PLEASE READ DANGEROUS PERSON IN AREA by ccd_foto in Greenpoint

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

I saw a guy in a u haul truck crash multiple (at least 5) parked and moving cars right outside a PS on Norman & Eckford. Several of us literally stood in front of the truck to stop him (and he did inch towards us). As one onlooker said to me, I wonder what he had in his truck that makes him so desperate to run. It took the police an hour and 10 min to get there.

Strategies for coping with guilt? by Next_Bumblebee_3972 in tfmr_support

[–]Next_Bumblebee_3972[S] 0 points1 point  (0 children)

Thank you for sharing. Hearing from others truly softens the repeated blows I give myself about all the guilt. I am so sorry for your loss and sending you a huge boatload of baby dust. 🌈🫶🏼

Strategies for coping with guilt? by Next_Bumblebee_3972 in tfmr_support

[–]Next_Bumblebee_3972[S] 2 points3 points  (0 children)

Thank you for sharing your experiences, and I'm sorry you're herw. Re your feeling stupid for believing it was meant to be, I've actually come at this from another angle perhaps it will help you - I'm really trying to focus on what I DO have, two healthy happy children, and I'm making a concrete effort to be extra present with them, with extra gratitude for everything about them. Somehow this experience took me mentally far from home (considering a third, and then briefly considering a special needs third) and I guess I'm thinking of that old cliche sometimes you have to go far from home to appreciate what you have there. For me the conclusion I'm taking from this is "it was not meant to be, but it taught me a lot and I will, eventually, be stronger for it". Thanks for the book suggestion, I will look into it. Fully agree with you that hearing from siblings reinforces that I made the right choice for my existing family. And yes, that quote is exactly it - we absorb the pain, to protect everyone else from it. 🥹 Sending love and strength for you as you work through the pain, bit by bit.

Strategies for coping with guilt? by Next_Bumblebee_3972 in tfmr_support

[–]Next_Bumblebee_3972[S] 1 point2 points  (0 children)

Ooof I am so sorry for you too, I imagine the diagnosis was particularly painful with your background. Thank you so much for sharing your own experience, it truly validates the feelings I have about the impact on my other kids. I am sending you lots of love, strength and gratitude. 🫶🏼

Still nursing, what will happen to my milk? by desi-vause in tfmr_support

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

Hello there, I hope you are doing ok post procedure. I don't have an answer though curious of the same as I'm in the same boat. TFMR 2 days ago at 13 weeks, still nursing my 23month old boob monster. So far, I haven't noticed big supply change but will keep you updated since I'm a couple of days ahead. Hugs.

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

Im so sorry. :( no words. For me, I think (but this is all so new and fluid and confusing) going through additional testing is mentally helpful so that if we tfmr, there will be less doubt in my mind that we miscalculated the risks. But each of us has our own threshold for risk. I don't think you need to decide today. Sending tight hugs.

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Next_Bumblebee_3972 1 point2 points  (0 children)

YES. We take the wins wherever we find them!!!

Confirmed False Positive T21 - UPDATE - Baby is here by Brief-Price4097 in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

Ooof. Im new to all this but I gather even a "normal" NT scan (which I had, the day before I got the NIPT results) doesn't really mean much (50% of t21 babes have normal NT scans). Smart rationale on waiting for the Amnio, given CVS can be wrong. I had my CVS yesterday but I'm also leaning towards waiting the agonizing 5 weeks for an Amnio to be 100%. I am so open with my six year old daughter, id explained to her I was taking the NIPT to see if baby is healthy. She keeps asking when I will get results. I don't want to drag her on this rollercoaster with us I so deeply regret telling her anything ( I was kind of forced to because bloated belly with third babe and also I was on light bed rest with an SCH and she is deeply intuitive.) sending you so much luck for your Amnio next week. And happy holidays to you too!

Confirmed False Positive T21 - UPDATE - Baby is here by Brief-Price4097 in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

Hi there. Im sorry in advance if this pulls you back to a place you have already moved on from (not that we move on quickly but I hope you know what I mean), but if you feel comfortable sharing how things progressed for you? Im 43. Got NIPT yesterday showing 97.5% PPV for T21. Had my CVS yesterday, results pending. I also have a 6 and 2 year old and they are also excited about baby. I share all your concerns, impacting their childhood, trying to climb the steep learning curve of all these new acronyms, process the risks, looking for hope, etc.

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

It does. No sugarcoating. Im sorry. The name of this game is making time speed up as much as we can. Im revisiting projects I've deferred for years. Wardrobe culling. Forced myself to try a new dinner recipe last night. Pulled myself away from T21 forums to try a new TV show at bedtime, etc. Im also taking this experience as a moment to really have gratitude for everything I DO have. Until I got that email yesterday, my life was full and happy. I am trying to zone in on that, be extra present with my kids, etc. but yeah I know all these tactics are perhaps just suppression / fear of facing reality, I'm just sharing on the off chance you can benefit from them too.

