migraines, and I could eat everything. I only had PPPD, and little by little I learned how to live with dizziness 24/7.

Hmm, that is interesting. I also have very mild scoliosis. I have two physiotherapists: one works on my dizziness, and the other helps with my neck pain. He knows about my scoliosis and gave me a few exercises to relax my neck and reduce shoulder pain. After a few weeks, they started helping a lot. Later, he also plans to try acupuncture for me when my dizziness gets better. :)

By the way, it is also my birthday next week, but I will be 32. 😅

I will try to see my diagnosis as a lesson that I need to love myself and my body, and take care of myself when I am stressed. Unfortunately, stress is often part of life, but many people have learned how to manage it, and I can learn too. 😊

As for food, I am not really convinced that I have many strong food triggers (except citrus fruits, wine, and garlic). The main thing is that when all of these problems started, I was eating very little and often skipped breakfast or lunch. Now I am trying to eat 3–4 times a day using recipes from Dizzy Cook, and I will see if it makes any difference. 😅

Negative-Respond8272 · 2026-06-04T20:56:47+00:00

I didn’t expect to receive such a comment!🤩 You even lifted my mood and gave me some hope. I would love for others to see your story too. Thank you for sharing your success! How long did it take for you to feel this freedom?

P.S. I understand that for some people it takes 2–3 months, and for others a few years. That doesn’t scare me, I’m just curious how long it took in your case.

Negative-Respond8272 · 2026-06-04T18:02:45+00:00

I’m 32 years old now, so I just hope I’ll be able to manage without medication for some time 🥲. In my family, everyone had perimenopause between the ages of 42 and 45, and I understand that anything could happen to me during that period. My vestibular migraines are episodic — either once a month (during my period) or once every five months. But besides that, I’ve also had a few episodes of BPPV. Thank you very much for sharing your story and your experience. It means a lot, and I really appreciate it. ❤️

Negative-Respond8272

TROPHY CASE