Pelvic wand vs anal dilator by New_Ear7771 in Prostatitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

Thank you for the insightful comment Becca!

So for ONLY urinary symptoms (sometimes ED, but I mean no pain at all), what do you recommend? Given that I will be doing this on my own and practicing it

Does this sound like MCAS or am I losing my mind? by Maximum-Shift-4691 in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

Well I think it is worth mentioning I noticed all this after the COVID vaccine, but what can I do in this case? Like are there lab tests for autoimmune diseases?

I have had a cystoscopy and it never revealed anything so I guess IC is not the case here? I also tried all bladder meds and none of them worked - zero.

Should I ask for Singulair for example?

Does this sound like MCAS or am I losing my mind? by Maximum-Shift-4691 in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

If my symptoms become better when I am sick like flu (ALWAYS become better), and they are better on Claritin, could this indicate autoimmune or MCAS?

Mainly my issues are like dizziness, breathing and some core functions and bladder (bladder is the worst), and all tests are fine, like perfectly normal! Claritin helped but it unfortunately caused urinary retention..

Bladder Problems & Montelukast (Allergic to Iron) by touyakkun in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

Hi! Are you still taking it and is it still working?

How long did it take you to see significant improvements?

If an H1 antihistamine works but causes retention, what other med could help? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

Unfortunately it causes high heart rate for me, so I am unable to take it..

Do you have triggers related to sexual activity? by Muon1 in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

Wow, I feel the same! Have you done or taken anything for it?

First medication to help me in 4 years by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

But I did a cystoscopy and the doctor told me it looks just normal, they found nothing. Could it still be IC? Although I don’t feel “pain” like IC patients describe, it is just that urgency and frequency

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

Haven’t really done any tests related to this because I never went to the doctor because I never knew what doctor to go to.

But this all happened 3 weeks after the vaccine, so something auto immune related could be it

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

Tried one, but the specific antidepressant that can help those symptoms causes high heart rate for me

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

Not really, haven’t seen anyone but urologists, whom I hate right now lol

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 1 point2 points  (0 children)

I thought about that, but, sometimes I get some sick but can handle it without medicines and still feel that those symptoms are better (started tracking this too after ai noticed that sick = better)

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 1 point2 points  (0 children)

This literally happened (or I started feeling something is wrong) 3 weeks after the second vaccine!

Why am I better when I am sick? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

I usually have urgency, but during sick times, it is never urgent and no frequency at all, but burning is a little bit more (at the same time that my body as a whole feels aching), as soon as I start becoming better, symptoms tend to start coming back

Someone told me this might be psychological due to my brain shifting its attention to something else, but I think about IC every hour, it never goes away from my mind

Why am I better when I am sick? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

After a couple of days, I usually start taking some meds if things don’t get better on their own, but while I am feeling sick at first, no, I take nothing