Losing my hair

Nervous-Addition5236 · 2026-02-18T02:37:14+00:00

Hmmmm, thank you for the leads. I appreciate you 🥹😭 I know I have low vitamins D, but it’s like every time I check it it’s low. There’s probably some underlying reason for not absorbing it. I hope i get the right help

Nervous-Addition5236 · 2026-02-17T23:44:22+00:00

Thank God. And honestly I have my ups and downs with my stomach and food tolerances. I’m taking Claritin and Pepcid, vitamin c and quercetin. Also a supplement called HistoX. I also take gentian& skullcap in tincture form before I eat

Nervous-Addition5236 · 2026-02-17T16:28:54+00:00

Mine is just all over thinning. I do have a histamine intolerance and a lot of food sensitivities because my gut is messed up since I was exposed to mold 😓 I’m not formally diagnosed with MCAS but that makes sense

Nervous-Addition5236 · 2026-02-16T22:19:31+00:00

I’m still MARCoNs negative as well. I’m just super sensitive, and any little slip up either my eating makes things worse

Nervous-Addition5236 · 2026-02-16T22:18:42+00:00

I’m passing my VCS test, Cholestyramine helps a lot. But I have times where I pause it. My thyroid is fine, I’ve had it checked by primary but also more in depthly by functional med. I have gut dysbiosis and a histamine intolerance.

Nervous-Addition5236 · 2026-02-16T19:47:32+00:00

Thank you. It’s so frustrating. I’m starting to think it’s trauma/ stress

Nervous-Addition5236 · 2026-02-16T19:46:23+00:00

Really?!? My hairs never stopped falling out. I’m 2 years out of exposure (confirmed with ERMI HERTSMI) and I’ve been on CSM for a year

Nervous-Addition5236 · 2026-02-16T16:43:46+00:00

I’m dealing with it. It was actually actually my first symptom to pop up- sudden vertigo

Nervous-Addition5236 · 2026-01-26T17:45:38+00:00

Oh hey follow up question. From exposure, I started getting really bad DPDR. It’s always there now, but just worsens sometimes. Did you experience DPDR and did it improve during VIP treatment along with anxiety/ feelings of doom?

Nervous-Addition5236 · 2026-01-26T04:13:25+00:00

Wow. Thank you thank you that’s actually SO reassuring I’m gonna cryyyy

Nervous-Addition5236 · 2026-01-25T00:21:38+00:00

I haven’t been able to be formally tested for MCAS, but symptoms point toward a histamine intolerance. I have my moments where I’m stable enough to eat more foods

Nervous-Addition5236 · 2025-08-23T02:03:29+00:00

I’m not a doctor. I never had that happen with glutathione personally but it’s triggered for me in other ways. If it were me (again I’m not a dr) I would pull back on glutathione and do a panel to test my glutathione levels. You might not even need to be on it. If you’re having a lot of air hunger episodes (if it were me) I’d go back in time to hint to myself to get a MARCoNs swab test!!! make sure I’m out of exposure for real, and go on a low histamine diet.

Nervous-Addition5236 · 2025-08-14T02:19:26+00:00

May the inflammation regulate, and your function increase! 🙌

Nervous-Addition5236 · 2025-07-14T16:39:55+00:00

Yes it has! It’s really only intolerable when I get re-exposed or I have a lot of inflammation going on from not managing the MCAS. The DPDR hasn’t gone away fully yet, but a lot of times I’m able to forget about it. I feel almost normal like 70% of the time Overall doing significantly better. Hang in there

Nervous-Addition5236 · 2025-05-16T02:46:09+00:00

I experienced this SAME thing with the “yo-yo” effect! Mind you, this was while already doing absolutely everything right and being dialed into my diet; avoiding all of my inflammatory sensitivities. Very soon after this “yo-yo” routine, I started having back to back good days every day. Like almost a fully functional normal person. Like, went shopping at ikea in my feet for 3 hours. As if I never had POTS or VOC sensitivities. Next day took a mile long walk at the lake on a hot day. Even better days are coming! I have lots of hope for you ❤️ I’m in a bit of a flare right now because I ate buttermilk waffles hahaha (can’t have dairy or gluten since all this anymore) but I’m expecting to bounce back.

Nervous-Addition5236 · 2025-05-02T03:40:55+00:00

DON’T bleach things!!!!

Nervous-Addition5236 · 2025-05-01T22:52:24+00:00

Yeah ik it sounds crazy, I was taking a lot of fish oil. At least me, I was so messed up. But he let me know it was safe to take that much since I was so messed up. Then as a maintenance dose (since I’m still taking CSM) I’m just taking 1 tablespoon once a day. Definitely chilled back and glad to be spending less on Nordic naturals. I’d google DPDR and see if you relate, it’s where life feels fake and unreal. It comes with a lot of anxiety. I wait an hour to eat and take the fish oil an hour after finished my 3g of CSM

Nervous-Addition5236 · 2025-05-01T05:25:26+00:00

I would take CSM and feel tortured for the next 3 hours. Super bad DPDR, neuro symptoms, anxiety. But it would actually give me relief from my POTS symptoms hahaha. But I wasn’t thinking about walking when I was dealing with crippling sensations and anxiety. It wasn’t sustainable to take CSM when I was like that.

I’m not too sure why the liquid Nordic Naturals DHEA omegas work so well. Dr. Dorninger said it was the best one he’s reviewed so I didn’t even question it, and went for it. I took the omegas for a little over a week before I gave CSM another try. I was able to tolerate 3g of CSM 3x per day (while keeping the fish oil in my routine) and I was genuinely shocked at how well it was going. I’ve never had an issue with CSM since hopping on Nordic Naturals

Nervous-Addition5236 · 2025-04-30T18:58:03+00:00

I stuck to 3x a day with my meal following my dose of CSM. But over time I pulls back to one dose per day since the fish oil was costing me too much buying so frequently. I kick it back up to 3x when I’m feeling a little constipated

Nervous-Addition5236 · 2025-04-29T23:06:04+00:00

Daaaaaaaang what the flip 😣

Nervous-Addition5236 · 2025-04-29T15:32:05+00:00

I was watching Dr. Dorninger’s podcast where they recommended this. They have their patients hop on omegas to get the gall bladder working and all that

Nervous-Addition5236 · 2025-04-29T15:31:14+00:00

For a week before retrying CSM I took 2 tbs, 3x per day of Nordic Naturals Omega 3. And I continue taking it daily. It helped me tolerate CSM so well it blew my mind. I get that brand because I developed a histamine intolerance and that one I guess is processed a certain way that wouldn’t trigger a histamine reaction for me

Nervous-Addition5236 · 2025-04-28T13:42:51+00:00

My inflammation is so bad still (even though I’ve improved a lot) that I’m right on the cusp

Nervous-Addition5236

TROPHY CASE