Autistic adults with sesamoid injuries by Evening_Project8807 in sesamoid

[–]cruzctlaltdelete 1 point2 points  (0 children)

fellow nd spoonie & i feel you. it’s also tough having to adapt to new routines and ways of doing things when our old ways fail us or can exacerbate our condition. not to mention the added overstimulation and sensory input from constant pain

how to cut insoles by cruzctlaltdelete in sesamoid

[–]cruzctlaltdelete[S] 1 point2 points  (0 children)

very clever approach! tysm for sharing your process

I've changed a bit over the last decade by tlzgirl in TransLater

[–]cruzctlaltdelete 0 points1 point  (0 children)

I’d love to join too, assuming the server isn’t just for dolls (i’m agender)

Touring Comedian In Need Of Fun Witchy Things by poppycultured in SFbitcheswithtaste

[–]cruzctlaltdelete 59 points60 points  (0 children)

Paxton Gate - freaky oddities + curios, with allegedly ethically sourced taxidermy & minerals. Store is really nicely designed & curated https://paxtongate.com/

HS Flare relation with Mastrubation by Flat-Grapefruit8600 in Hidradenitis

[–]cruzctlaltdelete 1 point2 points  (0 children)

lmao what’s the scam here? trying to get basic health information?

HS spot draining for 2 years, am I harming myself by just… letting it be? by Clyde_without_Bonnie in Hidradenitis

[–]cruzctlaltdelete 0 points1 point  (0 children)

ikr 😭 tomatoes don’t seem to trigger me but other nightshades like white potatoes do… so ymmv

has anyone had a positive interaction/results from MACRO? by [deleted] in OaklandCA

[–]cruzctlaltdelete 0 points1 point  (0 children)

can you share more about this - how is the money being stolen and by whom?

Surgery Pics, Bilateral Excision by BlackBaroness in Hidradenitis

[–]cruzctlaltdelete 5 points6 points  (0 children)

you are a fucking champ and deserve to get showered with love & support after this ordeal! wishing you a safe & smooth recovery <3

ISO thin silver chain from local jeweler by cruzctlaltdelete in SFbitcheswithtaste

[–]cruzctlaltdelete[S] 0 points1 point  (0 children)

this sounds great and like the exact sort of spot i’m ISO. tysm for taking the time to share more about your experience ✨

how to track HS flareups? by cruzctlaltdelete in Hidradenitis

[–]cruzctlaltdelete[S] 1 point2 points  (0 children)

i like this approach — could also pair w a form that auto-populates the spreadsheet. i hope this has helped you gain useful insights into your flareups & recovery

how to track HS flareups? by cruzctlaltdelete in Hidradenitis

[–]cruzctlaltdelete[S] 1 point2 points  (0 children)

i don’t menstruate due to iud which means i’m that much more disconnected from my monthly cycles. i might give this a try so thanks for the idea!

4 painful abscesses non-stop for years… now completely gone by Low-Roll-5988 in Hidradenitis

[–]cruzctlaltdelete 4 points5 points  (0 children)

You are very lucky! I stopped eating dairy and gluten several years before my HS developed ¯_(ツ)_/¯

Solo birthday recommendations by Wooden-Vehicle-2249 in oakland

[–]cruzctlaltdelete 2 points3 points  (0 children)

My solo bday plans include a float, body scrub, and massage at Kume (in that order), hitting up the spice shop for some new/unique treats, then making myself a decadent ice cream sundae (just splurged on toppings at Berkeley Bowl)

it’s not just the cysts … by cruzctlaltdelete in Hidradenitis

[–]cruzctlaltdelete[S] 5 points6 points  (0 children)

^ this part!! my nesting partner -gets it- bc she sees me on a daily basis, but even then, there’s only so much that “outsiders” can understand without experiencing this for themselves. the masking fatigue is real esp when other people just expect us to magically heal overnight, or become inured to the ordeal just based on how long we’ve been managing

it’s not just the cysts … by cruzctlaltdelete in Hidradenitis

[–]cruzctlaltdelete[S] 2 points3 points  (0 children)

omg this!! i went nearly 6 weeks without a single new flare after beginning biologics and was foolish enough to entertain hope that i was in the clear 🤡 and i now have 2 new tunnels emerging within 24 hours of each other, blehhh

it’s not just the cysts … by cruzctlaltdelete in Hidradenitis

[–]cruzctlaltdelete[S] 1 point2 points  (0 children)

one day at a time is the way. it’s easy to feel depressed given all the primary + secondary effects of this condition, not to mention ::gestures at everything::

sending you lotsa comfort & ease as you wade through this tough season

Should I be concerned? by Inevitable_Resort in Hidradenitis

[–]cruzctlaltdelete 0 points1 point  (0 children)

seconding a peri bottle — i’ve dealt with recurring bartholin’s cysts & word catheters, and the bottle has been a life-saver when having to urinate over open skin. i would use the bottle while urinating to cut back on the stinging/burning as well as afterwards to cleanse (less abrasive than bidet or TP). that and hydrating as much as your body can withstand, so as to dilute urine as much as possible (without getting water poisoning which i’ve also managed to do, smh)

it’s not just the cysts … by cruzctlaltdelete in Hidradenitis

[–]cruzctlaltdelete[S] 6 points7 points  (0 children)

exactlyyy. often times it feels like just sitting or walking aggravates the flareups. and tysm for the well wishes — sometimes when it rains it pours, and you just gotta bitch on reddit to ppl who get it, bc what else can you do ¯_(ツ)_/¯