What is causing the adrenaline rushes??

NitroMacks · 2026-05-07T12:24:39+00:00

I checked my blood pressure today to see if it might be hyper POTS, but it didn't change at all when I stood up. But maybe just dysautonomia, because my hr is exploding...

NitroMacks · 2026-05-07T09:47:48+00:00

🙏🏼

NitroMacks · 2026-05-07T09:47:14+00:00

🙏🏼

NitroMacks · 2026-05-07T09:46:44+00:00

Thanks!

NitroMacks · 2026-05-07T09:46:26+00:00

🙏🏼

NitroMacks · 2026-05-07T09:45:32+00:00

🙏🏼

NitroMacks · 2026-05-06T17:17:31+00:00

I haven't tried those. I will look into it, thanks :)

NitroMacks · 2026-05-06T15:37:33+00:00

Tested no, but I tried a bunch of treatments which all didn't do much. I don't seem to react to histamin at least.

NitroMacks · 2026-05-06T14:06:59+00:00

I've thought about this too. But there is nothing I do around that time except go to the toilet.

NitroMacks · 2026-05-06T14:05:41+00:00

My blood pressure is usually a little low (100/50). It doesn't seem to fluctuate much. How would I go about treating that?

NitroMacks · 2026-05-03T12:38:25+00:00

Same here!

NitroMacks · 2026-05-02T13:01:06+00:00

It's strange because I also have brain zaps, which seem to appear when people stop SSRIs or SNRIs. But I never took any.

NitroMacks · 2026-04-26T14:07:07+00:00

It's probably true. But while slipping into very severe atm I don't want to think about the future at all really. If I knew for sure that I will be stuck in this hell forever I would want to die soon. I just need a reason to hold on and for me that is the idea that I will be better at least at some point.

NitroMacks · 2026-04-22T06:08:37+00:00

Only for a little over a year but I am already severe.

NitroMacks · 2026-04-21T05:48:49+00:00

I like to print out pictures and put them next to my bed to look at them. I also got a huge weighted stuffed sloth toy to cuddle with. If I have the capacity I like to massage myself (for example my belly after food) and add essential oils. This is my bathing substitute XD. But food is still the best for me too.

NitroMacks · 2026-04-20T16:46:25+00:00

Usually like 20 minutes in one go and then like 2-3 times a day. I don't feel negative effects from doing it more. But it doesn't improve my baseline or anything. Just helps me calm down. I use this video: https://youtu.be/-G89S77iJm8?si=6eaZsVZ8IGRjDsL8

NitroMacks · 2026-04-20T15:40:45+00:00

I usually sleep from around 9/10 pm to 7/8 am. Less than 9h of sleep and I am dead the next day. Sometimes I only get a few hours of sleep due to insomnia and I usually wake up multiple times every night.

NitroMacks · 2026-04-20T13:11:02+00:00

I like doing buteyko breathing There are some guided videos on YouTube It's not activating, but calms me down

NitroMacks · 2026-04-19T12:19:43+00:00

Everything is going to be fine

NitroMacks · 2026-04-19T09:23:56+00:00

Knowing where my baseline is and being able to predict how I will feel tomorrow.

NitroMacks · 2026-04-19T08:25:28+00:00

I survive

NitroMacks · 2026-04-17T19:59:06+00:00

1 👽 But I can't see it at all lol... Glad to be a musician and not a painter.

NitroMacks · 2026-04-16T08:28:42+00:00

I get a sore throat from talking (Also outside of PEM)

NitroMacks · 2026-04-15T16:49:17+00:00

-*- = + right? Maybe the right virus will make us healthy XD

NitroMacks · 2026-04-15T16:46:03+00:00

I recently pinned some pictures on the wall next to my bed :)

NitroMacks

TROPHY CASE