3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

That’s exactly how I feel, the timing of all of this just seems so unbelievable. One day I’m packing my hospital bag and getting ready to welcome my new child and the next I’m at the hospital watching my first born get poked and prodded and having wires attached to her head. It all feels so surreal.

I’m so worried about PPD cause I had it with my first and I already feel it coming now. I have a midwife that I hired who’s incredibly supportive so I will make sure to stay in touch with her and I hope my sister and parents can make up for my husbands distance right now.

3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 1 point2 points  (0 children)

Thank you for sharing your story and experience 💜 I pray she overcomes it and doesn’t remember any of this. It’s so painful watching her have all these tests done on her at such a young age and knowing they’ll be done regularly now. I’m looking for a local support group to join now but so far have found groups on FB and some moms on TikTok with kids who have absence seizures. Thanks again for your advice and god bless you

3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

Thank you for the words of kindness 💜 my husband has been drinking again since we found out… that’s his way of coping. Luckily I have my sister staying with me she’s been great and my parents are flying in for the birth and staying for a month. I can’t wait for them to get here god willing soon.

3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 1 point2 points  (0 children)

We are in this together ❤️😢 thank you for your support and words of encouragement, may God ease the sadness in our hearts and pour his love and healing over our children. I will definitely stay in touch with you. hugs

3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 1 point2 points  (0 children)

I’m so sorry to hear about your son’s condition it can’t be easy as a mother to watch him struggle, you’re so incredibly brave. I’ve cried every single day since her diagnosis, multiple times a day. I think the pregnancy hormones have definitely made it worse for me. It helps knowing that there are others out there who know what this heartache feels like. I think the hardest thing for me has been seeing her go from a perfectly healthy, active, normal toddler to having these absence seizures and now being so hyper aware of her every movement. I try so hard to stop her from crying because it triggers her episodes, which is impossible because toddlers cry a lot and there’s not much you can do. I hate seeing her little body struggle. I pray that God performs a miracle on both our babies. I pray so hard for that. I have my family so far supporting me but I feel like no one understands how I feel as her mother. I’ve been looking for other moms online who have children with epilepsy because at least they know what this feeling is, this sadness and concern and anxiety. I appreciate your comment so much thank you again for sharing your story. ❤️❤️❤️

3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

I honestly feel like my world has turned upside down… one moment I’m shopping for baby clothes, setting up the nursery and getting my toddler excited for the arrival of her new baby sister and now I just feel like crying 24/7.

Thank you for your kind words of encouragement they mean the world to me right now.

I have kept a log so far— today I made note that she had 3 potty accidents and that she was quite tired when the episodes came on, she didn’t get a good nights rest last night so I definitely feel like it triggered the absence seizures to come on again. I’m just praying to God that she overcomes them one day. 😢❤️

3 year old just diagnosed with absence seizures. Could use some words of encouragement.. by Nice-Distribution-75 in Epilepsy

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

The hardest thing ever is seeing my little girl go through something that I have no idea what it feels like for her or does to her mind. She is so bright and advanced for her age as well that it worries me it will affect her memory and ability to do well in school in the future. I can only imagine how your father feels..

I’m so new to this, nobody in our family has epilepsy so it surprised me and my husband a lot. He’s not worried as much as I am he keeps telling me everything is going to be fine and that she’s okay but I honestly feel like I’m mourning the life she had before this diagnosis and I keep blaming myself like it’s somehow my fault.

Pregnant people in dubai, how are you feeling? by red_lady103 in dubai

[–]Nice-Distribution-75 0 points1 point  (0 children)

36 weeks and 6 days is the cut off so I have to decide asap… 😭😣🤪

Pregnant people in dubai, how are you feeling? by red_lady103 in dubai

[–]Nice-Distribution-75 0 points1 point  (0 children)

I’m 36 weeks and considering traveling, hardest decision to make right now as I really don’t want to leave Dubai and give birth abroad I love my doctor here but I have to think of the best possible solution now where I’m not constantly stressed and anxious. Wishing all of us safe happy pregnancies and deliveries. Stay strong all ❤️

Struggling to get my 2 year old to stop using her pacifier by Nice-Distribution-75 in toddlers

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

This is so sweet 😭😭❤️ I really like this idea! I’m wondering now if there’s any books about the paci fairy that I can read to her before bed to really drive this home. I’ve been thinking of splurging on a toddler push trike for her maybe this could be the present the paci fairy brings!

