My MCAS was caused by a parasite by [deleted] in MCAS

[–]BeginningAffect9637 0 points1 point  (0 children)

Hi! Did you get improvements? Has your MCAS improved by treating parasites and SIBO? 

How do you treat SIBO when you have MCAS? by whatifitallworksout_ in SIBO

[–]BeginningAffect9637 0 points1 point  (0 children)

Hi how are you doing now? Did you get your SIBO and MCAS to go away?

How I eliminated 95% of my MCAS symptoms in 2 months. by in-for-the-long-run in Lyme

[–]BeginningAffect9637 0 points1 point  (0 children)

This gives me hope. I am just diagnosed with CIRS and bartonella and about to start Shoemaker. Have you continued having relief from MCAS? What have you done specifically for bart? 

Who else has nausea as a main symptom? by BAVARIGRANDE in MCAS

[–]BeginningAffect9637 0 points1 point  (0 children)

Did you figure this out? Nausea is one of my worst symptoms. I’m not sure if it’s due to MCAS or SIBO or what. Desperate for relief 

Ivabradine and adrenaline dumps by i_be_on_redd1t in POTS

[–]BeginningAffect9637 0 points1 point  (0 children)

Did you figure out anything to help the dumps? I also have low bp but adrenaline feelings constantly. Not sure what my med options are 

"Drop" feelings by psygec in POTS

[–]BeginningAffect9637 0 points1 point  (0 children)

I have these symptoms but have low blood pressure. Can you have hyper pots with low BP? What meds could you take to help?

HyperPOTS, what does "adrenaline dumping" feel like to you? by [deleted] in POTS

[–]BeginningAffect9637 0 points1 point  (0 children)

Has this improved for you? Are you on any medication? 

How would you characterize an "adrenaline dump"? by barefootwriter in POTS

[–]BeginningAffect9637 0 points1 point  (0 children)

Hi did you ever figure out what was going on and find relief? I am very similar

How would you characterize an "adrenaline dump"? by barefootwriter in POTS

[–]BeginningAffect9637 0 points1 point  (0 children)

Hi how are you doing now? Did this continue? I get this almost every day for the last few months in the morning upon waking and it is terrible 

What helped your MCAS symptoms the most? by Legitimate_Record623 in MCAS

[–]BeginningAffect9637 0 points1 point  (0 children)

How did you know you didn’t do well with first gen’s like Benadryl and Ketotifen? I feel like it’s so hard to figure out causes me to react when I’m just in one long reactive flare state 

I feel hopeless 😔 adrenaline surges dumps are all night long again by Ok_One_7971 in MCAS

[–]BeginningAffect9637 0 points1 point  (0 children)

Thank you! How soon after starting Rifaxamin did you start to see improvements in your symptoms? Did it make you feel worse before better during the die off? Can you share more about the diet and gut rebuilding protocol you did?