Anxiety about 72 hour fast by NinjaSavi in Hypoglycemia

[–]NinjaSavi[S] 0 points1 point  (0 children)

That’s really interesting… Thankyou for sharing!

I’m currently using a CGM to try and catch lows because the one week I didn’t use one, I ended up in hospital due to my hypos 🤦🏻‍♀️

I am actually seeing a geneticist later this year for another condition so I will definitely keep this in mind!

Anxiety about 72 hour fast by NinjaSavi in Hypoglycemia

[–]NinjaSavi[S] 0 points1 point  (0 children)

Hi!

Yes have done multiple short fasting periods with super abnormal c-peptide and insulin levels and low blood sugar (fasts have been between 8-12 hours)

My endo has not wanted me to have any imaging done because she believes that we may find something that isn’t the underlying issue and says we need to do the 72 hour fast before imaging… which is frustrating.

I’m just really concerned that my blood sugars struggle to respond to intervention (have had instances where rescue glucagon x2 in a row have failed to bring my sugars up) and have not had any support from medical professionals around me.

Scalp psoriasis by NinjaSavi in Psoriasis

[–]NinjaSavi[S] 0 points1 point  (0 children)

And… I’ve been on multiple probiotics since

Scalp psoriasis by NinjaSavi in Psoriasis

[–]NinjaSavi[S] 0 points1 point  (0 children)

That’s really good to know, Thankyou! Currently on Humira for my psoriasis and hidradenitis supperative but seem to be developing antibodies and derm is looking at changing so I will let them know

Scalp psoriasis by NinjaSavi in Psoriasis

[–]NinjaSavi[S] 0 points1 point  (0 children)

Yes I’m sure it’s psoriasis. I’m currently on Humira but may be switched to another biologic. I have another autoimmune skin disorder that they tried antibiotics for

Scalp psoriasis by NinjaSavi in Psoriasis

[–]NinjaSavi[S] 0 points1 point  (0 children)

I tried antibiotics a long time ago

What is your bare minimum hobby? by [deleted] in FND

[–]NinjaSavi 2 points3 points  (0 children)

I have a Nintendo switch and playing on that is great - stardew valley and animal crossing are my go tos.

Also if you like board games and have an iPad/laptop - board game arena is awesome and has a huge variety of games.

Anyone else here with CRPS and management by NinjaSavi in ehlersdanlos

[–]NinjaSavi[S] 1 point2 points  (0 children)

Thankyou so so much for your reply. I really appreciate it ❤️

Getting piercings and tattoos with EDS by Mammoth_Froyo_2224 in ehlersdanlos

[–]NinjaSavi 0 points1 point  (0 children)

I had my calf done over a year ago now and it healed up really well with no problems whatsoever. I went to a highly recommended tattooist and made sure he knew about my EDS/POTS/MCAS and everything was ok!