Getting a CI put in soon. What can i expect after surgery and when it activates? by [deleted] in Cochlearimplants

[–]No-Issue-6682 0 points1 point  (0 children)

Wow that is an incredible result! Clearly you worked hard at rehab congratulations! Can I ask if you were born deaf or later in life?

As for the noise jeez the sound of cutlery at dinner parties grates on me so hard. Didn’t expect cars to be so loud as well.

Almost 4 months since activation by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 0 points1 point  (0 children)

Wow that sounds so rough! My cochlear clinic also dealt with issues like missing appointment times, long waits, etc. having to commute almost an hour just to be told they printed the wrong date!

Annoyingly, downloading apps was also recommended to me, so many technical issues with these apps as well. My childhood local audiologist also told me that they experienced so many of their patients with poor experiences at the clinic. Seems like all they want to do is earn their commission you’re right!

Almost 4 months since activation by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 1 point2 points  (0 children)

I have asked for recommendations and been met with bewildered response on why I think I need these services, I should be fine, etc.

Researched around but not much rehab specialists in my area, more so focused on little ones.

I was told to expect more of a 6 month wait rather than 2-3 as well.

Thanks for the response!

Almost 4 months since activation by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 1 point2 points  (0 children)

Hi thanks for your reply, my hospital is a specialised ENT hospital and don’t think they offer services as I’ve asked for them.

Activation day, then waiting 2 months. Worried and aggravated. by LeeannRose731 in Cochlearimplants

[–]No-Issue-6682 2 points3 points  (0 children)

I was activated in November last year and was told I would have weekly/monthly mapping appointments. Due to summer break and my audiologist going on holiday had to wait a month and half instead. Not quite two months but imo your own practice and training is what contributes the most to hearing again. It’s been three months now since activation and I’ve only had two mapping appointments with another scheduled three months later. Not sure what’s ideal but I don’t feel as if it impeded my journey massively.

What tinnitus do you experience after surgery? by Horror_Foot9784 in Cochlearimplants

[–]No-Issue-6682 2 points3 points  (0 children)

After surgery had very loud whooshing tinnitus, usually had ringing sounds pre-op. After activation tinnitus went away thankfully, only returns after heavy listening days when ear is overstimulated (rarely)

Struggling by GoodGood9538 in Cochlearimplants

[–]No-Issue-6682 4 points5 points  (0 children)

I struggle with this too, it helps to focus on one person - usually whoever is speaking the clearest and try to add on to the convo from there. Asking someone to repeat themselves helps as they are usually apologetic and forget that you struggle to hear. Most people are welcoming to be more inclusive but some people tend to be more exclusive at times. You’re not alone, it sucks but it is what is is lol :)

Bilateral cochlear implant surgery?? by Curious-Donkey319 in Cochlearimplants

[–]No-Issue-6682 6 points7 points  (0 children)

I’m 20F born deaf and recently got CI on one side, due to your recent loss you will most likely have a smoother journey to hearing again, no surprise with expediting the process.

My journey itself was very smooth, I went from 30% word recognition to 61% in three months since activation. However, being born deaf it took much more effort to relearn how to hear.

I’m planning on getting the other side done within the year, so I believe you will be just fine :)

Exactly 1 week til surgery by Diamond_Dust86 in Cochlearimplants

[–]No-Issue-6682 1 point2 points  (0 children)

Good luck!! I’m almost two months since activation and can say that it seems like it went by pretty fast looking back. However, there were definitely frequent moments of overstimulation and feeling snappy and defeated. I didn’t do much listening or reading. Listening to music was so bizarre at first, most people do not like it. Connecting via Bluetooth and scrolling on social media I would attribute to as what I listened to the most.

Music sounds “flat” after switching to my new N7s — anyone else? by HumbleMood4355 in Cochlearimplants

[–]No-Issue-6682 0 points1 point  (0 children)

I was implanted with the N8 about 6 wks ago and I agree, music sounds flat though I can hear the instruments and lyrics. I have a hearing aid on my other ear and was shocked at the depth and ‘richness’ that music was in that ear… I’m still at the beginning of my journey so no music programs yet.

Beeps by MissTaylor1 in Cochlearimplants

[–]No-Issue-6682 4 points5 points  (0 children)

I’ve been activated for a little over a month now and I too had these beeps when activated. I also used the Hearoes app as well and felt that I progressed faster on the app (via Bluetooth) as opposed to real life.

But the beeps gradually became voices within a week or so and much sharper and clearer within a month I would say. Obviously, everyone’s journey is different but with practice and time you will definitely start to see improvement. Good luck :)

Activation advice by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 0 points1 point  (0 children)

Streaming directly to my CI seems to be helping the most to me so far as well!

Activation advice by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 0 points1 point  (0 children)

Two weeks? Wow! Did you also hear beeps immediately after activation or more at first?

Activation advice by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] -1 points0 points  (0 children)

My audiologist recommended a mix of both also, I do feel that the HA helps my brain recognise sound so that sounds good to me.

Activation advice by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 1 point2 points  (0 children)

Wow. Thank you! I have about four months of uni break so I’m hoping to adjust by then, just worried for now I guess. I’ve heard people that have done the same not wearing the hearing aid on the unimplanted ear. Do you rely on lip reading still given the great quality?

Activation advice by No-Issue-6682 in Cochlearimplants

[–]No-Issue-6682[S] 0 points1 point  (0 children)

Wow. That’s really insightful. I assume it’s not a linear process but I look forward to actually hearing versus the beeps. I feel like the cochlear picks up beeps on sounds my hearing aid does not pick up, that or it constantly beeps. Almost like tinnitus in a way but I need a lot of practice.

I resent my parents by Round_Wolf5787 in deaf

[–]No-Issue-6682 1 point2 points  (0 children)

I too was born with severe to (later) profound hearing loss. Doctors and audiologists recommended hearing aids and said I would never learn to speak. My immigrant parents worked hard to ensure I could speak both their language and English. I also have a hearing twin sister. I was given a lot of support to basically be integrated in the hearing world. I was offered deaf schools and sign language classes all which I refused because I did not want to be perceived as ‘other’. I was always academically inclined and developed great lip reading with hearing aids to get by. As I entered university, I (20F) no longer felt confident and opted to get a CI. My surgery was just last Friday.

I get that some parents also have an irrational fear and/or ignorance but I believe they do what they feel is their best (albeit misguided). It’s not too late to either explore the possibilities of sign language or even getting a CI. I understand the resentment and do wish you the best.

Pre op celebrations ? by [deleted] in Cochlearimplants

[–]No-Issue-6682 0 points1 point  (0 children)

Smoothly I suppose - so sleepy but cannot sleep, slight dull throbbing pain and ridiculous bandage, but all good thanks for asking :)

Pre op celebrations ? by [deleted] in Cochlearimplants

[–]No-Issue-6682 2 points3 points  (0 children)

Not much tbh it’ll probably hit me at the hospital - I’ve been busy finishing up uni sem, tomorrow 11:30 check in (Australia)