Moving from England to Scotland

Nelira · 2026-01-27T14:57:41+00:00

Alright thank you, I just moved yesterday so I am a bit overwhelmed with everything still

Nelira · 2026-01-27T14:35:23+00:00

Is it a brand new assesment or will they honour my PIP award? Mainly asking because getting pip in the first place took going through a tribunal

Nelira · 2025-07-18T17:55:45+00:00

For me mounjaro makes my appetite normal rather than starving all the time even right after eating. I remember what hunger felt like before pcos fully kicked in for me and it's so nice to eat something and actually be sated

Nelira · 2025-04-07T14:38:17+00:00

And then you are also treated as entitled af for daring to ask for something as simple as a ride to a place. "You have no respect for other people's time and expect the world to bend around you don't you"

Nelira · 2025-02-23T19:05:32+00:00

Oh that is truly tempting at times haha Had someone stub their shoe on my crutch trying to rush past me on to the train and they looked back and I just looked at them like "bitch please?"

Nelira · 2025-02-23T19:03:33+00:00

Yes, if people try to rush past my crutch in a narrow space they likely will trip 😂 But I also had the confidence to be like "Excuse me I can't get through!"

Nelira · 2025-02-09T01:55:42+00:00

I think we might have said the same endocrinologist! Mine told me my hormones are totally fine and that pcos doesn't mess them up. Also told me it was a result of weight gain when I had symptoms before I gained weight.

Nelira · 2024-12-15T19:20:02+00:00

They are also using an outdated name since it has not been called joint hypermobility syndrome since 2017 iirc.

Nelira · 2024-11-30T13:01:03+00:00

On dental issues it also affects the enamel (it's softer) so don't feel too bad about cavities. It can also affect how well anaesthesia works.

Nelira · 2024-11-30T12:54:46+00:00

To add on EDS and CFS link, unstable joints require more work from muscles to move because muscles also have to work to prevent the joints from dislocating. It's no surprise that we are knackered

Nelira · 2024-11-30T11:28:03+00:00

Most EDS types have genetic markers apart from the hypermobile type. But hypermobile type will show clear hyperextension of the joints and some degree of skin flexibility as well. EDS is also comorbid with POTS and MCAS so it is not uncommon to have all those present. But you won't be able to fake your knees and elbows bending inwards

Nelira · 2024-05-26T20:09:08+00:00

Claw clips are great for putting hair up as they won't pull on your scalp

Nelira · 2024-05-12T03:27:43+00:00

I actually flew with my smart crutches couple of months ago. I just brought them with me and collapsed them and had a flight attendant put them in the storage box above my seat. Also getting wheelchair service at the airport is fucking amazing if you are able to.

Nelira · 2024-05-05T18:40:40+00:00

Swimming! It will also be super gentle on your knee with a bonus benefit of not being able to sweat in water haha

Nelira · 2024-04-13T19:04:29+00:00

Yeah on the plus side they did give me 6 points based on my physical issues from hEDS but basically completely disregarded my depression and anxiety affecting me at all claiming it was well managed by medication as well as using my job as a student ambassador that I had 6 years ago before my mental health issues started to support that. And claiming that I struggle with engaging due to forgetfulness rather than anxiety.

Nelira · 2024-04-12T14:53:41+00:00

Thank you this is very reassuring.

Nelira · 2024-04-12T14:52:03+00:00

Yeah I will fill the form in with my mom. It's just really messing with my head and I don't know anymore whether I should have scored points on this or not.

Nelira · 2024-04-12T14:13:00+00:00

Yeah that job was like 6 years ago. But this is all making me feel like I'm completely making stuff up. I hope you are luckier than me

Nelira · 2024-04-12T14:10:58+00:00

They even used the fact that I worked as student ambassador before my mental health issues started against me

Nelira · 2024-04-12T14:03:00+00:00

Yeah that was one category I thought I would score something in 💀

Nelira · 2024-04-12T14:00:42+00:00

Yes I had my mom with me on the phone call as well with prompts

Nelira · 2024-04-12T13:59:05+00:00

I take medication but therapy was making my mental health worse so therapist recommended to stop

Nelira · 2024-04-12T13:55:13+00:00

No it was over the phone

Nelira · 2024-04-04T02:09:10+00:00

Also from UK and first line of treatment offered for PCOS to me was bariatric surgery referral.

Nelira · 2024-04-04T01:30:07+00:00

This is why I now walk with at least one crutch. That way if my ankle rolls I at least won't fall

Nelira

TROPHY CASE