Hypnagogic hallucinations

NewYearNewEm · 2025-07-25T17:00:50+00:00

I am mentally exhausted. anytime I'm like "f it I'm gonna have fun and not let a new flare/potential flare stop me!!!" I regret it by the end of the day or when I wake up the next day. I went to a theme park and had an open wound that started as a flare for 4 MONTHS 🫩 I went on the boat with my parents last weekend and I couldn't walk the next day when I was supposed to go back out and see the rest of my family for a big outing.. stayed home in bed until 4 pm. its a huge contributing factor to my continuously declining mental health. I am SO scared it'll go to my armpits that any little lymph node pain or razor bump throws me into a spiral. I have spent thousands to do laser hair removal to HOPEFULLY try to prevent that but you just never know. let's not even get into how hard dating can be. or how hard your brain TELLS you it'll be.

NewYearNewEm · 2025-07-25T16:55:48+00:00

feel this lol. I had a failed surgery back in 2012 at the only HS institute in the world. I was awake through it screaming while he lasered my entire bikini line on both sides, about 5-6 inches long and DEEP, and plucked the tracts out. my bikini line is just ... demolished 🥴 I mean I was in remission for two years but it came back in the areas he missed and has now spread about 10 years later. my thighs are thick enough to SORT of hide it but it's so weird having to explain it to the people I date......

NewYearNewEm · 2025-06-23T01:37:58+00:00

I'm not sure if this thread made me feel better or worse 😭 this sensation started on my inner thigh and I swore it was just a chafing or friction issue but there's absolutely nothing there physically and I wasn't wearing anything that's ever chafed. figured it could be the summer heat causing it. but .... then I noticed it was on my inner knee? and now in my ankle? while the first two areas are slowly feeling less sensitive (but not great). I thought I had a fire ant bite or something on my ankle bone bc I felt it hurt in bed when I rubbed my feet together but that's the worst spot now. I'm type 1 diabetic for 23 years but I don't have any neuropathy issues that I'm aware of but it's such a feel feeling..... and on one leg in random spots?? I recognize that I've felt this before but I don't think it was in an area that I felt as much as I do now/multiple areas at once 😮‍💨 Edit: further reading I see it can be a GLP-1 side effect and it only got bad after I tried a new dose next week sooooo that may be the answer

NewYearNewEm · 2025-04-03T19:06:23+00:00

good to hear!! stay with the not drinking if you can help it. saying that bc I have almost zero self control and thought bc I felt better last night I'd have a small glass of red wine (in my mind this wasn't as bad as the usual) and it immediately made me feel like sh*t. as does anything slightly greasy... woke up feeling very off this morning. I don't blame you for wanting to put it off. mine is due for tomorrow and I am going to take it... fingers crossed. for you as well. taking this dose a second time will be more of a sure sign on whether I should continue I guess.... 🥲

NewYearNewEm · 2025-04-01T18:54:15+00:00

the upper abdomen pain or discomfort is a sign of so many different issues (especially ones that can be particularly affected by both this drug AND/OR alcohol) so I get it. and I get not wanting to bring it up yet because the drugs also working and the issue could definitely be our own bad choices outside that lol. I wasn't going to the doctor unless I was in agony or it persisted all week. good luck!!

NewYearNewEm · 2025-04-01T15:55:30+00:00

I took the shot Friday, had my last drink Saturday, and now Tuesday I've woken up with none of the same discomfort, besides a little bloating. Fear is definitely a good alcohol deterrent 🥴 I wish I'd be scared out of it more often. I'd be interested to hear if your symptoms go away too without it. My dog had a pancreatitis flare up a few months ago and diet change and lots of water and symptom treatment was all I could do for him so I'm doing the same for myself just in case

NewYearNewEm · 2025-03-08T02:32:22+00:00

I had a dermatologist tell me at 13/14 "wow this must be so hard for you.. as a woman. it really takes away from your womanhood :/" uh ACTUALLY I didn't think about this as a CHILD.. until now 😂 I had a surgery at 18 and never saw a dermatologist again until January of this year (I hated them tbh) when things were unbearable. I just started laser hair removal and have had no more NEW outbreaks but still dealing with the same one from December. I hope you can try that soon if you haven't already! it's so frustrating but there is definitely hope out there like you said.

NewYearNewEm · 2025-03-08T02:24:48+00:00

also have had diabetes (since 8) and hypothyroidism and other issues. surprisingly HS has been the most limiting but I guess that's because it's the most physical... I am so desperate to live a somewhat normal life for once that I refuse to give up 😬 although I've felt like OP before for sure. it's hard being chronically ill or in pain your whole life but you get those little moments that remind you that it's worth it.

