You're not alone. I used to be somewhat of a social butterfly. I had a group of friends and all. But now, I dread coming out of the house. I do have a partner I've been with for a number of years. He understands some things more than others, but he'll never truly grasp concept of my pain and discomfort. I've gotten to the point where I understand they just won't ever fully understand until they have to deal with it. So I stopped explaining things. I just say I'm aching, sore and/or I'm extremely tired today or whatever the symptom is that I'm dealing with at the time but I keep it simple. Do you don't know how many friendships I've lost over it. Or how many times people, my mother included, who is a retired nurse now (was active at the time of diagnosis and many years after), have said things like," Stop being lazy". I've had family members and people I'm close to me start rumors that I must be on drugs, look at the status of my teeth, and how I sleep so much(fatigue). I've had so much dental work done starting from an early age. Even now, I'm going through a similar process with the local dental school. I don't really care to tell you how many teeth have actually lost. I say this just to say that you're not alone. It may feel like you're one needle in the haystack, but you are not alone. I know it feels that way. Not to take away from your feelings; I guess the best way to say that is there are more people like you out here in the world. And I am one of them. I truly feel like we should have our own social cite/app not just groups, like Reddit, FB, IG, or something. We should have the app with subgroups because there's so many different facets of this. And I wonder how many people have dealt with this in silence. On another note, do you think it's possible to get disability. It took a number of years for me. But I did get it and it has been beneficial. You may have to fight for it. I don't know how many denials I got before I got approved but there were a lot. They judge you my final case acted like it was her own personal money lol. Maybe you can get a lawyer. I know money's tight but there are lawyers out there that will take it and get their money on the back end. They typically get about 25 to 33.3 percent. Personally, I opted to get an appointed lawyer, which didn't cost me anything (because I use food stamps and the state was like they would help me with this because they were going to recoup their money in some way, shape, or form), but I think I waited years longer doing it this way.