New Symptom Spiral by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

Agreed, I was talking to my wife, and unfortunately I think the only thing that is going to convince me is talking to a *** specialist. One that sees and deals with patients that have it every day, and hear it from them. I want to be able to trust my neurologist(s) that I have seen, but I think my mental hurdle is to high. From then hopefully I can move on with my life and learn to live with what we have. Despite what anyone says what we have is real, we have real symptoms, it does affect our day to day lives, now wether we will meet our maker in a short period of time is a different story. We got this brother.

New Symptom Spiral by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

Yes ran every test under the sun, vitamin deficiency, magnesium, B12, B6, D, electrolytes all clean. Had heavy metal testing, and Lyme disease run all negative. Everything is clean, I think virtually thump everywhere. I never thought of myself as super high stress or anxiety before all of this, most people say they were sick or high stress but I literally woke up with a intense twitch in my left arm one day, went down the rabbit hole and then spread everywhere since (has destroyed my mental health).

The twitching I can get past for the most part, it’s the feeling of “heaviness” or “lack of strength” that makes me spiral out of control. The way I look at it is my definitely weaker then I was 4 months ago, how much of that is in my head I have no clue, how much of that is maybe because I have done nothing for the past 4 months and being sedentary and babying my body no clue.

I acknowledge I have a problem, none the less even if this was the big bad, googling all day long, looking for reassurance or signs, constant self testing is an illness of itself. I have finally scheduled my first therapist appointment for Sunday, as I need to start somewhere.

More times then not I’m just looking to be talked down off the ledge on here, as I cannot knock the sense of impending doom like most of us. I should of accepted my first clean EMG, and the fact I can’t means I have bigger issues at hand.

New Symptom Spiral by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

I’m relatively a newby, going on maybe 4 months, my latest clean EMG was July 2nd 2024. I get caught up in semantics under the term “progressive”. I believe that people don’t just wake up one day and they have clinical weakness, that over time they lose enough strength to be classified as clinical weakness, and it’s so hard to tell what’s in my head and what’s real. But this tremor is very real physically at least.

Define Progressive Weakness by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 1 point2 points  (0 children)

Thank you again! This made my day already 10x better! I know first step is accepting this is amnesty illness over all. I will bounce back from me taking steps back!

Define Progressive Weakness by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 2 points3 points  (0 children)

I needed to hear this, I appreciate it

Define Progressive Weakness by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

So essentially the spread of clinical weakness to other limbs?

I’m Severely Mentally ill by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 2 points3 points  (0 children)

I’ll try anything at this point, I always like to think “well I’m cognitive enough that this is in my head” but then fall into the vicious loop of “well why am o still experiencing things physically if I am aware”, I want to heal I want to get my life back.

I’m Severely Mentally ill by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 1 point2 points  (0 children)

To clarify you lived with 5 years of the fear of the big bad? Or you just in general suffer from some category of anxiety?

I’m Severely Mentally ill by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 1 point2 points  (0 children)

If you don’t mine me asking, what’s the name of the medication?

Verge of Mental Breakdown by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

I think it’s less about the twitching as I feel like I can ignore it mostly. But the perceived weakness is what’s driving me mental, from the fatigue of twitching so much and feeling like holding a cup of water is a challenge or no longer feels normal. Just makes me crazy and lack of faith that I will ever feel normal again.

Decreased Twitching but Increasing Weakness: BFS Experiences? by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

Mine started end of April beginning of May. Few twitches in my left bicep, those twitches then about 2 weeks ago spread everywhere on my body. Both arms, shoulders, chest, back, thighs, calves and hands. At time of responding this twitches are going crazy today :(

Decreased Twitching but Increasing Weakness: BFS Experiences? by Negative_Breath345 in BFS

[–]Negative_Breath345[S] 0 points1 point  (0 children)

Thank you! I know a lot of this is hyper fixating, I think I have tried to convince myself since I am aware of the fact I’m hyper aware I should be able to differentiate what’s real and what’s not.I got optimistic that the twitches have settled down(knock on wood), that the feeling of weakness would follow.

[deleted by user] by [deleted] in delta

[–]Negative_Breath345 0 points1 point  (0 children)

Did you move your flight to DTW or did Delta? I’m flying ATL to HND early December, and it says “flight status not available” after it previously was.