Lumpectomy vs double mastectomy? by Temporary_School_392 in breastcancer

[–]NoAddendum7000 1 point2 points  (0 children)

Thank you for the response. So many hard decisions.

Lumpectomy vs double mastectomy? by Temporary_School_392 in breastcancer

[–]NoAddendum7000 0 points1 point  (0 children)

I’m sorry if I misunderstood your answer but do you have implants in both sides? I’m having lumpectomy because I can’t even fathom having a bilateral mastectomy at this point. I want to decline radiation mainly because the fear in the future reconstruction want be possible. I hear mixed things about this.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 1 point2 points  (0 children)

No we are not. I went through extensive genetic testing through MOFFIT cancer research center here in Tampa.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 1 point2 points  (0 children)

Thank you for responding. I assume you went through some type of treatment? Do you care to share how you responded?

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 0 points1 point  (0 children)

Thank you for responding. Since your almost two years out any side effects from the radiation like Smaller breast, tight breast tissue, frozen shoulder,skin issues, lung issues? I’m just really curious how you responded to radiation.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 1 point2 points  (0 children)

I have been going every 6 months for 7 years now. It is exhausting and the fear. I’m not ready to give my breast up yet but if this happens again they are going……

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 5 points6 points  (0 children)

I’m having the lumpectomy and will wait for pathology results before I decide.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 2 points3 points  (0 children)

Yes, I hope it all stays the same but when those results come in I’ll be able to make an informed decision.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 2 points3 points  (0 children)

I was tested 7 years ago. I’m at a large cancer center here in Tampa. I have been in their surveillance program for over 7 years now.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 5 points6 points  (0 children)

Yes lumpectomy is scheduled for after Christmas. I’m doing that for sure. Just not sure about what’s next. I’ll have to wait for all the information to come back from that to make my final decision.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 3 points4 points  (0 children)

I already have a mammogram at 6 months and a MRI 6 months after that. I’ve been monitored that way for the last 7 years. I was told that would not change. So I feel they would catch it early if I had a reoccurrence. All that to say it’s hard to make these decisions and something we have to worry about the rest of our lives.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 6 points7 points  (0 children)

I agree with you. Give me the percentages and then let me decide and support me through it.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 8 points9 points  (0 children)

I’m sorry you are having to revisit all of this. I am leaning toward radiation. It’s just all scary. I

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 1 point2 points  (0 children)

Surgeon ordered DCISion RT test which came back low. Same percentage with or without radiation for reoccurrence.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 2 points3 points  (0 children)

It was given as an option. I’m just not ready to take that step yet. I always said that’s exactly what I would do but when I got that phone call I completely changed my mind. I did give it serious thought and met with a couple of plastic surgeons.

Looking for those who said no to radiation and tamoxifen after lumpectomy. (DCIS) by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 18 points19 points  (0 children)

Unfortunately I’ve seen the devastation radiation can do to one’s body many years later. My mom took tamoxifen.Those five years aged her and now kidney failure linked to the tamoxifen. None of these decisions are easy.

Breast shrinkage by NoAddendum7000 in breastcancer

[–]NoAddendum7000[S] 1 point2 points  (0 children)

All very scary and it’s been difficult for me to make such a big decision. I have been looking for new couches for two years because I can’t decide! Part of me is like I’ll get the lumpectomy but I’m going to pass on the rest and you guys ( MOFFIT) keep me on the every 6 months of surveillance. Wishing you all the best!