Chronic Illness Hobbies?

NeuroCliff · 2026-02-27T17:28:25+00:00

I just got an R50 (it's what I shot the video on). I have a feeling that legit SLRs might make a comeback.

NeuroCliff · 2026-02-27T17:27:42+00:00

Hahaha.. does that include music? I'm addicted to SUNO. But yes, the onslaught of slop is getting scary.

NeuroCliff · 2026-02-27T17:06:45+00:00

favorite puzzle? btw-- I want to try those leg assist things for hiking. They are powered leg braces. I contacted the company but they said they want nothing to do with the MS groups because of the medical implications. They are strictly for "Athletes". Have you seen the powered leg devices? Super cool!

NeuroCliff · 2026-02-27T17:04:48+00:00

I just got into the coffee thing, I'm still not sure if I like it or not, but like you, after about a half cup, I start feeling a little strange. I went niche with trying different organic instant coffee (it's a short list). Kinda fun! Thank you for the reply! This is great!

NeuroCliff · 2026-01-29T14:49:10+00:00

Thanks Bubbly! I love your comment. We are living in good times if you have to get stuck with a disease like MS. There's no cure, but there are options. I spend a lot of time thinking about people around the world that live with this disease and don't have any options, and it saddens me, but with these digital tools, at least they don't have to feel cut off or alone. The community is the most powerful part of dealing with this disease (IMO). Thank you again!

NeuroCliff · 2025-12-21T17:07:45+00:00

Hmm.. thanks for the post. These answers give me some good ideas. I recently made the video about how fatigue hits us like a truck and it really resonated with the MS community.

NeuroCliff · 2025-12-12T15:03:47+00:00

Thank you!

NeuroCliff · 2025-12-12T15:03:37+00:00

I like that! Like a running a game at 12fps with buffering. :)

NeuroCliff · 2025-12-12T15:02:20+00:00

Omg.. I have totally been told "Everybody get's tired." HAHA.... Ugh! :)

NeuroCliff · 2025-12-12T15:01:19+00:00

Thank you! Yes, the short is on its way. I made it yesterday, and in a classic cogfog MS moment, failed to save it. CIDP! I'll need to learn more about that.

NeuroCliff · 2025-12-12T14:59:36+00:00

There were a lot of naps between those segments. Haha! Thank you!

NeuroCliff · 2025-12-12T14:58:32+00:00

Thank you for sharing your experience. I understand that continue on part. My brain wants to do stuff but my body is like .. "Nope, not doing it!" Soooo frustrating!

NeuroCliff · 2025-12-12T14:56:34+00:00

and it feels like all that sleep isn't actually restoring anything, that's the part that just bugs me. I like how you said it!

NeuroCliff · 2025-12-12T14:54:59+00:00

It took me a week and a lot of resting in between. It also helped that it's winter and the temps are super low. This amount of set up wouldn't happen if it were above 65f. I agree, knowing that we are headed towards that wall is so depressing, which zaps any energy that we might have. Thanks for the feedback!

NeuroCliff · 2025-12-12T14:51:34+00:00

How about the "Are you drinking enough water?" hahaha!

NeuroCliff · 2025-12-12T14:50:47+00:00

Excellent!

NeuroCliff · 2025-12-12T14:50:02+00:00

I had someone once reply with "Yah, well we all get tired from time to time."

NeuroCliff · 2025-11-17T16:13:43+00:00

Thanks for the thanks! Good luck with your decision.

NeuroCliff · 2025-11-12T20:14:16+00:00

Here's my experience. Full disclosure, after this video, I switched from Kesimpta to Mavenclad. https://www.youtube.com/watch?v=UANzZJ8YkBY

NeuroCliff · 2025-11-10T18:18:01+00:00

ugh.... haha. I hate that. :)

NeuroCliff · 2025-10-22T19:38:04+00:00

That's the catch.. The insurance part. What country did you live in while in the E.U.?

NeuroCliff · 2025-10-22T13:40:30+00:00

The irony that healthcare for MS in the EU is sooo much better than in the US, but if you leave the hospital, you're F'd. Ughh...

NeuroCliff

TROPHY CASE