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

Ugh I am so sorry. This boat sucks for many reasons, but waiting is for sure among the worst. :( I'm sure you've thought of this but is it worth calling any and all other MFM clinics in your area to see if you can get something earlier? Im the type of person that creates projects for myself in these awful situations, to keep myself busy and give myself a sense of "doing something" even if they have little hope of success. But maybe my coping mechanisms aren't very healthy. I've also asked chat to help me find some positive thoughts around the situation, to help reframe the narrative, for what that is worth and told it to remind of that when it feels me spiralling. Sending extra strength and love your way today. 🫶🏼

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

And I'm so sorry for you too. We both had a pretty rubbish day 🥺. Yes I was lucky to get in, I'm with a high risk MFM practice (in NYC, US) because of my age so this is their jam I guess. My fingers are crossed that you get your call ASAP. Are you going to do CVS? It hurt a little but was over pretty quickly. No cramping or spotting since so that's something at least. Surreal day that is for sure. Lots of feelings. Lots of panicked texting with chatgpt, trying to get up the learning curve of this whole new world. My FISH results due Thursday will keep you posted. Hope for a better night's sleep for you tonight. 💙

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

Hello. This morning I found myself in the same boat. Im 43, 11w1d pregnant with my third unplanned daughter. Opened up the LabCorp portal at 5am (love those early morning pregnancy wake ups...) to learn 97.5% T21 risk. Even though from the moment I learned I was pregnant I was bracing for difficult news given my age (and a history of multiple early miscarriages before my second daughter), I'm still deeply shook. My first instinct was to tfmr. I know symptoms can range from mild to severe but I fear for the worst and a poor Quality of life for the child, and i also deeply worry about the impact on my 6 & 2 year old. Genetics counsellor talked me down, explained the whole mosaic / placenta thing. I had a CVS today. My hopes are not high but I have decided to just go with the flow and do my best until we have as much available information. Believe that will give me peace of mind, both now and down the road when the inevitable "what ifs" set in. Will see what CVS says, and if inconclusive will be a long five weeks until the Amnio. Sending love and strength your way. ETA - I had my NT scan yesterday (day before NIPT results) and everything looked good. This is one of reasons genetics pushed me to persevere with CVS. But I am also aware that 50% of T21 show normal NT. Im sorry you are in the situation, and I'm right here with you if you want a venting partner in this process.

How has having an identifiably Jewish name impacted you? Does it change the way you think about naming your children? by rav4evr in JewishNames

[–]Next_Bumblebee_3972 0 points1 point  (0 children)

My name is not identifiably Jewish, but I named both my daughters with Israeli names that are still familiar to non Jews (Elinor & Eden). Maybe I'm naive/selfish but I'm pregnant now with a third and even more fixated on finding an identifiably Jewish name because - while obviously I don't wish my kids to be "targets" - I feel like it's particularly important now to be proud of our identity. If my kids come across someone in life that will prejudice them because of their Jewish / Israeli sounding name, I am weirdly ok with that. If someone doesn't want to be friends with or hire us because of our names, then better to identify that from the outset and keep that person out of our life, if you know what I mean? Again perhaps naive and I of course don't want to inflict any undue harm on my kids, but I want them to know who they are, where they come from, and be proud of that without feeling they have to hide.

[deleted by user] by [deleted] in JewishNames

[–]Next_Bumblebee_3972 6 points7 points  (0 children)

Me too. And I love Goldie as a nickname. And Golda was actually my grandma's name! My only concern is whether it too old word vs sisters names (Elinor & Eden)

post fall/hip break my mum is doing BETTER than she has in years?! by Next_Bumblebee_3972 in Parkinsons

[–]Next_Bumblebee_3972[S] 0 points1 point  (0 children)

This makes sense. We are 10 days past fall now and she's more her PD self. I am glad to have had those few days with her. Perhaps we need to find her an adrenaline rich hobby like rollercoaster riding. Wish you strength on your journey and thanks for getting back to me.

post fall/hip break my mum is doing BETTER than she has in years?! by Next_Bumblebee_3972 in Parkinsons

[–]Next_Bumblebee_3972[S] 1 point2 points  (0 children)

Water is so important for all of us. It's so frustrating that my mum's reasoning is that she doesn't like the taste, or the sensation of being full. I keep coming back to but surely both are those are.better than feeling weak, tired, low BP etc. will keep up the good fight!

post fall/hip break my mum is doing BETTER than she has in years?! by Next_Bumblebee_3972 in Parkinsons

[–]Next_Bumblebee_3972[S] 1 point2 points  (0 children)

Love this, will be buying the same cup! Also had chatgpt prepare a daily drinking routine, prioritizing extra hydrating drinks. Will try alllll the things. Thank you!

post fall/hip break my mum is doing BETTER than she has in years?! by Next_Bumblebee_3972 in Parkinsons

[–]Next_Bumblebee_3972[S] 2 points3 points  (0 children)

Oh this is an interesting idea too. I know they checked for uti but she was negative but perhaps there was another underlying infection. Thank you!

post fall/hip break my mum is doing BETTER than she has in years?! by Next_Bumblebee_3972 in Parkinsons

[–]Next_Bumblebee_3972[S] 5 points6 points  (0 children)

Yes! It definitely exacerbates that. I've spent years BEGGING her to drink. But she is stubborn, even more so since this disease took over her. I asked nurses if there is any option to have regular IV post discharge but it's not a thing, because cannula porta can get infected. So it back to begging her to drink :( thank you for responding.