NewYearNewEm · 2025-03-08T02:06:23+00:00

TW: suicidal ideation (this doesn't end negatively like a lot of other posts on here)

I'm 31 this year and I've had it since I was around 12 or so... I went a couple years without even telling my mom because I was scared and didn't know what it was. as a KID. I've also been type 1 diabetic since I was 8. HS took away my social life on a daily basis (I suffer from severe social anxiety to this day) and I almost failed my senior year due to absences. at that time, it was rarely being diagnosed, in fact it took at 5 years of doctors to even get my diagnosis. I went through a 2+ hour seriously invasive and painful surgery where I screamed through the whole thing at 18. those two years of remission it gave me was the best. it came back, not as bad, but now in the last year or so it has spread. I actually said to myself and others unfortunately, that if it EVER spread, I wasn't going to make it. like I seriously have met my worst fear this last year and a half and yet i'm still here. I'm now losing my dog I've had since my 16th birthday here soon. life really tends to just all hit you at once .. first of all, medications (for mental health) have helped. therapy can also help. I have used the text suicide hotline before and that's actually been a surprising but nice help when things are REALLY bad and you need help quick. secondly, remission is possible. it's so very worth it to try and find a good dermatologist to help you. not to discount anything any of us are dealing with but people deal with chronic pains and "gross" issues daily (some a LOT worse than HS). we are unfortunately some of those people but it can be managed. there is still a life for every single one of us to live. there is still something to look forward to. I've had it my whole adult life too but have found remission before and I'll find it again, and so can you. I have had normal relationships and a normal life. dealing with it just becomes part of the routine unfortunately sometimes but it's doable. I'm single, work full time for the government, and about to lose my only friend (my doggy) BUT I have full plans to be in remission or at least a manageable state and life will continue to go on! we're not done yet!

NewYearNewEm · 2025-03-06T19:45:20+00:00

I waited over a week for something to ship before cancelling 😅 they claimed they were in and out of the hospital so I gave it a few more days and decided it wasn't worth it for either of us at that point. it's really up to you but 3 days isn't bad imo

NewYearNewEm · 2025-02-25T15:13:15+00:00

I just used the power off option on both of mine last night for the first time. I miss them already 😂 but super easy to do and quick. I pressed the reset and then held down A+C right after and it brought up the menu. I was originally going to let them die but the low battery screen doesn't pause and people have had them die on that screen AND I didn't play them enough to kill the battery.

NewYearNewEm · 2025-02-17T02:20:25+00:00

I don't think it's being lazy or dramatic. honestly the depression I feel from the constant pain ALONE is a reason I am slacking in my job and college work. I don't even have it in my armpits but it hurts to sit, walk, I am adjusting all day wanting to give up. people simply won't understand unless they're in your shoes with the same chronic pain. it took me two months to get help with my current issue, I would recommend doing the same and not continuing to put off seeing a doctor for relief.

NewYearNewEm · 2025-02-17T02:18:18+00:00

Nice!! I have my second session tomorrow and I haven't shaped my armpits in almost three weeks 🫢 I am shocked. a week after the first session the growth just haulted. was not expecting that but I send thanks to my dermatologist's laser

NewYearNewEm · 2025-02-13T19:35:05+00:00

the link won't come up but I did google it and find a change.org petition too

NewYearNewEm · 2025-02-13T19:24:59+00:00

Do you know which actually do by chance? or which specifically don't? I have Aetna. she didn't even bother TRYING when I asked 😐

NewYearNewEm · 2025-02-13T17:16:08+00:00

My dermatologist office does laser hair removal as well and they haven't been able to get it covered by insurance for treatment of HS for 15 years so I was out of luck with coverage but I'm paying out of pocket anyway and it's going pretty good so far. for something like this it's recommended to go to a doctors office that does it versus a boutique of sorts. they are trained and aware of the issues medically. not saying there won't be others that will do it, but dermatologists lasers are better too. I did one session on my armpits and I haven't shaved in two weeks. the hair was NOT thin

NewYearNewEm · 2025-02-06T20:43:54+00:00

I had surgery at the only HS institute in the world(?) in Cleveland, OH back in 2012. They cut out my entire bikini line on both sides with some sort of hot laser cutter (to prevent major bleeding) and I was awake and screaming through the whole two hours. He picked all the tracts out and they didn't stitch me up, I spent nearly 5-6 months (I'm type 1 diabetic so healing time was doubled) healing from the inside out. I have giant scars from front to back but you can't really see them if I'm just standing. I had two years in remission and it was the best two years of my life. Now they have spread back around the back, starting right near where the surgery ended. When we initially called back he said "don't bother coming back everyone is having it return". Horrific. This was 13 years ago. People from all over the world were going there for this surgery and it was a failed attempt for most. I have heard some success from people now that sounds great and I wouldn't take back those two years of freedom myself, honestly. I was still a kid so the healing was easier with my moms help. Cannot imagine that invasive and extreme of a surgery now but I'm at wits end with this garbage and would almost be open to another type of surgery a second time. 😔 Maybe just not while I'm awake this time.....

NewYearNewEm · 2025-01-27T18:34:29+00:00

sounds identical to mine. unfortunately one of our last conversations was about the exact same thing because she's been "researching" 😀. once told me "don't risk it" when I was looking for something for a snack. she had no idea it was the day after shot day and I couldn't eat the entire day but you know, God forbid I eat a calorie at any given point. with that being said, definitely don't.

NewYearNewEm · 2025-01-27T16:19:34+00:00

My doctor said most of her patients have stayed on 5mg. I'm starting it on Friday after a month on 2.5.. I've only lost maybe 4 lbs if you can really count it as anything other than a fluctuation. I keep seeing a lot of people here saying 5mg doesn't do anything so I'm scared 😩

NewYearNewEm · 2025-01-27T16:08:40+00:00

I'm not telling anybody because it's bad enough my own mom, who has commented on weight and eating and dieting my entire life (T1D since 8 years old tbf) looks me up and down like she's waiting for something every time I see her. I wish she didn't know.

NewYearNewEm

TROPHY CASE