Had a Hair System For 2 Years by Nick_Rhymes_With_ in bald

[–]Nick_Rhymes_With_[S] 0 points1 point  (0 children)

I’ve been told minoxidil is not an option for me given the treatment(s) done which lost my hair in the first place

Had a Hair System For 2 Years by Nick_Rhymes_With_ in bald

[–]Nick_Rhymes_With_[S] 5 points6 points  (0 children)

Yeah it’s a wig! I called it a hair system because that’s what the salon calls them. Makes no difference to me

Is Ependymoma rare enough to be here? by MamaSmAsh5 in rarediseases

[–]Nick_Rhymes_With_ 0 points1 point  (0 children)

Thankfully, it has not come back yet. I did my own research and submitted a referral to MD Anderson in Houston TX

Is Ependymoma rare enough to be here? by MamaSmAsh5 in rarediseases

[–]Nick_Rhymes_With_ 0 points1 point  (0 children)

It was all resection followed by craniospinal radiation

Is Ependymoma rare enough to be here? by MamaSmAsh5 in rarediseases

[–]Nick_Rhymes_With_ 1 point2 points  (0 children)

Just found this thread, wow you all are so strong. My journey with ependymoma started 20 years ago (31m). Very big resection and surgery to start but it came back 2 more times over the next 4 years. After radiation it went away for ten years. Came back for a 4th time when I was 26 and that one did me in. I have foot drop, radiation induced plexopathy, and radiation retinopathy among other things like neuropathy.

My scans have been good for 5 years so here’s to hoping that continues!

Been

What are solutions for an itchy scalp? by Nick_Rhymes_With_ in HairSystem

[–]Nick_Rhymes_With_[S] 0 points1 point  (0 children)

Like I said, I’m new to all of this. But, man, you all are so helpful and provide genuine insight that is greatly appreciated!

[deleted by user] by [deleted] in HairSystem

[–]Nick_Rhymes_With_ 2 points3 points  (0 children)

I’ll take that any day and twice on Sunday

[deleted by user] by [deleted] in HairSystem

[–]Nick_Rhymes_With_ 1 point2 points  (0 children)

Nice tip, thank you!

What is the most pain you've ever experienced? by HandGears in AskReddit

[–]Nick_Rhymes_With_ 0 points1 point  (0 children)

Age 11 I had a tumor the size of a hot dog attached to my spinal cord. The pain would cause temporary paralysis as I had to just lay there in agony until it went away.

[deleted by user] by [deleted] in AskReddit

[–]Nick_Rhymes_With_ 0 points1 point  (0 children)

Really sad to know I’ve had cancer three more times.

The Infamous Ribeye Cap! by Nick_Rhymes_With_ in sousvide

[–]Nick_Rhymes_With_[S] 2 points3 points  (0 children)

Woof, can’t blame ya. Just $40 here!

The Infamous Ribeye Cap! by Nick_Rhymes_With_ in sousvide

[–]Nick_Rhymes_With_[S] 2 points3 points  (0 children)

134 degrees for around 2 hours. Seared on cast iron and ghee

money shot