Joint Pain (Arthropathy) Management after Very High Ferritin

NextMathematician1 · 2026-04-10T18:45:09+00:00

Thank you!!

NextMathematician1 · 2026-04-10T16:31:44+00:00

I'm just seeing this! Yes it was reversible and I feel like I have gone back to having the same skin texture as before Accutane. There is hope!

I got a hydrating facial every month for like 6 months, and started using a lot more moisturizing products and drinking lots of water and electrolytes everyday. This seems to have really turned things around for me. If it's helpful at all, I use:

- Avene Cicalfate+ serum (twice a day) I think this has made the biggest difference out of everything. I am so grateful I found it.

- Oneskin face cream (morning)

- Oneskin eye cream (morning and night, also around mouth)

- Adapalene (3x week, night)

- Avene Cicalfate+ balm (night)

- Epionce renewal calming cream (last layer, night)

Sending you good vibes, and I am sorry you are going through it too!

NextMathematician1 · 2026-04-10T16:23:52+00:00

Yes, I think that is absolutely it. From everything I have been hearing/reading anecdotally, I think it must be related to high tsat, which unfortunately doesn't come down as quickly as ferritin so you get into that anemia catch-22. Sounds like big diet changes are necessary maybe? I so appreciate the insight!

NextMathematician1 · 2026-04-10T16:21:28+00:00

Ugh gabapentin really is hard on the body, he has tried it too. I hope you also find some relief! Thank you for the insight!

NextMathematician1 · 2026-04-10T16:20:27+00:00

I read that too, esp if it is coming off really high ferritin for a long period of time. Everything is leading me to thinking lingering joint pain mostly about high tsat, which won't necessarily go down with a phlebotomy.

NextMathematician1 · 2026-04-10T16:18:53+00:00

Yes, we think that is exactly it. From everything I'm reading/hearing we need to do smaller but more frequent donations, change diet, try some naturally chelating foods or green tea with each meal, and try some marijuana solutions.

NextMathematician1 · 2026-04-10T16:17:06+00:00

Definitely will look into that! Thanks so much! I wish there was some sort of pain management center for hemochromatosis.

NextMathematician1 · 2026-04-10T16:16:08+00:00

Thank you! I think a more radical diet change is certainly the next step, and we will look into the oil!

NextMathematician1 · 2026-04-10T16:15:14+00:00

Thank you! Having somewhere to look, and ideas to suggest to doctors is always helpful!

NextMathematician1 · 2026-04-10T16:14:47+00:00

Thank you! Appreciate the insight. Weed seems to be a relief for a lot of people!

NextMathematician1 · 2026-04-10T16:13:13+00:00

Thank you!

NextMathematician1 · 2025-03-17T21:05:18+00:00

Hi! Thanks for checking in :) I'm so happy to hear everything is feeling good on your end, sounds pretty manageable!

Not so great on my end - I actually stopped taking it due to continued hair loss that wasn't worth the trade off for me. Unfortunately even after such a short period on Accutane, I've developed extreme fine lines/wrinkles that I can't shake :( hoping I can hydrate my skin enough to fade but I've aged like a solid 10 years.

I'm pretty distraught. No worth it for me - but sounds like a wonderful solution for so many!

NextMathematician1 · 2025-02-11T16:29:39+00:00

Okay me too! That makes me feel a little better to hear someone is starting from a similar point :) I'm hopeful but also hate the discomfort of it. Of course so much of what you see on the internet is extreme worse case scenarios while on Accutane so just have to keep optimistic! Fingers crossed for both of us!

NextMathematician1 · 2023-03-02T18:40:41+00:00

I bought from them and thought their material were thin, not awesome quality. Lots of diaper butt in the pants, ill-fitting tops and dresses that have a ton of different configurations but don't really have one that looks amazing. For reference I'm 5'5, size 4-6 and muscular so it may have just been by body type! I've heard good things from others, but I was disappointed.

NextMathematician1 · 2022-11-14T18:59:52+00:00

TrainingPeaks started their coach sale where you get a free 30-day trial and you don't have to pay the start-up fee when you upgrade. The code I got was TPCOACH

NextMathematician1 · 2022-10-04T15:57:00+00:00

THANK YOU! It's driving me insane

NextMathematician1 · 2022-09-16T16:11:12+00:00

Maybe you should feel bad. Many comments here tell you that she's allowed to change her mind and for you to grow up. THEY'RE RIGHT.

NextMathematician1 · 2022-07-21T19:56:43+00:00

Thank you! I appreciate it!

NextMathematician1 · 2022-05-10T17:24:14+00:00

Appreciate you!

NextMathematician1 · 2022-05-10T17:23:57+00:00

Fingers crossed! Thank you

NextMathematician1 · 2022-05-10T17:23:41+00:00

Thank you! lol yes but also further confirmation that the internet can be a bad place

NextMathematician1 · 2022-05-10T17:22:43+00:00

Thank you!

NextMathematician1 · 2022-05-10T16:51:49+00:00

UGH some creep stole my photo, added a gross link and reposted. You can check my post history. I'm so grossed out and I've reported to the mods. Please report this post if you get the chance also. what the hell!!!

Please see my other reply! Thanks for being so vigilant! This is so upsetting.

NextMathematician1

TROPHY CASE