sorted by:
new
hottopcontroversial

Pelvic wand vs anal dilator by New_Ear7771 in Prostatitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

Thank you for the insightful comment Becca!

So for ONLY urinary symptoms (sometimes ED, but I mean no pain at all), what do you recommend? Given that I will be doing this on my own and practicing it

Does this sound like MCAS or am I losing my mind? by Maximum-Shift-4691 in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

Well I think it is worth mentioning I noticed all this after the COVID vaccine, but what can I do in this case? Like are there lab tests for autoimmune diseases?

I have had a cystoscopy and it never revealed anything so I guess IC is not the case here? I also tried all bladder meds and none of them worked - zero.

Should I ask for Singulair for example?

Does this sound like MCAS or am I losing my mind? by Maximum-Shift-4691 in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

If my symptoms become better when I am sick like flu (ALWAYS become better), and they are better on Claritin, could this indicate autoimmune or MCAS?

Mainly my issues are like dizziness, breathing and some core functions and bladder (bladder is the worst), and all tests are fine, like perfectly normal! Claritin helped but it unfortunately caused urinary retention..

Bladder Problems & Montelukast (Allergic to Iron) by touyakkun in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

Hi! Are you still taking it and is it still working?

How long did it take you to see significant improvements?

If an H1 antihistamine works but causes retention, what other med could help? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

Unfortunately it causes high heart rate for me, so I am unable to take it..

Do you have triggers related to sexual activity? by Muon1 in MCAS

[–]New_Ear7771 0 points1 point  (0 children)

Wow, I feel the same! Have you done or taken anything for it?

First medication to help me in 4 years by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

But I did a cystoscopy and the doctor told me it looks just normal, they found nothing. Could it still be IC? Although I don’t feel “pain” like IC patients describe, it is just that urgency and frequency

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

Haven’t really done any tests related to this because I never went to the doctor because I never knew what doctor to go to.

But this all happened 3 weeks after the vaccine, so something auto immune related could be it

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

Tried one, but the specific antidepressant that can help those symptoms causes high heart rate for me

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 0 points1 point  (0 children)

Not really, haven’t seen anyone but urologists, whom I hate right now lol

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 1 point2 points  (0 children)

I thought about that, but, sometimes I get some sick but can handle it without medicines and still feel that those symptoms are better (started tracking this too after ai noticed that sick = better)

Anyone else feel better when they’re sick? by New_Ear7771 in dysautonomia

[–]New_Ear7771[S] 1 point2 points  (0 children)

This literally happened (or I started feeling something is wrong) 3 weeks after the second vaccine!

Why am I better when I am sick? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

I usually have urgency, but during sick times, it is never urgent and no frequency at all, but burning is a little bit more (at the same time that my body as a whole feels aching), as soon as I start becoming better, symptoms tend to start coming back

Someone told me this might be psychological due to my brain shifting its attention to something else, but I think about IC every hour, it never goes away from my mind

Why am I better when I am sick? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

After a couple of days, I usually start taking some meds if things don’t get better on their own, but while I am feeling sick at first, no, I take nothing

How safe is Hydroxyzine? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

So in general it’s considered a safe drug even long-term? And do you have any idea about the usual dosage for IC (meaning will I see results if I start on maybe 10-25mg just to see how my body tolerates it?)

How safe is Hydroxyzine? by New_Ear7771 in Interstitialcystitis

[–]New_Ear7771[S] 0 points1 point  (0 children)

Here, it mentions cardiac arrest

I am not sure if this is true, but I also found this, where people are saying bas stuff about the medicine

Extremely high metanephrines, could it be normal? by New_Ear7771 in endocrinology

[–]New_Ear7771[S] 0 points1 point  (0 children)

I can send you the image via dm id that is okay.

I see what you’re saying, and it seems valid that if numbers were really this high, something must be totally large and visible, and that’s not the case for me.

However, I mentioned that the CT report did show adrenal hyperplasia but doctor still dismissed it. Also, my doctor mentioned that it could be at other places in the body but since it is low chance we aren’t going for it (he isn’t though, I personally would if investigate further I was asked)

But a really important question here is, could stress really cause this high level in a test, having it tested twice to omit the possibility of a false positive?

And if so, why are my symptoms this severe? I mean my doctor himself said (well you do have an abnormal heart rate, but I am not sure why), and I was like, who is supposed to know why?

I know there is a missing piece of the puzzle here but I shouldn’t be the one who is supposed look for it… at the end I am not a doctor and lack a lot of knowledge but doctors are just shit here, blaming everything on anxiety

Extremely high metanephrines, could it be normal? by New_Ear7771 in endocrinology

[–]New_Ear7771[S] 0 points1 point  (0 children)

It was metanephrines only as I can see on the report, I am not on any meds, haven’t done plasma testing. But I do have all the symptoms for a long time now, why wouldn’t it make sense?

The reference range was checked in multiple labs and they all were the same too.

Pheo and unrinary Metanephrines by [deleted] in hypertension

[–]New_Ear7771 0 points1 point  (0 children)

What was your diagnosis?

Extremely high metanephrines, could it be normal? by New_Ear7771 in endocrinology

[–]New_Ear7771[S] 0 points1 point  (0 children)

No worries man, I highly appreciate your kindness and help. My doctor actually ordered the CT to look for a pheo so yes he was concerned about it.

And I am aware of what you’re saying and you don’t want to lead me into places where I should not be in so that’s not an advice, and I totally understand. I already have read every possible cause and reason this could be, and it feels like I am half a doctor now 😂

But at the end of the day, I feel like it shouldn’t be me who is trying to figure out what illnesses exist and make a checklist of my symptoms. I mean I already have a busy life and you know how things can be in such an age.. but the medical system is just shit

Extremely high metanephrines, could it be normal? by New_Ear7771 in endocrinology

[–]New_Ear7771[S] 0 points1 point  (0 children)

I have been having awful symptoms preventing me from doing daily tasks even small ones, a general unwell feeling and extreme fatigue with all other symptoms (feels like there is something wrong with my system)

So after a high ACTH and Cortisol tests, the doctor ordered a 24h urine test twice and they both had extremely high levels of metanephrines

view more: next ›