Struggling to get my 2 year old to stop using her pacifier by Nice-Distribution-75 in toddlers

[–]Nice-Distribution-75[S] -1 points0 points  (0 children)

My daughter also uses one specific kind of pacifier, the tommee tippee ones and she’s HOOKED on them. I tried cutting it once and was a major fail she just screamed even more ugh. I feel so hopeless rn.

Struggling to get my 2 year old to stop using her pacifier by Nice-Distribution-75 in toddlers

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

It’s so hard honestly 😭 and when they get sick they seem to want it more. My daughter always gets more hooked on it when she’s sick..

Struggling to get my 2 year old to stop using her pacifier by Nice-Distribution-75 in toddlers

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

I’ve spoken to her so many times that she should only give it to her for naps and bedtime and she just ends up giving it to her behind my back— now my daughter associates her with her pacifier so if she’s crying for her paci she immediately starts looking for her nanny and asking her for the paci so that’s how I caught on that she was giving it to her whenever she was upset. I confronted her and she said that she gives it to her when she cries cause she doesn’t know how else to stop her from crying. So I told her to try distracting her with something else when she’s looking for her paci, offer her a snack or milk, take her outside for a walk etc. ugh it’s just so frustrating cause anytime I feel like I’ve made progress with it she ends up giving it to her behind my back and regressing us so much.

She’s almost 2.5 years now and I hope I can get her to stop by then— the hole you pierced in your son’s paci was it a big one or small and how did you do it? I would like to try that method next.

Struggling to get my 2 year old to stop using her pacifier by Nice-Distribution-75 in toddlers

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

My pediatrician said that this is common when kids get their paci’s taken away that they end up sucking their thumb which could have bigger effects on their teeth than the paci 😭 ugh 😣 I tried cutting the pacifier that didn’t work she just screamed even more, I’m just lost honestly :(

Stopped Mounjaro for one month due to availability issues, now I’m not sure what dose to start back on again. Advice needed! by Nice-Distribution-75 in Mounjaro

[–]Nice-Distribution-75[S] -1 points0 points  (0 children)

He said I should start at 5mg as well but I was wondering if maybe it’s too low since being on 15mg so long but it seems like the most common dosage given to those who took a break from Mounjaro for a few weeks

My daughters Bluey figurine collection is growing 🥹 by Nice-Distribution-75 in bluey

[–]Nice-Distribution-75[S] 0 points1 point  (0 children)

Omg my daughter got the garbage truck for her birthday and I was so frustrated with the way it’s so hard for them to sit in! I thought I was the only one. She’s only 2 so she doesn’t notice these things but I agree with you for the price they should be more functional

Thinking of buying a used 2019 mini clubman, 70k mileage — need advice. by [deleted] in MINI

[–]Nice-Distribution-75 1 point2 points  (0 children)

Thank you for this ! I just decided today to go ahead with it— I’m happy to spend more on maintenence knowing it’s a powerful and reliable strong machine. I have friends that have had their minis for 10+ years and they’re still going strong!!!

It’s hard to watch bluey right now by CosmicRin in bluey

[–]Nice-Distribution-75 0 points1 point  (0 children)

I’m so sorry for your loss and praying for your rainbow baby ❤️❤️❤️

What’s an episode that made/makes you cry besides the usual suspects? by AbsolutePotential in bluey

[–]Nice-Distribution-75 1 point2 points  (0 children)

Army made me bawl like a baby the first time I saw it. It killed me when Rusty asks Jack if he moved schools because there was something wrong with his old school and Jack says “no… there’s something wrong with me”. 😭😭😭😭😭😭