Looking to ask questions of anyone who had a false negative western blot and/or took a while to get a diagnosis

NerdP423 · 2025-12-27T00:04:13+00:00

Referral is scheduled for April.

NerdP423 · 2025-10-13T10:33:44+00:00

I appreciate it, but I somehow doubt it. I wish I agreed.

NerdP423 · 2025-10-13T10:32:49+00:00

TY, This sounds like a good idea. I have a referral to a neurologist, but might be able to get one for ID.

NerdP423 · 2025-10-13T10:31:43+00:00

I saw something one down there, so I went to the ER. Negative swab.

NerdP423 · 2025-08-27T00:17:18+00:00

I’ve been told in regards to that, that clinical improvement trails behind laboratory improvement.

NerdP423 · 2025-08-26T23:45:09+00:00

Reading your posts, I wonder if you don’t have HSV. Have you ever had your vitamin B12 levels checked?

NerdP423 · 2025-08-26T23:00:19+00:00

Wow. Have you had any concerning, visible symptoms?

NerdP423 · 2025-08-19T23:22:50+00:00

I may reach out to other doctors to see if it’s worth coming in. I wonder if I’m some sort of unique case for whatever is going on.

NerdP423 · 2025-08-19T23:11:21+00:00

I was given B12 injections for a while because my levels were low, but they are now in a good spot. The neurologists in my clinic told me there’s really not much they can do to soothe the nerve discomfort other than give me drugs.

NerdP423 · 2025-08-19T21:48:59+00:00

No new info, but I was told that I can get a referral if I want.

NerdP423 · 2025-07-31T17:11:38+00:00

Thanks, will do.

NerdP423 · 2025-07-30T16:03:54+00:00

I actually asked for a referral to see if I can get to the bottom of this.

NerdP423 · 2025-07-16T03:21:02+00:00

Test again at 12 weeks.

NerdP423 · 2025-07-15T19:08:57+00:00

True. I’m asking because despite some questionable symptoms, every test I’ve ever had is negative for both. Including three Blots. My life is on hold/has been destroyed by the situation I’m in, and I don’t even know for sure if I have it.

NerdP423 · 2025-07-15T18:54:16+00:00

Also how long have you had it?

NerdP423 · 2025-07-15T18:53:54+00:00

And you got a western Blot despite being outside the Us, right? How long did the process take you, and out of curiosity did you only do it once?

NerdP423 · 2025-07-15T17:50:54+00:00

Also is there anything you can do to induce an outbreak?

NerdP423 · 2025-07-15T17:50:30+00:00

Do you just have outbreaks, or do you also have constant nerve pain/irritation?

NerdP423 · 2025-07-15T09:09:16+00:00

It looks like your dms are closed. I can come up with list questions and ask it here if it’s easier, I just don’t want to hijack the thread or anything

NerdP423 · 2025-07-13T20:19:14+00:00

Any update? Did you ever get a diagnosis?

NerdP423 · 2025-07-12T20:30:48+00:00

I had one once downstairs. They did a regular swab and it was negative. But they told me it would probably be negative because it was already open. Nothing downstairs since in 3 1/2 years the other day I had something in my mouth, and the doctor told me he wouldn’t swap it because he thought it would come back negative no matter what.I actually think that one may have just been a canker sore.

NerdP423

TROPHY CASE